PLATINUM2022

ASTHMA A ALLERGY FOUNDATION OF AMERICA NATIONAL

aka Kids With Food Allergies   |   Arlington, VA   |  www.aafa.org

Mission

AAFA is dedicated to saving lives and reducing the burden of disease for people with asthma and allergies through support, advocacy, education and research.

Ruling year info

1954

President and CEO

Kenneth Mendez

Main address

1235 S Clark St Suite 305

Arlington, VA 22202 USA

Show more contact info

EIN

13-1691693

NTEE code info

Allergy Related Diseases (G60)

Alliance/Advocacy Organizations (E01)

Health - General and Rehabilitative N.E.C. (E99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

AAFA is dedicated to improving the quality of life for people with asthma and allergic diseases through education, advocacy and research.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient and Family Online Community

The Asthma and Allergy Foundation of America (AAFA) provides education and support to patients and caregivers managing asthma and related conditions through two online patient communities, which are hosted on dedicated platforms that are integrated with our websites. The AAFA community, and one of the proposed services in this request, is one of the most active online health communities for people managing asthma, eczema, environmental allergy, urticaria, and nasal polyps. Additionally, AAFA administers a separate community through our Kids With Food Allergies (KFA) division, a pioneer of online communities. Our two online communities aim to help patients navigate these conditions throughout their disease journey.

Population(s) Served

ASTHMA (Asthma Symptoms, Treatment, Health Management and Activities™) Care for Adults is a FREE self-paced course that helps adults and their caregivers learn how to manage asthma. It covers asthma basics, recognizing symptoms and triggers, asthma action plans and an overview of different types of asthma medicines. The information is presented in a variety of formats, including videos, handouts, animations and more.

Population(s) Served
Adults
Caregivers

AAFA's Support Center provides personalized and timely support in navigating a variety of healthcare needs. It consists of a group of services through which we address inbound requests from patients, caregivers, family members, and the public. The Support Center is comprised of a hotline and a fulfillment center.

Our hotline and call/email center offer guidance, education, and referrals to additional community resources to patients, their caregivers, and the public 5 days a week for 8 hours each day. Patients and families can reach us through our 1800 number or [email protected]/[email protected] email accounts.

Through our fulfillment services, we send customized educational packets for patients, family members, and the public at no charge. These packets include relevant content and are sent to patients and/or caregivers or health care providers upon request by phone, email, or through our free online “storefront.”

Population(s) Served

AAFA's new Health Equity Advancement and Leadership (HEAL) program to address findings from our 2020 Asthma Disparities in America report. HEAL encompasses and aligns all of our work to reduce health disparities and promote health equity. The program aims to build and support effective, comprehensive, community-based interventions for asthma. The program targets populations where we can make the biggest difference: 1) Adults and adolescents (unmet need), 2) Racial/ethnic minority populations (higher risk), and 3) Socioeconomically disadvantaged populations (higher risk).

Population(s) Served
People with diseases and illnesses
People with diseases and illnesses
People with diseases and illnesses

The AME-O course is based on the NAEPP’s “Four Components of Asthma Management” as presented in the National Institute of Health (NIH), National Asthma Education and Prevention Program (NAEPP)’s Expert Panel Report 3 (EPR-3): Guidelines for the Diagnosis and Management of Asthma Summary Report and the 2020 Focused Updates to the guidelines.

The course has 10 lessons and four exams that you complete at your own pace. Respiratory therapists and nurses can earn 8.75 contact hours from the American Association for Respiratory Care (AARC) and the American Nurses Credentialing Center’s Commission on Accreditation (ANCC).

Population(s) Served

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of affiliates speaking to government leaders about relevant policy issues

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with diseases and illnesses

Related Program

Patient and Family Online Community

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Hired staff director to lead advocacy efforts. Hosted Hill visits by Board members, community members, and staff.

Number of participants counseled

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with diseases and illnesses

Related Program

Patient and Family Online Community

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Over 250,000 people involved through Facebook and 46,000 people involved in our online community, accessing our education and resources.

