Childrens Leukemia Research Association Inc

aka Childrens Leukemia Research Association Inc   |   GARDEN CITY, NY   |  www.childrensleukemia.org

Mission

CLRA has been helping Americans for over 50 years. Under the direction of our Medical Advisory Committee, CLRA is committed to directing the funds of the Association to the most promising leukemia (BLOOD CANCER) research projects in the hopes of isolating the causes, finding a cure, and where funding is not duplicated from other sources. Providing financial assistant to children and adults helps lessen the immense financial burden of treatment. Advances in treatment and the ability to continue treatment brings patients closer to remission. The CLRA is a not-for-profit 501(c)3 organization governed by a volunteer Bo The CLRA is a not-for-profit 501(c)3 organization governed by a volunteer Board of Directors. All our work is funded by voluntary donations from generous and caring Americans.

Notes from the nonprofit

As a small not-for-profit organization competing against major organizations who receive corporate/political huge sums of donation dollars, we do all possible to meet our funding goals and enhance donor base. Most importantly we actively build constituent, patient and researcher relationships adding a personalized and appreciative touch.

Ruling year info

1966

President

Mr. Anthony R Pasqua

Main address

585 STEWART AVENUE Suite 520

GARDEN CITY, NY 11530 USA

Show more contact info

Formerly known as

National Leukemia Research Association

EIN

11-2106778

NTEE code info

Fund Raising and/or Fund Distribution (G12)

Cancer Research (H30)

Cancer Research (H30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2020, 2019 and 2018.
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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Fundraising and increased donations. Since its inception in 1965, Children's Leukemia Research Association, formally known as Nation Leukemia Research Association, was founded by a skillful and successful philanthropist. In recent years a geographical move and illness created the need to search elsewhere for fundraising, thus the services of a telemarketing company were utilized. Although the company was able to produce considerable fundraising, the ratio of fundraising expenses to our mission was considerably out of balance and not in line with non-profit standards. An analysis was completed by a new Executive Manager, the telemarketing agreement was canceled, and, in the middle of 2018, a complete restructure, reorg and rebranding commenced. Still in transition, to date, we are developing new methods of fundraising and marketing.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Children's Leukemia Research Association

CLRA has been helping Americans for over 50 years. The Children’s Leukemia Research Association, Inc., formerly known as the National Leukemia Research Association, was founded in 1965 to support research efforts towards finding the causes and cure for Leukemia. In addition CLRA provides patients with co-pay financial assistance for treatment and medications.

Population(s) Served
People with diseases and illnesses
Families

CLRA has been helping Americans for over 50 years.
Under the direction of our Medical Advisory Committee, CLRA is committed to directing the funds of the Association to the most promising leukemia (BLOOD CANCER) research projects in the hopes of isolating the causes, finding a cure, and where funding is not duplicated from other sources.

Population(s) Served
Academics
Caregivers

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Patient Aid

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

Children's Leukemia Research Association

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Research Grants

This metric is no longer tracked.
Totals By Year
Related Program

Children's Leukemia Research Association

Type of Metric

Input - describing resources we use

Direction of Success

Holding steady

Number of industry standards/practices developed by nonprofit

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

Children's Leukemia Research Association

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context Notes

Implemented virtual and technical industry standard programs

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To grow and exceed our 2 prong mission of financing research grants to find a cure and/or more effective treatments for Leukemia and assisting patients of all ages with treatment and pharmaceutical co-pay financial assistance.

After the unforeseen circumstances of 2020, whatever strategies we planned or were planning did not come to fruition resulting in a gear shift of conducting business in a virtual manner. By the end of the year we met our financial goals regarding Research Grant Awards and Patient Aid while suffering quite a reduction in donations. In addition we invested in technologies improving administrative productivity enabling increased focus on fundraising, constituent and board engagement. A 2021 1Q strategic plan forthcoming.

In effort to keep costs at a minimum, the C.L.R.A staff is working in concert to reach as many individuals, businesses, hospitals, labor unions, religious organizations, local newspapers, social media and word of mouth to publicize our work. In addition, we attend networking events and are in the process of planning future fundraising events. Additionally, we have hired a professional grant writer in effort to reach major organizations. We have also increased board engagement.

Strategic Plan 2021

Submitted by Angela Russo and Tara Coleman 1.26.2021

Q1 Plan Action
Enhance technology Implemented fully automated patient Aid Program/ look for additional virtual
methods of promoting CLRA
Build donor base All hands-on deck promoting CLRA through Face Book which, combined with board engagement will reach thousands of FB users

Cultivate current Constituents Stay in touch using tools we currently have and finding new virtual paths most
applicable to meet our specific needs as a small non-profit organization
Website update In process of repositioning pertinent information on landing page / updating
medical committee tab- substituting outdated information with recently received
revisions / entering most recent grant recipients to the list of grant awards.
Totally automated P/A application / claims replaced former manual procedure
Staff to attend Webinars To optimize knowledge of virtual development and fundraising
Determine best practices Follow standard non-profit models of appeals in a novel virtual environment,
which is now the new norm
Optimize board engagement Interim Zoom informative / brainstorming meetings

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Scientific Researchers - Leukemia and all blood cancers by providing grant awards Leukemia/ blood cancer patients - Financial Patient Aid program

  • How is your organization collecting feedback from the people you serve?

    SMS text surveys, Electronic surveys (by email, tablet, etc.), Paper surveys, Focus groups or interviews (by phone or in person), Case management notes, Constituent (client or resident, etc.) advisory committees, Thank you letters,

  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    Enhanced Social Media and implemented improved fund raising strategies.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders,

  • How has asking for feedback from the people you serve changed your relationship?

    N/A

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

Childrens Leukemia Research Association Inc
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Childrens Leukemia Research Association Inc

Board of directors
as of 02/22/2022
SOURCE: Self-reported by organization
Board co-chair

Mr. Anthony R Pasqua

Childrens' Leukemia Research Association

Term: 1998 -


Board co-chair

Mr. Pasquale Alisia

Childrens' Leukemia Research Association

Term: 2020 -

John Digillio

Childrens' Leukemia Research Association

Hubert Gibbons

Childrens' Leukemia Research Association

Carol Hassett

Childrens' Leukemia Research Association

Pasquale Alisia

Childrens' Leukemia Research Association

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 12/13/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

No data

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 10/14/2020

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.