Health—General & Rehabilitative

THE NATIONAL ADRENAL DISEASES FOUNDATION INC

aka NADF

Lake Zurich, IL

Mission

The National Adrenal Diseases Foundation
informs, educates, and supports those with adrenal disease and their families
to improve their quality of life.

Ruling Year

1990

Executive Director

Ms. Lori Engler

President

Ms. Kalina Warren

Main Address

PO Box 566

Lake Zurich, IL 60047 USA

Formerly Known As

The National Addison's Diseases Foundation, Inc

Keywords

Adrenal Diseases; Addison's disease; Adrenal insufficiency;

EIN

11-2777036

 Number

7906572892

Cause Area (NTEE Code)

Single Organization Support (E11)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Programs + Results

What we aim to solve

To stop death from undiagnosed adrenal insufficiency (i.e. Addison’s disease). To improve life quality of those who suffer from adrenal disease. To promote the study of adrenal disease to improve treatment and find cures.

Our Sustainable Development Goals

Learn more about Sustainable Development Goals.

3

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Support Group Leader Network

Where we work

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

OUR MISSION ​The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life. ​OUR GOALS To stop death from undiagnosed adrenal insufficiency (i.e. Addison’s disease). To improve life quality of those who suffer from adrenal disease. To promote the study of adrenal disease to improve treatment and find cures.

​The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life. Our approach includes a number of actions in each of these categories: Education Awareness Research Support

NADF's website www.nadf.us provides the education, tools and resources needed for patients with adrenal diseases. Social Media presence on Twitter, Facebook, Instagram increased our reach to help those with adrenal disease, sharing important information, research and resources Run a volunteer Support Group Leader Network across the United States, facilitating meetings and events for members, friends and families with adrenal diseases. Manage and moderate our own virtual support group forum, through NADF/Inspire platform Provide direct access to Medical advisors who specialize in adrenal diseases for adults and children Issue a Quarterly Newsletter, specifically written to update the adrenal disease community with education, research, support and a medical Q&A Manage a patient advocacy service - allows patients, their family or friends to write to us to help newly diagnosed patients and those who just have a question about their condition Conduct research studies, including a research focused patient registry that will collect information about people with various forms of adrenal insufficiency. Our partnership with medical professionals to help improve awareness, ultimately saving lives.

Maintaining a pulse by conducting ongoing surveys allow NADF to determine how effective our communications channels are; how well we are reaching our audience, and what additional information are they seeking; Website usage indicators; Feedback from daily contacts with patients; Membership levels Actionable outcome of studies and research, allowing NADF to help improve treatments and care in the future Increase level of outreach with medical professionals via conferences and partnership programs with endocrinology associations

Created a new NADF website www.nadf.us; providing the education, tools and resources needed for patients with adrenal diseases; Increased the level of Social Media presence on Twitter, Facebook, Instagram to reach those with adrenal disease, sharing important information and resources ; Growing the Support Group Leader network across the United States, increasing our ability to connect with patients and their families, helping them cope with their condition; Improving participation of our own virtual support group forum, through NADF/Inspire platform; Created a strong Board of Directors and leadership team, with direct access to Medical advisors who specialize in adrenal diseases for adults and children; Enhanced NADF's Quarterly Newsletter, specifically written to update the adrenal disease community with education, research, support and a medical Q&A; Created an excellent patient support program, handled within 24 hours by an NADF expert, with direct access to our medical experts; Conducting meaningful research studies, including a research focused patient registry that will collect information about people with various forms of adrenal insufficiency. Increased the level of outreach to adrenal medical professionals via conferences and partnership programs with endocrinology associations.

External Reviews

Affiliations & Memberships

National Organization for Rare Disorders - Member 2005

Financials

THE NATIONAL ADRENAL DISEASES FOUNDATION INC

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Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2018, 2017 and 2016
  • A Pro report is also available for this organization.

See what's included

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

No

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

No

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

No

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

No

Organizational Demographics

In order to support nonprofits and gain valuable insight for the sector, GuideStar worked with D5—a five-year initiative to advance diversity, equity, and inclusion in philanthropy—in creating a questionnaire. This section is a voluntary questionnaire that empowers organizations to share information on the demographics of who works in and leads organizations. To protect the identity of individuals, we do not display sexual orientation or disability information for organizations with fewer than 15 staff. Any values displayed in this section are percentages of the total number of individuals in each category (e.g. 20% of all Board members for X organization are female).

SOURCE: Self-reported by organization

Gender

Sexual Orientation

This organization reports that it does not collect this information.

Disability

This organization reports that it does not collect this information.

Diversity Strategies

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We track retention of staff, board, and volunteers across demographic categories
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We track income levels of staff, senior staff, and board across demographic categories
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We track the age of staff, senior staff, and board
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We track the diversity of vendors (e.g., consultants, professional service firms)
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We have a diversity committee in place
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We have a diversity manager in place
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We have a diversity plan
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We use other methods to support diversity