March of Dimes Inc. HQ
HEALTHY MOMS. STRONG BABIES.
Programs and results
What we aim to solve
In the United States, nearly 4 million babies are born every year, and each one benefits from March of Dimes’ research, vaccines, education, advocacy and breakthroughs—whether they’re born healthy, preterm, with a birth defect or other health complications. Each year in the United States: • More than 2.2. million women live in a maternity care desert. 1 in 10 babies is born preterm. • Two babies die every hour. • 1 in 33 babies has a birth defect. • The medical and societal cost of preterm birth is $25.2 billion. While preterm birth affects women across the country, preterm birth rates remain much higher for Black, American Indian, Alaskan Native and Hispanic women. Women of color are up to 50 percent more likely to give birth preterm and their children can face a 130 percent higher infant death rate. Black women are three times more likely to die from pregnancy compared to White women.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Research
We invest in translational and actionable science that turns observations from the laboratory, clinic and communities into interventions, drugs and devices that improve the health of families. Our research grants support actionable science focused on early stages of pregnancy and neonatal development, preterm birth causes and interventions, and diagnostics and therapeutics for pregnancy and infant health.
To reach our goal of solving the mystery of preterm birth, March of Dimes set about building the infrastructure to facilitate the dynamic environment of transdisciplinary research demands. One of the first of its kind across the scientific community, this infrastructure is comprised of existing centers of excellence in their own right, which when integrated with others, enables collaboration and discovery on a large scale. Our five Prematurity Research Centers (PRCs) located in hospitals, medical centers and universities across the U.S. and London are advancing this critical research
Community Support Programs
March of Dimes chapters across the country have focused their attention on improving women’s access to preconception, prenatal and interconception education, enhanced prenatal care and risk-reduction services. These programs include:
Supportive Pregnancy Care®, a group prenatal care program to improve care delivery, increase social support and reduce risk of preterm birth.
• Becoming a mom/Comenzando bien, a prenatal curriculum designed for pregnant people in a group setting in English or Spanish.
• Coming of the Blessing encourages Native communities to include traditional beliefs and lessons into their prenatal practices.
• Stork's Nest is a collaboration with Zeta Phi Beta Sorority, Inc., to bring prenatal education and group support to low-income pregnant people and offers incentives (such as diapers and infant clothing) for attending prenatal care appointments, prenatal education classes and adopting healthy behaviors during pregnancy.
NICU Family Support®
March of Dimes is a national leader in promoting family-centered care in neonatal intensive care units (NICUs) through implementation of its NICU Family Support® program, which began in 2001. The program offers information & comfort to families experiencing the hospitalization of their baby & provides training for NICU staff. It operates in 68 hospitals in the U.S. to serve more than 50,000 families annually. In 2018, March of Dimes released the My NICU Baby App® that provides families with information while in the NICU and during their transition home.
These activities included parent-to-parent support, print & online education for families & innovative programs for parents, siblings and grandparents—all with the purpose of providing comfort, information and critical health care messages to families in crisis. The program provided professional development trainings and resources for neonatologists, nurses & other clinicians to promote implementation of best practices in family Care.
Education for Health Care Professionals
March of Dimes offers a range of educational opportunities for health professionals, some of which offer continuing education credits. Key pieces of our professional education effort include: nursing education; information for professionals on preterm birth and prematurity prevention; genetics education; and medical resources.
We also offer Implicit Bias Training to educate health care professionals on the impact systemic racism has on birth outcomes and maternal mortality and the critical role they play to lessen the effects of bias, particularly for families of color.
Research and Medical Support
March of Dimes is a worldwide leader in the area of preterm birth. No other organization or institution has our track record of working to eliminate preterm birth on so many fronts—through research, education, community programs and advocacy.
We invest in translational and actionable science that turns observations from the laboratory, clinic and communities into interventions, drugs and devices that improve the health of moms and babies. Our research grants support actionable science focused on early stages of pregnancy and neonatal development, preterm birth causes and interventions, and diagnostics and therapeutics for pregnancy and infant health.
Advocacy
At the federal level & in each state, the District of Columbia and Puerto Rico, March of Dimes staff & volunteers work to influence both legislative & regulatory activities, serving as voices for the needs of moms, babies and families. Key priorities include: access to quality & affordable health care for all women, children & families; research & surveillance impacting the health of moms and infants; prevention and education; and issues important to tax-exempt organizations.
For families everywhere, we advocated on behalf of, against or monitored more than 150 state legislative bills throughout 2020 to improve health equity for all moms and babies and ensure that every family is healthy. A highlight is March of Dimes Georgia celebrating the passage of HB 1114, which extends postpartum Medicaid coverage from 60 days to 6 months. About a dozen additional states proposed Medicaid waivers, financial estimates or other initiatives designed to extend coverage during the postpartum period.
COVID-19 Response
March of Dimes continued to support moms, babies and families during the COVID-19 pandemic. They created educational and support resources to prepare women for childbirth and families to care for a newborn during this challenging time. The organization called on government to fund initiatives and adopt policies to protect families and front-line responders. They also brought together world-renowned experts to convene and discuss the most critical strategies to protect moms and babies. As a response to restrictions on gathering and to keep their supporters safe, March of Dimes virtualized their critical mission programs and events.
