ALS Ride For Life

Patients on the Move to a Cure

aka ALS RIDE FOR LIFE   |   STONY BROOK, NY   |  www.ALSRideForLife.org

Mission

Ride For Life was founded in 1997 and incorporated as a tax-exempt charity according to IRS regulations in 1999. Under the articles of incorporation, our charity has the mission to serve the ALS community. As a patient driven, volunteer organization, its mission is to: Raise research funds to find a cure for Amyotrophic Lateral Sclerosis (ALS) Support patients and their families through patient services Raise public awareness Provide the community with the latest ALS news, information, and inspiration During ALS Awareness Month in May, the charity conducts the annual Rife For Life, a major patient advocacy event. Over many days, patients in electric wheelchairs or scooters, journey a lengthy route spreading awareness, information and raising funds.

Ruling year info

1999

President

Christopher Pendergast

Main address

C/O SB UNIV SSW HSC L2 NO 106

STONY BROOK, NY 11794-8231 USA

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EIN

11-3479051

NTEE code info

Fund Raising and/or Fund Distribution (E12)

Fund Raising and/or Fund Distribution (P12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Care For Life Grant

This program is funded through the efforts of other patients their family and friends who volunteer with ALS Ride For Life. It is designed to help fellow PALS in need of care-giving assistance. Only individuals with a confirmed medical diagnosis of ALS and who do not have healthcare coverage for respite care are eligible for this grant. An applicant will only receive one grant in the amount of $2500. Reimbursement will only be given upon invoice from a licensed health care provider. This grant cannot be used for familial care reimbursement.

Population(s) Served
Caregivers
People with diseases and illnesses

Where we work

Financials

ALS Ride For Life
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Operations

The people, governance practices, and partners that make the organization tick.

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ALS Ride For Life

Board of directors
as of 11/16/2020
SOURCE: Self-reported by organization
Board chair

Raymond Manzoni

Manzoni Real Estate