Childrens Leukemia Research Association Inc
Programs and results
What we aim to solve
Fundraising and increased donations. Since its inception in 1965, Children's Leukemia Research Association, formally known as Nation Leukemia Research Association, was founded by a skillful and successful philanthropist. In recent years a geographical move and illness created the need to search elsewhere for fundraising, thus the services of a telemarketing company were utilized. Although the company was able to produce considerable fundraising, the ratio of fundraising expenses to our mission was considerably out of balance and not in line with non-profit standards. An analysis was completed by a new Executive Manager, the telemarketing agreement was canceled, and, in the middle of 2018, a complete restructure, reorg and rebranding commenced. Still in transition, to date, we are developing new methods of fundraising and marketing.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Children's Leukemia Research Association
CLRA has been helping Americans for over 50 years. The Children’s Leukemia Research Association, Inc., formerly known as the National Leukemia Research Association, was founded in 1965 to support research efforts towards finding the causes and cure for Leukemia. In addition CLRA provides patients with co-pay financial assistance for treatment and medications.
Awarding Scientific Research Grants
CLRA has been helping Americans for over 50 years.
Under the direction of our Medical Advisory Committee, CLRA is committed to directing the funds of the Association to the most promising leukemia (BLOOD CANCER) research projects in the hopes of isolating the causes, finding a cure, and where funding is not duplicated from other sources.
Where we work
External reviews

Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Evaluation documents
Download evaluation reportsPatient Aid
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Related Program
Children's Leukemia Research Association
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Research Grants
This metric is no longer tracked.Totals By Year
Related Program
Children's Leukemia Research Association
Type of Metric
Input - describing resources we use
Direction of Success
Holding steady
Number of industry standards/practices developed by nonprofit
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Related Program
Children's Leukemia Research Association
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Context Notes
Implemented virtual and technical industry standard programs
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
To grow and exceed our 2 prong mission of financing research grants to find a cure and/or more effective treatments for Leukemia and assisting patients of all ages with treatment and pharmaceutical co-pay financial assistance.
What are the organization's key strategies for making this happen?
After the unforeseen circumstances of 2020, whatever strategies we planned or were planning did not come to fruition resulting in a gear shift of conducting business in a virtual manner. By the end of the year we met our financial goals regarding Research Grant Awards and Patient Aid while suffering quite a reduction in donations. In addition we invested in technologies improving administrative productivity enabling increased focus on fundraising, constituent and board engagement. A 2021 1Q strategic plan forthcoming.
What are the organization's capabilities for doing this?
In effort to keep costs at a minimum, the C.L.R.A staff is working in concert to reach as many individuals, businesses, hospitals, labor unions, religious organizations, local newspapers, social media and word of mouth to publicize our work. In addition, we attend networking events and are in the process of planning future fundraising events. Additionally, we have hired a professional grant writer in effort to reach major organizations. We have also increased board engagement.
What have they accomplished so far and what's next?
Strategic Plan 2021
Submitted by Angela Russo and Tara Coleman 1.26.2021
Q1 Plan Action
Enhance technology Implemented fully automated patient Aid Program/ look for additional virtual
methods of promoting CLRA
Build donor base All hands-on deck promoting CLRA through Face Book which, combined with board engagement will reach thousands of FB users
Cultivate current Constituents Stay in touch using tools we currently have and finding new virtual paths most
applicable to meet our specific needs as a small non-profit organization
Website update In process of repositioning pertinent information on landing page / updating
medical committee tab- substituting outdated information with recently received
revisions / entering most recent grant recipients to the list of grant awards.
Totally automated P/A application / claims replaced former manual procedure
Staff to attend Webinars To optimize knowledge of virtual development and fundraising
Determine best practices Follow standard non-profit models of appeals in a novel virtual environment,
which is now the new norm
Optimize board engagement Interim Zoom informative / brainstorming meetings
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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Who are the people you serve with your mission?
Scientific Researchers - Leukemia and all blood cancers by providing grant awards Leukemia/ blood cancer patients - Financial Patient Aid program
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How is your organization collecting feedback from the people you serve?
SMS text surveys, Electronic surveys (by email, tablet, etc.), Paper surveys, Focus groups or interviews (by phone or in person), Case management notes, Constituent (client or resident, etc.) advisory committees, Thank you letters,
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How is your organization using feedback from the people you serve?
To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,
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What significant change resulted from feedback?
Enhanced Social Media and implemented improved fund raising strategies.
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With whom is the organization sharing feedback?
The people we serve, Our staff, Our board, Our funders,
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How has asking for feedback from the people you serve changed your relationship?
N/A
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Which of the following feedback practices does your organization routinely carry out?
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback,
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Childrens Leukemia Research Association Inc
Board of directorsas of 02/22/2022
Mr. Anthony R Pasqua
Childrens' Leukemia Research Association
Term: 1998 -
Mr. Pasquale Alisia
Childrens' Leukemia Research Association
Term: 2020 -
John Digillio
Childrens' Leukemia Research Association
Hubert Gibbons
Childrens' Leukemia Research Association
Carol Hassett
Childrens' Leukemia Research Association
Pasquale Alisia
Childrens' Leukemia Research Association
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.
Leadership
No data
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
Equity strategies
Last updated: 10/14/2020GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.