Mission
Global Lyme Alliance is dedicated to conquering Lyme and other tick-borne diseases through funding innovative research, offering effective education and awareness programs, supporting the needs of patients and caregivers, and advancing, through science and data, reliable diagnosis, treatment, prevention, and an eventual cure. Our vision is to improve the quality of life for individuals who suffer from Lyme and tick-borne diseases.
Ruling year
1999
CEO
Mr. Scott Santarella
Main address
1290 East Main Street 3rd Floor
Stamford, CT 06902 USA
Formerly known as
Time for Lyme
Greenwich Lyme Disease Task Force
Lyme Research Alliance, Inc.
EIN
06-1559393
NTEE code
Specifically Named Diseases Research (H80)
Fund Raising and/or Fund Distribution (T12)
Specifically Named Diseases (G80)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
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Communication
Programs and results
What we aim to solve
Lyme disease is a public health crisis. There are an estimated 427,000 new cases of Lyme in the U.S. each year, with an estimated two million people suffering from post-treatment Lyme disease by the end of 2020. Compound this with the cases of all tick-borne disease, we have reached pandemic proportions. Even when diagnosed and treated early, up to 20% of patients remain ill. GLA is focused to find answers through science that will provide accurate diagnostics and effective treatment options.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Medical Research Grants
National grant-making program funds cutting-edge research into the prevention, diagnosis and treatment of Lyme disease.
Education and Awareness Programs
Fund programs to create awareness and better educate the public about Lyme and other tick-borne diseases.
Where we work
Awards
Light a Fire 2008
Moffley Publications
External reviews
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of participant families in camp program
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Education and Awareness Programs
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
We conduct Lyme disease prevention educational/awareness programs at summer camps for children in 150 camps over 15 states in the US
Number of camps offered
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults, Families
Related Program
Education and Awareness Programs
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
We have partnership with 150 summer camps that we offer educational training to their staff as well as their participants
Number of mentees being supported by Mentors
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Education and Awareness Programs
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
We offer a peer-to-peer mentoring program for patients seeking counsel from peer patients
Number of mentors as part of our peer-to-peer mentoring program
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Education and Awareness Programs
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
We engage with mentors to help provide peer-to-peer patient mentoring
Number of Ambassadors helping educate local communities
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Education and Awareness Programs
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
We have an Ambassador program that helps GLA message it's mission and provide educational information to their local communities
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
To advance the state of medical knowledge toward the goals of a reliable diagnostic tool for Lyme disease and an effective treatment for chronic Lyme disease.
What are the organization's key strategies for making this happen?
Fund cutting-edge research into Lyme and other tick-borne diseases that result in publication in peer-reviewed journals.
What are the organization's capabilities for doing this?
Understanding of the knowledge needs in medical research into Lyme disease
Familiar with the work of each leading scientist and research center making advances to scientific understanding of tick borne diseases
Highly qualified scientific review board including a Nobel prize winner
Capability to raise significant funds through private donors, corporate support and high-profile events
What have they accomplished so far and what's next?
Provided the majority of funding for the Lyme and Tick-Borne Diseases Research Center at Columbia University Medical Center in 2007.
Publication in 13 peer-reviewed journals since 2010.
Dr. Karen Newell-Rogers, a GLA-funded researcher has received pre-FDA clearance to enter clinical trials with the first-ever treatment for chronic Lyme disease, based on work funded by GLA.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Global Lyme Alliance, Inc.
Board of directorsas of 08/04/2022
Mr. Robert Kobre
Credit Suisse Securities (USA) LLC
Term: 2015 - 2018
Jennifer Frascella
Dana McAvity
Janet Vaccaro
Charles Balducci
Henry Dosch
Staci Grodin
Diane Blanchard
Julia Knox Comeau
Chris Corrinet
David Gerstner
Brett Kristoff
Robert Kobre
Lewis Leone
Bruce Leuchter
Steve Martin
Lorrie Nadel
Ed O'Connell
Karen Peetz
Paul Ross
Norma Russo
Debbie Siciliano
Janice Lipton
David Nolan
Peter Norley
Alexander Tisch
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
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