Hermansky Pudlak Syndrome Network Inc

Oyster Bay, NY   |  http://WWW.HPSNETWORK.ORG

Mission

THE HERMANSKY-PUDLAK SYNDROME (HPS) NETWORK'S MISSION IS TO PROVIDE ADVOCACY, FELLOWSHIP, EDUCATION AND HOPE TO INDIVIDUALS AND FAMILIES AFFECTED BY HPS. WE FUND AND FACILITATE RESEARCH. WE DEVELOPE AND PRODUCE MATERIAL AND RESOURSES FOR HEALTHCARE.

Ruling year info

1998

Principal Officer

DONNA APPELL

Main address

1 South Rd

Oyster Bay, NY 11771 United States

EIN

11-3283268

NTEE code info

Human Service Organizations (P20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: IRS Form 990

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Program 1

COMPILES PATIENT DATA TO ASSIST IN RESEARCH, RUNS CONFERENCES TO COLLECT AND PROVIDE DISEASE INFORMATION AND PROVIDES INFORMATION AND SUPPORT TO AFFECTED FAMILIES.

Expenses
$432,705
Revenue
$0

Where we work

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Financials

Hermansky Pudlak Syndrome Network Inc
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Operations

The people, governance practices, and partners that make the organization tick.

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This organization has no recorded board members.