AMERICAN ASSOCIATION ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES
Programs and results
What we aim to solve
AAIDD seeks to improve and enhance the knowledge, skills, and abilities of professionals of any discipline working for and with people with intellectual and developmental disabilities.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Publications
AAIDD publishes three peer-reviewed journals and a catalog of books and resources of interest to researchers, clincians, practioners, and policy makers in the field of intellectual and developmental disabilities.
Education
AAIDD provides in-person and online education and training of interest to professionals in the field of intellectual and developmental disabilities.
Assessment
AAIDD publishes and supports evidence-based assessment tools for people with intellectual and developmental disabilities. AAIDD's assessment tools are the Supports Intensity Scale - Adult Version (SIS-A), the Supports Intensity Scale - Children's Version (SIS-C), and the Diagnostic Adaptive Behavior Scale (DABS).
Public Policy
AAIDD supports progressive public policies that will achieve a goal of full inclusion by people with disabilities in society. AAIDD, both individually and in collaboration with other organizations, issues position statements, amicus briefs, and comments on proposed regulations, and contributes to the public dialogue on achieving the highest quality of life for people with intellectual and developmental disabilities.
Where we work
External reviews

Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of clients reporting increased knowledge after educational programs
This metric is no longer tracked.Totals By Year
Population(s) Served
Academics, Activists, Students
Related Program
Education
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Holding steady
Context Notes
AAIDD surveys attendees of in-person and online conferences and webinars following each event to collect self-reports of increased knowledge as a result of the educational event.
Number of research or policy analysis products developed, e.g., reports, briefs
This metric is no longer tracked.Totals By Year
Related Program
Public Policy
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Context Notes
AAIDD issues position statements and research briefs on issues that concern services and supports for people with intellectual and developmental disabilities.
Number of training events conducted
This metric is no longer tracked.Totals By Year
Related Program
Education
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Context Notes
AAIDD offers in-person and online conferences and webinars on research, practice, and policy in the field of intellectual and developmental disabilities.
Number of publications identifying sector best practices
This metric is no longer tracked.Totals By Year
Related Program
Publications
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Context Notes
Each year AAIDD publishes 18 individual issues among its three peer-reviewed scholarly journals. AAIDD publishes books and tools of interest to professionals in the field.
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
AAIDD’s goals are to:
1. Enhance the capacity of professionals who work with individuals with intellectual and developmental disabilities.
2. Promote the development of a society that fully includes individuals with intellectual and developmental disabilities.
3. Enhance the effective integration of research, practice, and policy.
4. Sustain an effective, responsive, and responsibly-governed organization.
What are the organization's key strategies for making this happen?
1. Advance progressive policies, sound research, and effective practices that result in social justice and universal human rights with and through collaborations with other organizations.
a. Engage in strategic alliances with other organizations to influence policy, promote public awareness, shape public attitudes, and expand the participation and access of people with intellectual disability in all aspects of life.
b. Increase awareness among policy makers and the general public on issues and policies that are important to people with developmental and intellectual disabilities and their families and within the context of their various intersectional identities.
c. Provide information and expertise on intellectual and developmental disabilities to jurists and others in the criminal justice system.
d. Generate review, revise, and disseminate essential position statements.
e. Lead efforts to expand and improve research, policy, and practice to improve the quality of life of people with intellectual and developmental disabilities.
2. Disseminate information on progressive policies, sound research, effective practices, and universal human rights.
a. Advance the field of intellectual and developmental disabilities and promote AAIDD’s core values by publishing cutting-edge journals, books, webinars, and other products.
b. Increase access of providers, policy makers, and others—nationally and internationally—to evidence-based information and resources that promote effective practices.
3. Develop and support a diverse membership.
a. Engage students and early career professionals in the Association’s activities.
b. Provide educational opportunities that support members’ professional development.
c. Engage Fellows and other members in leadership activities.
d. Provide and promote leadership opportunities within the Association.
e. Engage prospective members from diverse communities.
f. Create a respectful, welcoming, and inclusive professional home for members.
4. Maintain the organization’s robust operations.
a. Develop and utilize effective communication, dissemination, and marketing strategies and platforms, including electronic platforms, for Association activities.
b. Provide a highly-valued package of member benefits.
c. Ensure appropriate resources to achieve organizational goals.
d. Review and improve organizational structures to support the Association’s membership and mission.
e. Develop and implement processes to support active communities within the Association that engage members in the goals of AAIDD.
What are the organization's capabilities for doing this?
Founded in 1876, AAIDD is the oldest and largest professional society concerned with intellectual and developmental disabilities. AAIDD is governed by a volunteer Board of Directors, elected by its membership. The work of the Association is performed by both paid staff and volunteers.
For its educational programs, volunteers serve on planning committees and present at in-person and online events. AAIDD's staff manage and support the logistics of conferences, webinars,
Volunteer roles include editing the Associations three pee
What have they accomplished so far and what's next?
AAIDD's educational programming is highly regarded among professionals in the field, its journals are highly ranked, its books and assessment tools are in demand, and the diversity of its membership is increasing.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We act on the feedback we receive
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
AMERICAN ASSOCIATION ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES
Board of directorsas of 07/13/2021
Ms. Elisa Velardo, MMHS
Connecticut DDS
Term: 2021 - 2022
Elisa Velardo, MMHS
State of Connecticut, DDS
Karrie Shogren, PhD
University of Kansas
Melissa DiSipio, MSA
Philadelphia Coordinated Health Care
Alexandra Bonardi, MS, MHA
Human Services Research Institute
Joyce Louden, PhD
Louisiana Department of Health
Amie Lulinski, PhD
The Arc of Illinois
Heather Williamson, DrPH, MBA
Northern Arizona University
Len Abbeduto, PhD
University of California Davis
Dalun "Dan" Zhang, PhD
Texas A&M University
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Sexual orientation
No data
Disability
Equity strategies
Last updated: 07/13/2021GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.