Medical Research

CHILDRENS MEDICAL RESEARCH FOUNDATION INC

Every sick child deserves every chance

aka CMRF

New York, NY

Mission

Saving lives through research, child care, and family support.

Ruling Year

1979

Chairman

Mr. Alan T Ennis

Main Address

1501 Broadway Suite 1808

New York, NY 10036 USA

Keywords

Pediatric, Children, Research, Health

EIN

13-2984859

 Number

1127968895

Cause Area (NTEE Code)

Medical Specialty Research (H90)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs + Results

What we aim to solve New!

The sickest children need better outcomes, better treatments, better cures and quicker diagnoses. Research offers patients facing life threatening, life-limiting conditions the hope they need to get through difficult days. The Children's Medical & Research Foundation seeks to enhance the ability of pediatric clinicians in Ireland and around the world to transform the health and well-being of these children and young people, giving them the chance to fulfill their potential.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Clinical Research Fellowship

Where we workNew!

Our Results

How does this organization measure their results? It's a hard question but an important one. These quantitative program results are self-reported by the organization, illustrating their committment to transparency, learning, and interest in helping the whole sector learn and grow.

SOURCE: Self-reported by organization

Number of research studies conducted

TOTALS BY YEAR
Population(s) served

No target populations selected

Related program

Clinical Research Fellowship

Context notes

Research studies conducted through the National Children's Research Centre in Dublin, Ireland including clinical trials, the Clinical Research Fellowship and Pediatric Research Project Grants.

Number of grants and research funding awarded to the institution

TOTALS BY YEAR
Population(s) served

No target populations selected

Related program

Clinical Research Fellowship

Context notes

Grants received from U.S. funders towards specific elements of the Research & Innovation Research campaign.

Number of Peer reviewed papers

TOTALS BY YEAR
Population(s) served

No target populations selected

Context notes

Number of papers published by researchers that have been reviewed by their peers around the world.

Number of International presentations

TOTALS BY YEAR
Population(s) served

No target populations selected

Context notes

Number of presentations by researchers around the world.

Number of International collaborations

TOTALS BY YEAR
Population(s) served

No target populations selected

Context notes

Number of countries around the world that the National Children's Research Centre in Dublin, Ireland collaborates with as part of the research programme.

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

Research, education and innovation are the biggest growth areas for the coming years, and our areas of greatest funding need in the future of children's health care. Striving for success we aim to provide grants of over $36 million for research, innovation and education in the coming years. To be effective, we need patrons, champions and leaders to be catalysts for children's health.

The opportunity is as follows:

1. To pioneer less toxic treatments that heal children more precisely and gently
2. To invest in breakthroughs that change childhood illness forever
3. To tackle complex, rare and challenging childhood illnesses
4. To discover cures that save lives across the globe

Mortality rates have significantly improved over the past 50 years. Many illnesses no longer exist. But each year children still die way too young. Modern medicine, treatments and research has significantly improved the quality of life for children who live with chronic or debilitating illnesses, disease and disability, but more can be done. More lives can be saved. More breakthroughs can be achieved. Better treatments can be discovered. New preventative strategies can be pioneered.

We believe that with our partners at the National Children's Research Center and Our Lady's Children's Hospital in Dublin, Ireland together with partnering institutions across the world, we can help enable these breakthroughs. Together we have a proven track record of incredible achievements in pediatric research.

The Children's Medical Research Foundation has identified 3 priority strategy areas:

1. Discovery
2. Leadership
3. Transformation

We invite donors to invest in the vital foundations, help establish the culture, discover visionary thinkers and pioneers of tomorrow's cures. Join us at the forefront of transforming outcomes for sick children.

Striving for success, we aim to:

– Educate 35+ Pioneers through their Clinical Fellowship
– Help 50+ doctors develop a passion for pediatrics
– Create leadership roles via 3 Strategic University Partnerships
– Enable 45 seed projects to explore, and commence innovative research
– Deliver 75+ more clinical trials and studies for children
– Improve quality of life for thousands of children during the period
– Discover life-saving breakthroughs that will impact millions of sick children the world over

A key part of our growth strategy with the NCRC is to concentrate our investment on personalized medicine, tailored to each child. We will aim to take discoveries out of the laboratories and onto the wards as quickly as possible.

As examples of both a track record and existing priorities, the following 3 projects are highlighted:

1. One in One Hundred - Tiny heart innovation program
Recently seed funding discovered that there is a great opportunity for stem-cell development and using 3D printed hearts to change outcomes for children born with a heart defect (1 in 100 in Ireland). These projects now need further investment to take these insights to scale, to transform clinical and surgical practice on the back of these discoveries.

2. Shield CF - Cystic Fibrosis Program
Study of Host Immunity and Early Lung Disease in CF is an ambitious long term study to
try to understand the cause of lung function decline in children with CF. CF is
the most common deadly inherited condition in the world affecting Caucasians
and Shield CF captures data from children from diagnosis who are monitored, and
tracked and traced annually. These studies will provide incredible insights to help
better understanding and in turn treatment.

3. Too fast too early - Obesity program
Recent leadership investments in Baseline Birth Cohort bio bank have established critical links between children who grow too fast too early and significant health challenges.
There is a philanthropic opportunity to further invest in critical 3–5 year research into this area to draw greater conclusions and ultimately with a view to create preventative transformational strategies in the fight against obesity.

Expected outputs and impact:

3
Strategic partnership and leadership roles at leading Universities

35
Clinical Fellowship Graduates

45
Innovative projects explored so new solutions, approaches and technologies
and advances can be tested, initiated and taken to scale

75+
Clinical trials and studies

Recent successes:

35
Total number of graduates to date

3
Number of major discovery biobanks

46
International presentations 2016

4500+
Prescriptions screened for error

2000+
Children turned 5 years in the BASELINE birth cohort

585
Participants recruited to DOCHAS for study of childhood inflammatory bowel disease

8000
samples in Shield cystic fibrosis biobank

External Reviews

Financials

CHILDRENS MEDICAL RESEARCH FOUNDATION INC

Fiscal year: Jan 01 - Dec 31

Need more info on this nonprofit?

Need more info on this nonprofit?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2016, 2015 and 2014
A Pro report is also available for this organization for $125.
Click here to view a Sample Report.

Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2016, 2015 and 2014
A Pro report is also available for this organization for $125.
Click here to see what's included.

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Yes

Organizational Demographics

In order to support nonprofits and gain valuable insight for the sector, GuideStar worked with D5—a five-year initiative to advance diversity, equity, and inclusion in philanthropy—in creating a questionnaire. This section is a voluntary questionnaire that empowers organizations to share information on the demographics of who works in and leads organizations. To protect the identity of individuals, we do not display sexual orientation or disability information for organizations with fewer than 15 staff. Any values displayed in this section are percentages of the total number of individuals in each category (e.g. 20% of all Board members for X organization are female).

SOURCE: Self-reported by organization

Gender

Race & Ethnicity

Sexual Orientation

This organization reports that it does not collect this information for Board Members, Senior Staff, Full-Time Staff and Part-Time Staff.

Disability

This organization reports that it does not collect this information for Board Members, Senior Staff, Full-Time Staff and Part-Time Staff.

Diversity Strategies

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We track retention of staff, board, and volunteers across demographic categories
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We track income levels of staff, senior staff, and board across demographic categories
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We track the age of staff, senior staff, and board
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We track the diversity of vendors (e.g., consultants, professional service firms)
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We have a diversity committee in place
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We have a diversity manager in place
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We have a diversity plan
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We use other methods to support diversity