Disease, Disorders, Medical Disciplines

Parkinson's Foundation, Inc.

Better Lives. Together.

New York, NY

Mission

The Parkinson's Foundation makes life better for people with Parkinson's disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience, and passion of our global Parkinson's community.

Notes from the Nonprofit

The Parkinson's Foundation was formed by the merger of the National Parkinson Foundation (NPF) and the Parkinson's Disease Foundation (PDF), both established in 1957, with offices in New York and Miami. Connect with us today. We are here to help. Miami Office: 200 SE 1st Street Suite 800 Miami, FL 33131 New York Office: 1359 Broadway Suite 1509 New York, NY 10018 Contact our toll-free Helpline at 1-800-4PD-INFO (473-4636) or helpline@parkinson.org. Local chapter information can be found at: https://www.parkinson.org/get-involved/local-resources

Ruling Year

1959

CEO

Mr. John L. Lehr

Main Address

1359 Broadway Suite 1509

New York, NY 10018 USA

Keywords

Parkinson's Disease, Care, Research, Education

EIN

13-1866796

 Number

4348932999

Cause Area (NTEE Code)

Neurology, Neuroscience (G96)

Neurology, Neuroscience (H96)

Health Support Services (E60)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Programs + Results

What we aim to solve

More than one million Americans are living with Parkinson's disease (PD), 60,000 more are diagnosed annually, and 7,000 people with Parkinson's die prematurely every year in the U.S. because of inadequate medical care. People with Parkinson's can live decades with the disease. That is why the Parkinson's Foundation is accelerating our funding for research that will ultimately find the cause of Parkinson's and develop methods to treat and manage it.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Ensuring Better Care for Everyone

Understanding Parkinson’s through Research

Educating and Empowering the Parkinson’s Community

Where we work

Our Results

How does this organization measure their results? It's a hard question but an important one. These quantitative program results are self-reported by the organization, illustrating their committment to transparency, learning, and interest in helping the whole sector learn and grow.

SOURCE: Self-reported by organization

Total dollar amount of grants awarded

TOTALS BY YEAR
Population(s) served

No target populations selected

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context notes

$340,000,000 invested in Parkinson's research and care since 1957

Number of volunteers

TOTALS BY YEAR
Population(s) served

General/Unspecified

Related program

Educating and Empowering the Parkinson’s Community

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of overall donors

TOTALS BY YEAR
Population(s) served

General/Unspecified

Related program

Ensuring Better Care for Everyone

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of clients served

TOTALS BY YEAR
Population(s) served

General/Unspecified

Related program

Ensuring Better Care for Everyone

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context notes

Centers of Excellence patients, Moving Day participants, Parkinson's Outcomes Project participants, Professional Education trainees, researchers funded, digital outreach via email and website.

Number of unique website visitors

TOTALS BY YEAR
Population(s) served

General/Unspecified

Related program

Educating and Empowering the Parkinson’s Community

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context notes

4.1 million visited Parkinson.org, the go-to Parkinson's resource, in 2019

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

The Parkinson's Foundation makes life better for people with PD by improving standards of care and advancing research toward a cure. We are rallying researchers, physicians, clinicians, therapists, people with Parkinson's and their families in support of the entire Parkinson's community.

Foundation-supported scientists are working aggressively to identify the underlying mechanisms of the disease—a critical initial step to developing new therapies and treatments. Only by knowing how PD works within the brain and throughout the body can we develop new drugs that prevent, stop or ultimately cure the disease.

For those currently struggling with Parkinson's, it is imperative that we make progress today. The Parkinson's Foundation is the leader in ensuring better medical care; educating and empowering the Parkinson's community; and driving the understanding of Parkinson's through research. These guiding pillars of our work will allow us to take a chronic, degenerative disease and give people hope of independence and quality of life.

As a national organization with a local presence and impact, the Parkinson's Foundation brings help and hope to the estimated one million individuals in the United States, 10 million worldwide, who are living with Parkinson's.

Ensuring Better Care for Everyone
• The Parkinson's Foundation sets standards for expert Parkinson's care through its global network of 42 Centers of Excellence.
• The Foundation improves the quality of life for people with PD by tracking the care that they receive at its centers. Nearly 10,000 patients are enrolled in the Parkinson's Outcomes Project, the largest clinical study of PD. According to the Foundation's study, regular Parkinson's treatment from a neurologist could save thousands of lives each year.
• The Foundation is working to close the gap in Parkinson's professional training by educating nurses, physical therapists, occupational therapists, speech language therapists and social workers so they can provide better care.

Educating and Empowering the Parkinson's Community
• The Parkinson's Foundation educates and empowers people with PD through its national network of staff and volunteers. The foundation was the first organization to form a Parkinson's advisory council and the first to train people with PD to partner with scientists on research.
• The Parkinson's Foundation helps people live well with PD by providing free resources including: educational books, webinars, podcasts, a life-saving hospitalization kit, and the toll-free Helpline, staffed by Parkinson's specialists who answer nearly 30,000 calls annually.
• The Parkinson's Foundation brings local communities together through Moving Day®, A Walk for Parkinson's, a national grassroots event that has raised $14 million to support Parkinson's research and local wellness programs across the country.

Understanding Parkinson's through Research
• The Parkinson's Foundation invests more than $10 million annually in promising scientists who are on a mission to understand the basic mechanisms of Parkinson's that are critical to developing new treatments and medications.
• The Parkinson's Foundation recruits the most talented minds in Parkinson's research by supporting early career scientists in neurology who might choose other fields of study.
• The Parkinson's Foundation identifies and addresses the unmet needs of people with PD by driving cutting-edge research on a wide range of patient-driven topics.

The challenges of living with Parkinson's disease, improving care and finding a cure can seem overwhelming. No individual or group can go it alone.

We are the Parkinson's Foundation. A community. An alliance. A movement. Where people living with Parkinson's, families, caregivers, scientists, advocates, donors and volunteers join forces to improve lives and advance toward a cure

Parkinson's Foundation investments have played a part in many of the major scientific advances of the past 60 years, improving lives worldwide. Yet there are 10 million people living with Parkinson's disease who urgently need better treatments and care. We mark our anniversary by reflecting on key successes and recommitting ourselves to creating a world without Parkinson's disease.

For over half a century, we've made tangible progress on all fronts, from the largest clinical study of Parkinson's ever, which has significantly improved care, to breakthrough treatments. Today, we continue to:

-Provide life-changing support to people living with Parkinson's and their caregivers
-Fund game-changing research on treatment and care
-Convene the best minds from every corner of the global Parkinson's community to find new approaches that enhance care and move us closer to a cure.

Everything we do is based on experience and informed by facts. The people we serve deserve nothing less than the highest level of support based on validated research and deep encouragement grounded in reality. Our donors and volunteers need to know that we are 100% accountable. This is why we focus on verifiable outcomes, not vague promises.

In partnership with the entire Parkinson's community, we are making a real difference in people's lives. And we have the research, the data – and the stories – to prove it. This is what happens when we all pull together as one global, determined and inspired movement. Better Lives. Together.

External Reviews

Photos

Financials

Parkinson's Foundation, Inc.

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Operations

The people, governance practices, and partners that make the organization tick.

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FREE: Gain immediate access to the following:

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  • Forms 990 for 2018, 2017 and 2016
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Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Yes