Increase in number of persons participating in our online community to get education and support.

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with diseases and illnesses

Related Program

Patient and Family Online Community

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Over 250,000 people involved through Facebook and 46,000 people involved in our online community, accessing our education and resources.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Dramatically reduce the impact of asthma and allergies.
Grow the AAFA community.
Strengthen the AAFA team

Develop and retain a high performing, inclusive, and diverse workforce
Promote diversity, equity, and inclusion internally and externally
Expand organizational capacity by positioning AAFA as an employer of choice
Better utilize volunteers to support the AAFA mission and the AAFA team

Improve (online/offline) community outreach and support to individuals/groups at higher risk of poor health outcomes
Expand support for regional AAFA Chapters, local affiliated support groups, ambassadors, and community health programs to establish community-based partnerships
Combat health misinformation to position AAFA and KFA as the leading trusted resources for our communities

Use and expand AAFA’s HEAL program to address health equity
Expand education portfolio to advance evidence-based care and self-management in populations at highest risk of morbidity or mortality
Build AAFA's current advocacy operations to lead on targeted national and state- based policies that prioritize health equity, climate change, and food allergy labeling

Education - AAFA offers many educational programs and tools, such as:

Programs for all ages
Programs for caregivers and healthcare providers
Printed materials and tools
Online resources
Newsletters and magazines
Resources and tools in Spanish
Centers for Disease Control and Prevention Validation

Look for a ribbon next to some of our health education programs. This means the Centers for Disease Control and Prevention has validated it as an effective educational tool.

National Health Council Standards of Excellence Certification - AAFA is certified by the National Health Council's Standards of Excellence Certification. This is given to reliable patient groups that practice high standards of accountability and ethics.

HONcode Certification - AAFA is certified by the Health on the Net Foundation. Websites receive HONcode certification for information that is ethical and trustworthy.

Advocacy - At AAFA, we want to be the voice for people with asthma and allergies. We work with the government to create laws that improve and protect quality of life. We support policies that include:

Clinical diagnosis, treatment and management
Outdoor and indoor air quality
Healthy settings in homes, schools and communities

Research - AAFA is the only patient group that awards research grants for the study of asthma and allergies. Our grants support research for:

Understanding the diseases
Developing better treatments
Finding cures
Advanced training
Social research
Support

Managing allergies and asthma can be tough on your own. We offer support through:

Regional chapters
Local AAFA support groups
Online communities, such as Kids With Food Allergies
Funding

AAFA is a not-for-profit charity. We are able to offer our services thanks to:

Donations
Fundraising
Sponsors
Public education programs

We have accomplished many achievements in expanding research, advocacy and education to make more people aware of asthma and allergies in an effort to help those with it, their families, care givers and medical professionals. Our community has grown across all of our social platforms, and so has the engagement. We have raised awareness of healthcare disparities and are bringing a new focus on health equity into our next strategic plan.

Financials

ASTHMA A ALLERGY FOUNDATION OF AMERICA NATIONAL
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

ASTHMA A ALLERGY FOUNDATION OF AMERICA NATIONAL

Board of directors
as of 12/02/2022
SOURCE: Self-reported by organization
Board chair

Dr. Richard Murray

Spire Health

James Flood

Mary Ellen Conley

Phyllis Arthur

Mitchell Grayson

Chris Ward

Calvin Anderson

Prue Fitzpatrick

Richard Murray

Ritesh Patel

Lawrence Schwartz

Lynn Hanessian

Ranuka Brown

Katherine Lai

Sarbjit Saini

Jodi Daniel

Alex Buzby

Evalyn Grant

Jake Heller

James Dockery

Jerry Shier

Julie Jones

Kelli Cross

Mahlis Emmanuel

Meighan Girgus

Monica Randall

Peter Loupos

Shade Farri

Heidi Bayer

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 12/2/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Asian/Asian American
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Decline to state

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

No data