CHILDRENS MEDICAL RESEARCH FOUNDATION INC

Every sick child deserves every chance

aka CMRF   |   New York, NY   |  www.cmrf-usa.org

Mission

Saving lives through research, child care, and family support.

Ruling year info

1979

Chairman

Mr. Alan T Ennis

Main address

1501 Broadway Suite 1808

New York, NY 10036 USA

Show more contact info

EIN

13-2984859

NTEE code info

Medical Specialty Research (H90)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The sickest children need better outcomes, better treatments, better cures and quicker diagnoses. Research offers patients facing life threatening, life-limiting conditions the hope they need to get through difficult days. The Children's Medical & Research Foundation seeks to enhance the ability of pediatric clinicians in Ireland and around the world to transform the health and well-being of these children and young people, giving them the chance to fulfill their potential.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Clinical Research Fellowship

Discovering the pioneers and research breakthroughs of the future is about supporting and encouraging through education. The Clinical Research Fellowship has been supported by CMRF Inc since 2015.

This is a core part of the National Children's Research Centre (NCRC) infrastructural support for research in Ireland. Initiated in 2010 it is designed to meet a need for a greater number of research-trained clinicians, nurses and allied health professionals working in pediatrics and encourages young clinicians to adopt research as a core clinical activity. Since its inception at the NCRC there have been 35 graduates and incredible research programmes have been delivered.

The principal is to nurture and develop a culture of pediatric research, in an environment where historically research has been the "exception” rather than the "rule” for many clinical staff.
The Clinical Research Fellowship is aimed at medical doctors, nurses and allied health professionals working in pediatrics. It is designed to offer a range of options to encourage research across a spectrum of clinical activities. These awards aim to inculcate and foster research as part of clinical practice, and to ensure that research is directly relevant to the sick child.
The overall project has provided funding for the projects of Sinead O’Donnell (Emergency Medicine), Charlene Foley (Rheumatology), John Nolan (Oncology) and Colin Hawkes (Growth deficiencies) at the Children’s Hospital of Philadelphia to name but four during that time.

Access to the programme is through a competitive process, and all of the projects are subject to independent international Peer Review, the gold standard in the industry. A Scientific Advisory Committee, comprising leaders in science and pediatric medicine, then meets to rank and recommend projects for funding.

Hospital consultants act as Principal Investigators and supervisors on these projects, giving freely of their time to train younger clinicians in research.

Typical applicants are young doctors and nurses aiming to achieve higher level medical/ scientific qualifications through pediatric research. All candidates register for a higher degree, typically with an Irish university: MD, Clinical PhD or MSc, and the successful completion of that degree, presentation at International Conferences in their discipline, and peer reviewed publications in high impact international journals are among the measured outputs of this programme.

Population(s) Served
Children and youth

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of research studies conducted

This metric is no longer tracked.
Totals By Year
Related Program

Clinical Research Fellowship

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Research studies conducted through the National Children's Research Centre in Dublin, Ireland including clinical trials, the Clinical Research Fellowship and Pediatric Research Project Grants.

Number of grants and research funding awarded to the institution

This metric is no longer tracked.
Totals By Year
Related Program

Clinical Research Fellowship

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

Grants received from U.S. funders towards specific elements of the Research & Innovation Research campaign.

Number of Peer reviewed papers

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Number of papers published by researchers that have been reviewed by their peers around the world.

Number of International presentations

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Number of presentations by researchers around the world.

Number of International collaborations

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Number of countries around the world that the National Children's Research Centre in Dublin, Ireland collaborates with as part of the research programme.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Research, education and innovation are the biggest growth areas for the coming years, and our areas of greatest funding need in the future of children's health care. Striving for success we aim to provide grants of over $36 million for research, innovation and education in the coming years. To be effective, we need patrons, champions and leaders to be catalysts for children's health.

