Health—General & Rehabilitative

THE NATIONAL ADRENAL DISEASES FOUNDATION INC

aka NADF   |   Lake Zurich, IL   |  http://www.nadf.us

Mission

The National Adrenal Diseases Foundation
informs, educates, and supports those with adrenal disease and their families
to improve their quality of life.

Ruling year info

1990

Executive Director

Ms. Lori Engler

President

Ms. Kalina Warren

Main address

PO Box 566

Lake Zurich, IL 60047 USA

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Formerly known as

The National Addison's Diseases Foundation, Inc

EIN

11-2777036

Cause area (NTEE code) info

Single Organization Support (E11)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

To stop death from undiagnosed adrenal insufficiency (i.e. Addison’s disease). To improve life quality of those who suffer from adrenal disease. To promote the study of adrenal disease to improve treatment and find cures.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Support Group Leader Network

The National Adrenal Diseases Foundation recruits and trains volunteers to become support group leaders across the US. Support group leaders facilitate meetings and events with adrenal disease patients and their families to help them cope with their condition, provide valuable information and help them through a new diagnosis.

Population(s) Served
People with diseases and illnesses

Where we work

Affiliations & memberships

National Organization for Rare Disorders - Member 2005

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Charting impact

SOURCE: Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

What is the organization aiming to accomplish?

OUR MISSION ​The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life. ​OUR GOALS To stop death from undiagnosed adrenal insufficiency (i.e. Addison’s disease). To improve life quality of those who suffer from adrenal disease. To promote the study of adrenal disease to improve treatment and find cures.

​The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life. Our approach includes a number of actions in each of these categories: Education Awareness Research Support

NADF's website www.nadf.us provides the education, tools and resources needed for patients with adrenal diseases. Social Media presence on Twitter, Facebook, Instagram increased our reach to help those with adrenal disease, sharing important information, research and resources Run a volunteer Support Group Leader Network across the United States, facilitating meetings and events for members, friends and families with adrenal diseases. Manage and moderate our own virtual support group forum, through NADF/Inspire platform Provide direct access to Medical advisors who specialize in adrenal diseases for adults and children Issue a Quarterly Newsletter, specifically written to update the adrenal disease community with education, research, support and a medical Q&A Manage a patient advocacy service - allows patients, their family or friends to write to us to help newly diagnosed patients and those who just have a question about their condition Conduct research studies, including a research focused patient registry that will collect information about people with various forms of adrenal insufficiency. Our partnership with medical professionals to help improve awareness, ultimately saving lives.

Maintaining a pulse by conducting ongoing surveys allow NADF to determine how effective our communications channels are; how well we are reaching our audience, and what additional information are they seeking; Website usage indicators; Feedback from daily contacts with patients; Membership levels Actionable outcome of studies and research, allowing NADF to help improve treatments and care in the future Increase level of outreach with medical professionals via conferences and partnership programs with endocrinology associations

Created a new NADF website www.nadf.us; providing the education, tools and resources needed for patients with adrenal diseases; Increased the level of Social Media presence on Twitter, Facebook, Instagram to reach those with adrenal disease, sharing important information and resources ; Growing the Support Group Leader network across the United States, increasing our ability to connect with patients and their families, helping them cope with their condition; Improving participation of our own virtual support group forum, through NADF/Inspire platform; Created a strong Board of Directors and leadership team, with direct access to Medical advisors who specialize in adrenal diseases for adults and children; Enhanced NADF's Quarterly Newsletter, specifically written to update the adrenal disease community with education, research, support and a medical Q&A; Created an excellent patient support program, handled within 24 hours by an NADF expert, with direct access to our medical experts; Conducting meaningful research studies, including a research focused patient registry that will collect information about people with various forms of adrenal insufficiency. Increased the level of outreach to adrenal medical professionals via conferences and partnership programs with endocrinology associations.

Financials

THE NATIONAL ADRENAL DISEASES FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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THE NATIONAL ADRENAL DISEASES FOUNDATION INC

Board of directors
as of 9/19/2020
SOURCE: Self-reported by organization
Board chair

Kalina Warren

Timothy Skodon

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Keywords

Adrenal Diseases; Addison's disease; Adrenal insufficiency;