Global Lyme Alliance, Inc.

Stamford, CT   |  www.globallymealliance.org

Mission

Global Lyme Alliance is dedicated to conquering Lyme and other tick-borne diseases through funding innovative research, offering effective education and awareness programs, supporting the needs of patients and caregivers, and advancing, through science and data, reliable diagnosis, treatment, prevention, and an eventual cure. Our vision is to improve the quality of life for individuals who suffer from Lyme and tick-borne diseases.

Ruling year info

1999

CEO

Mr. Scott Santarella

Main address

1290 East Main Street 3rd Floor

Stamford, CT 06902 USA

Show more contact info

Formerly known as

Time for Lyme

Greenwich Lyme Disease Task Force

Lyme Research Alliance, Inc.

EIN

06-1559393

NTEE code info

Specifically Named Diseases Research (H80)

Fund Raising and/or Fund Distribution (T12)

Specifically Named Diseases (G80)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Lyme disease is a public health crisis. There are an estimated 427,000 new cases of Lyme in the U.S. each year, with an estimated two million people suffering from post-treatment Lyme disease by the end of 2020. Compound this with the cases of all tick-borne disease, we have reached pandemic proportions. Even when diagnosed and treated early, up to 20% of patients remain ill. GLA is focused to find answers through science that will provide accurate diagnostics and effective treatment options.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Medical Research Grants

National grant-making program funds cutting-edge research into the prevention, diagnosis and treatment of Lyme disease.

Population(s) Served

Fund programs to create awareness and better educate the public about Lyme and other tick-borne diseases.

Population(s) Served

Where we work

Awards

Light a Fire 2008

Moffley Publications

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of participant families in camp program

This metric is no longer tracked.
Totals By Year
Related Program

Education and Awareness Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We conduct Lyme disease prevention educational/awareness programs at summer camps for children in 150 camps over 15 states in the US

Number of camps offered

This metric is no longer tracked.
Totals By Year
Related Program

Education and Awareness Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We have partnership with 150 summer camps that we offer educational training to their staff as well as their participants

Number of mentees being supported by Mentors

This metric is no longer tracked.
Totals By Year
Related Program

Education and Awareness Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We offer a peer-to-peer mentoring program for patients seeking counsel from peer patients

Number of mentors as part of our peer-to-peer mentoring program

This metric is no longer tracked.
Totals By Year
Related Program

Education and Awareness Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We engage with mentors to help provide peer-to-peer patient mentoring

Number of Ambassadors helping educate local communities

This metric is no longer tracked.
Totals By Year
Related Program

Education and Awareness Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We have an Ambassador program that helps GLA message it's mission and provide educational information to their local communities

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To advance the state of medical knowledge toward the goals of a reliable diagnostic tool for Lyme disease and an effective treatment for chronic Lyme disease.

Fund cutting-edge research into Lyme and other tick-borne diseases that result in publication in peer-reviewed journals.

Understanding of the knowledge needs in medical research into Lyme disease
Familiar with the work of each leading scientist and research center making advances to scientific understanding of tick borne diseases
Highly qualified scientific review board including a Nobel prize winner
Capability to raise significant funds through private donors, corporate support and high-profile events

Provided the majority of funding for the Lyme and Tick-Borne Diseases Research Center at Columbia University Medical Center in 2007.
Publication in 13 peer-reviewed journals since 2010.
Dr. Karen Newell-Rogers, a GLA-funded researcher has received pre-FDA clearance to enter clinical trials with the first-ever treatment for chronic Lyme disease, based on work funded by GLA.

Financials

Global Lyme Alliance, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Global Lyme Alliance, Inc.

Board of directors
as of 7/29/2020
SOURCE: Self-reported by organization
Board chair

Mr. Robert Kobre

Credit Suisse Securities (USA) LLC

Term: 2015 - 2018

Jennifer Frascella

Dana McAvity

Janet Vaccaro

Charles Balducci

Henry Dosch

Staci Grodin

Diane Blanchard

Julia Knox Comeau

Chris Corrinet

David Gerstner

Brett Kristoff

Robert Kobre

Lewis Leone

Bruce Leuchter

Steve Martin

Lorrie Nadel

Ed O'Connell

Karen Peetz

Paul Ross

Norma Russo

Debbie Siciliano

Janice Lipton

David Nolan

Peter Norley

Alexander Tisch

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No