Funds
To address the global pandemic of 2020, March of Dimes established the Mom and Baby COVID-19 Intervention and Support Fund to address the urgent need for research, advocacy, education, resources and support to protect moms, babies and families from COVID-19 and the unknown future effects of the virus. The organization also created the March of Dimes Innovation Fund, a venture philanthropy initiative to accelerate the development of diagnostics and therapeutics that can solve the world’s most pressing maternal and infant health challenges.
Where we work
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Women & Families Provided Education Resources
This metric is no longer tracked.Totals By Year
Population(s) Served
Families, Parents
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
This total includes 8.5+ MM visitors to marchofdimes.org, 5.6+ MM visitors to nacersano.org, 575MM impressions from bilingual Twitter chats and 3.9+ MM views of health education videos on YouTube.
Federal, State and Territorial Advocacy Victories.
This metric is no longer tracked.Totals By Year
Population(s) Served
Infants and toddlers, Families
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
March of Dimes advocates for key legislative and regulatory policies to improve the health of moms and babies. Due to the COVID-19 pandemic, our advocacy victories were significantly lower.
The Number of Families Provided Education and Support through NICU Initiatives
This metric is no longer tracked.Totals By Year
Population(s) Served
Infants and toddlers, Families
Related Program
NICU Family Support®
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Our Newborn Intensive Care Unit (NICU) Family Support Program provides tools, resources and comfort to families with a baby in the NICU.
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
We imagine a world where every mom and baby is healthy regardless of wealth, race, gender or geography..
What are the organization's key strategies for making this happen?
March of Dimes leads the fight for the health of every mom and baby. Our organization does this by:
Supporting research to find solutions so every family gets the best possible start.
Advocating for policies that prioritize the health of moms and babies.
Providing resources and programs to help moms throughout their pregnancies.
Educating health professionals to improve mom and baby care.
Uniting local communities across the nation through events and collaboratives.
Partnering with organizations and companies committed to helping moms and their families.
What are the organization's capabilities for doing this?
We’re leading the way with research and programs that promote healthy pregnancies for all pregnant people. Through community service, advocacy, research, education and support, we’re supporting moms, babies and families across the country and in your community.
Today we lead with digital first, a strong resolve to constantly improve access to health and information for all women and babies and a strong internal and external team that's nimble and ready. We have the tools and resources we need in place, and the will to carry our legacy forward to empower everyone who supports our mission. Our researchers are leading the studies that will provide conclusions that benefit women and families far beyond our lifetime.
What have they accomplished so far and what's next?
For over 80 years, March of Dimes has saved millions of babies and children from death and disability through our lifesaving research and innovative programs, as well as the work of dedicated volunteers. The organization was founded by President Franklin D. Roosevelt in 1938, as theNational Foundation for Infantile Paralysis, to combat polio. Within 17 years, the Salk vaccine was discovered and polio was defeated.
Its original mission accomplished, the foundation turned its focus to preventing birth defects and infant mortality. March of Dimes has led the way to discover the genetic causes of birth defects, to promote newborn screening, and to educate medical professionals and the public about best practices for healthy pregnancy. We have supported research for surfactant therapy to treat respiratory distress and helped initiate the system of regional neonatal intensive care for premature and sick babies. Our Folic Acid Campaign achieved a dramatic reduction in the incidence of neural tube defects, birth defects of the brain and spine.
In 2005, as preterm birth emerged as the leading cause of death for children worldwide,research and prevention of preterm birth became the organization's primary focus. Our fight to save babies has been strongly characterized by our Prematurity Campaign. The rising incidence of preterm birth has demanded action, and March of Dimes has responded by initiating an intensive, multi-year campaign to raise awareness and find the causes of prematurity.
Weve always been there to end preventable preterm birth, but our work doesnt end there. Today March of Dimes works with supporters, donors and partners to help all families be healthy and strong, end preventable preterm birth and maternal and infant death, and close the health equity gap. We support research, lead programs and provide education and advocacy so that every family can have the best possible start.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
It is difficult to find the ongoing funding to support feedback collection
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
March of Dimes Inc.
Board of directorsas of 02/21/2024
Sharon Mills Higgins
William A Fitzgerald
Vice Chair
Douglas D Hawthorne
Vice Chair
Muhammad Shahzad
Treasurer
Sue Schick
Secretary
Judy L Aschner
Trustee
Juan Salgado-Morales
Trustee
Tonya Lewis Lee
Trustee
Amy L Casseri
Trustee
Everett B Ward
Trustee
Judette Louis
Trustee
Ellen Stang
Trustee
Jay S Greenspan
Trustee
Phyllis A Dennery
Trustee
Brian Thompson
Trustee
Andrew J Dahle
Trustee
Ellen Kelsay
Trustee
Austin Pittman
Trustee
Tim Spilker
Trustee
Sandy Torchia
Trustee
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
No data
Transgender Identity
No data
Sexual orientation
No data
Disability
No data
Equity strategies
Last updated: 02/20/2024GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We review compensation data across the organization (and by staff levels) to identify disparities by race.
- We ask team members to identify racial disparities in their programs and / or portfolios.
- We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We disaggregate data by demographics, including race, in every policy and program measured.
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We use a vetting process to identify vendors and partners that share our commitment to race equity.
- We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.