The opportunity is as follows:

1. To pioneer less toxic treatments that heal children more precisely and gently
2. To invest in breakthroughs that change childhood illness forever
3. To tackle complex, rare and challenging childhood illnesses
4. To discover cures that save lives across the globe

Mortality rates have significantly improved over the past 50 years. Many illnesses no longer exist. But each year children still die way too young. Modern medicine, treatments and research has significantly improved the quality of life for children who live with chronic or debilitating illnesses, disease and disability, but more can be done. More lives can be saved. More breakthroughs can be achieved. Better treatments can be discovered. New preventative strategies can be pioneered.

We believe that with our partners at the National Children's Research Center and Our Lady's Children's Hospital in Dublin, Ireland together with partnering institutions across the world, we can help enable these breakthroughs. Together we have a proven track record of incredible achievements in pediatric research.

The Children's Medical Research Foundation has identified 3 priority strategy areas:

1. Discovery
2. Leadership
3. Transformation

We invite donors to invest in the vital foundations, help establish the culture, discover visionary thinkers and pioneers of tomorrow's cures. Join us at the forefront of transforming outcomes for sick children.

Striving for success, we aim to:

– Educate 35+ Pioneers through their Clinical Fellowship
– Help 50+ doctors develop a passion for pediatrics
– Create leadership roles via 3 Strategic University Partnerships
– Enable 45 seed projects to explore, and commence innovative research
– Deliver 75+ more clinical trials and studies for children
– Improve quality of life for thousands of children during the period
– Discover life-saving breakthroughs that will impact millions of sick children the world over

A key part of our growth strategy with the NCRC is to concentrate our investment on personalized medicine, tailored to each child. We will aim to take discoveries out of the laboratories and onto the wards as quickly as possible.

As examples of both a track record and existing priorities, the following 3 projects are highlighted:

1. One in One Hundred - Tiny heart innovation program
Recently seed funding discovered that there is a great opportunity for stem-cell development and using 3D printed hearts to change outcomes for children born with a heart defect (1 in 100 in Ireland). These projects now need further investment to take these insights to scale, to transform clinical and surgical practice on the back of these discoveries.

2. Shield CF - Cystic Fibrosis Program
Study of Host Immunity and Early Lung Disease in CF is an ambitious long term study to
try to understand the cause of lung function decline in children with CF. CF is
the most common deadly inherited condition in the world affecting Caucasians
and Shield CF captures data from children from diagnosis who are monitored, and
tracked and traced annually. These studies will provide incredible insights to help
better understanding and in turn treatment.

3. Too fast too early - Obesity program
Recent leadership investments in Baseline Birth Cohort bio bank have established critical links between children who grow too fast too early and significant health challenges.
There is a philanthropic opportunity to further invest in critical 3–5 year research into this area to draw greater conclusions and ultimately with a view to create preventative transformational strategies in the fight against obesity.

Recent successes:

35
Total number of graduates to date

3
Number of major discovery biobanks

46
International presentations 2016

4500+
Prescriptions screened for error

2000+
Children turned 5 years in the BASELINE birth cohort

585
Participants recruited to DOCHAS for study of childhood inflammatory bowel disease

8000
samples in Shield cystic fibrosis biobank

Financials

CHILDRENS MEDICAL RESEARCH FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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CHILDRENS MEDICAL RESEARCH FOUNDATION INC

Board of directors
as of 07/08/2021
SOURCE: Self-reported by organization
Board chair

Mr. Alan Ennis

Alan T Ennis

Glansaol

James Flanagan

PWC

John Reilly

Squire Patton Boggs

Colin Neill

David Evans

Canyon CTS

Alex T Barry

Triple Point Capital

Sean Gaffey

Merrill Lynch

Stephen Kennedy

KPMG

Anne Sansevero

Healthsense LLC

Thomas J Goodwin

McCarter & English

Stephen Condon

TPG Global

Eamonn Coghlan

Eoin Duane

Elliott Management Corporation

Amy Howlett

Bank of America Merrill Lynch

Roisin O'Cearbhaill

Memorial Sloan Kettering

Richard T Nigro

Lord Abbett

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes