AMERICAN ASSOCIATION ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES

aka AAIDD   |   Silver Spring, MD   |  www.aaidd.org

Mission

AAIDD promotes progressive policies, sound research, effective practices and universal human rights for people with intellectual and developmental disabilities.

Ruling year info

1951

Executive Director & CEO

Dr. Margaret Nygren, EdD

Main address

8403 Colesville Road, Ste 900

Silver Spring, MD 20910 USA

Show more contact info

EIN

06-0636098

NTEE code info

Professional Societies, Associations (V03)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

AAIDD seeks to improve and enhance the knowledge, skills, and abilities of professionals of any discipline working for and with people with intellectual and developmental disabilities.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Publications

AAIDD publishes three peer-reviewed journals and a catalog of books and resources of interest to researchers, clincians, practioners, and policy makers in the field of intellectual and developmental disabilities.

Population(s) Served
Academics
Activists

AAIDD provides in-person and online education and training of interest to professionals in the field of intellectual and developmental disabilities.

Population(s) Served
Academics
Caregivers

AAIDD publishes and supports evidence-based assessment tools for people with intellectual and developmental disabilities. AAIDD's assessment tools are the Supports Intensity Scale - Adult Version (SIS-A), the Supports Intensity Scale - Children's Version (SIS-C), and the Diagnostic Adaptive Behavior Scale (DABS).

Population(s) Served
People with intellectual disabilities
People with disabilities

AAIDD supports progressive public policies that will achieve a goal of full inclusion by people with disabilities in society. AAIDD, both individually and in collaboration with other organizations, issues position statements, amicus briefs, and comments on proposed regulations, and contributes to the public dialogue on achieving the highest quality of life for people with intellectual and developmental disabilities.

Population(s) Served
People with intellectual disabilities
People with disabilities

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of clients reporting increased knowledge after educational programs

This metric is no longer tracked.
Totals By Year
Population(s) Served

Academics, Activists, Students

Related Program

Education

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Context Notes

AAIDD surveys attendees of in-person and online conferences and webinars following each event to collect self-reports of increased knowledge as a result of the educational event.

Number of research or policy analysis products developed, e.g., reports, briefs

This metric is no longer tracked.
Totals By Year
Related Program

Public Policy

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

AAIDD issues position statements and research briefs on issues that concern services and supports for people with intellectual and developmental disabilities.

Number of training events conducted

This metric is no longer tracked.
Totals By Year
Related Program

Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

AAIDD offers in-person and online conferences and webinars on research, practice, and policy in the field of intellectual and developmental disabilities.

Number of publications identifying sector best practices

This metric is no longer tracked.
Totals By Year
Related Program

Publications

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

Each year AAIDD publishes 18 individual issues among its three peer-reviewed scholarly journals. AAIDD publishes books and tools of interest to professionals in the field.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

AAIDD’s goals are to:
1. Enhance the capacity of professionals who work with individuals with intellectual and developmental disabilities.
2. Promote the development of a society that fully includes individuals with intellectual and developmental disabilities.
3. Enhance the effective integration of research, practice, and policy.
4. Sustain an effective, responsive, and responsibly-governed organization.

1. Advance progressive policies, sound research, and effective practices that result in social justice and universal human rights with and through collaborations with other organizations.
a. Engage in strategic alliances with other organizations to influence policy, promote public awareness, shape public attitudes, and expand the participation and access of people with intellectual disability in all aspects of life.
b. Increase awareness among policy makers and the general public on issues and policies that are important to people with developmental and intellectual disabilities and their families and within the context of their various intersectional identities.
c. Provide information and expertise on intellectual and developmental disabilities to jurists and others in the criminal justice system.
d. Generate review, revise, and disseminate essential position statements.
e. Lead efforts to expand and improve research, policy, and practice to improve the quality of life of people with intellectual and developmental disabilities.

2. Disseminate information on progressive policies, sound research, effective practices, and universal human rights.
a. Advance the field of intellectual and developmental disabilities and promote AAIDD’s core values by publishing cutting-edge journals, books, webinars, and other products.
b. Increase access of providers, policy makers, and others—nationally and internationally—to evidence-based information and resources that promote effective practices.

3. Develop and support a diverse membership.
a. Engage students and early career professionals in the Association’s activities.
b. Provide educational opportunities that support members’ professional development.
c. Engage Fellows and other members in leadership activities.
d. Provide and promote leadership opportunities within the Association.
e. Engage prospective members from diverse communities.
f. Create a respectful, welcoming, and inclusive professional home for members.

4. Maintain the organization’s robust operations.
a. Develop and utilize effective communication, dissemination, and marketing strategies and platforms, including electronic platforms, for Association activities.
b. Provide a highly-valued package of member benefits.
c. Ensure appropriate resources to achieve organizational goals.
d. Review and improve organizational structures to support the Association’s membership and mission.
e. Develop and implement processes to support active communities within the Association that engage members in the goals of AAIDD.

Founded in 1876, AAIDD is the oldest and largest professional society concerned with intellectual and developmental disabilities. AAIDD is governed by a volunteer Board of Directors, elected by its membership. The work of the Association is performed by both paid staff and volunteers.

For its educational programs, volunteers serve on planning committees and present at in-person and online events. AAIDD's staff manage and support the logistics of conferences, webinars,

Volunteer roles include editing the Associations three pee

AAIDD's educational programming is highly regarded among professionals in the field, its journals are highly ranked, its books and assessment tools are in demand, and the diversity of its membership is increasing.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Community meetings/Town halls,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve,

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board,

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We act on the feedback we receive,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

AMERICAN ASSOCIATION ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

AMERICAN ASSOCIATION ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES

Board of directors
as of 7/13/2021
SOURCE: Self-reported by organization
Board chair

Ms. Elisa Velardo, MMHS

Connecticut DDS

Term: 2021 - 2022

Elisa Velardo, MMHS

State of Connecticut, DDS

Karrie Shogren, PhD

University of Kansas

Melissa DiSipio, MSA

Philadelphia Coordinated Health Care

Alexandra Bonardi, MS, MHA

Human Services Research Institute

Joyce Louden, PhD

Louisiana Department of Health

Amie Lulinski, PhD

The Arc of Illinois

Heather Williamson, DrPH, MBA

Northern Arizona University

Len Abbeduto, PhD

University of California Davis

Dalun "Dan" Zhang, PhD

Texas A&M University

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 07/13/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

Equity strategies

Last updated: 07/13/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.