THE NATIONAL ADRENAL DISEASES FOUNDATION INC

​The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life. Our approach includes a number of actions in each of these categories: Education Awareness Research Support

NADF's website www.nadf.us provides the education, tools and resources needed for patients with adrenal diseases. Social Media presence on Twitter, Facebook, Instagram increased our reach to help those with adrenal disease, sharing important information, research and resources Run a volunteer Support Group Leader Network across the United States, facilitating meetings and events for members, friends and families with adrenal diseases. Manage and moderate our own virtual support group forum, through NADF/Inspire platform Provide direct access to Medical advisors who specialize in adrenal diseases for adults and children Issue a Quarterly Newsletter, specifically written to update the adrenal disease community with education, research, support and a medical Q&A Manage a patient advocacy service - allows patients, their family or friends to write to us to help newly diagnosed patients and those who just have a question about their condition Conduct research studies, including a research focused patient registry that will collect information about people with various forms of adrenal insufficiency. Our partnership with medical professionals to help improve awareness, ultimately saving lives.

Maintaining a pulse by conducting ongoing surveys allow NADF to determine how effective our communications channels are; how well we are reaching our audience, and what additional information are they seeking; Website usage indicators; Feedback from daily contacts with patients; Membership levels Actionable outcome of studies and research, allowing NADF to help improve treatments and care in the future Increase level of outreach with medical professionals via conferences and partnership programs with endocrinology associations

Created a new NADF website www.nadf.us; providing the education, tools and resources needed for patients with adrenal diseases; Increased the level of Social Media presence on Twitter, Facebook, Instagram to reach those with adrenal disease, sharing important information and resources ; Growing the Support Group Leader network across the United States, increasing our ability to connect with patients and their families, helping them cope with their condition; Improving participation of our own virtual support group forum, through NADF/Inspire platform; Created a strong Board of Directors and leadership team, with direct access to Medical advisors who specialize in adrenal diseases for adults and children; Enhanced NADF's Quarterly Newsletter, specifically written to update the adrenal disease community with education, research, support and a medical Q&A; Created an excellent patient support program, handled within 24 hours by an NADF expert, with direct access to our medical experts; Conducting meaningful research studies, including a research focused patient registry that will collect information about people with various forms of adrenal insufficiency. Increased the level of outreach to adrenal medical professionals via conferences and partnership programs with endocrinology associations.