Alzheimer's Disease and Related Disorders Association, Inc. HQ

The Brains Behind Saving Yours

aka Alzheimer's Association   |   Chicago, IL   |  www.alz.org

Mission

The Alzheimer's Association leads the way to end Alzheimer's and all other dementia — by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support. A world without Alzheimer's and all other dementia.™

Ruling year info

1985

Chief Executive Officer

Mr. Harry Johns

Main address

225 North Michigan Avenue Suite 1700

Chicago, IL 60601 USA

Show more contact info

EIN

13-3039601

NTEE code info

Alzheimer's (G83)

Alzheimer's (H83)

Brain Disorders (G48)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The Alzheimer's Association leads the way to end Alzheimer's and all other dementia — by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Enhancing Care & Support

The Association is instrumental in providing and enhancing care and support for all those affected by Alzheimer’s and other dementias. One goal is to expand our service contacts provided through our channels including alz.org, phone and in-person care consultation, support groups, education programs
and information. According to surveys, constituents are highly satisfied with Association programs and services

Population(s) Served
Adults

The world’s largest nonprofit funder of Alzheimer’s research, the Association is also the nonprofit with the highest impact in Alzheimer’s research worldwide, behind only the U.S. and Chinese governments as measured by InCites Clarivate™. In our role as the leading research convener, collaborator and coordinator, the Association is committed to accelerating global progress of new treatments, preventions and, ultimately, a cure.
Grant awards are funded through the Alzheimer's Association International Research Grant Program, representing proposals ranked highest by a peer-reviewed process in a highly competitive field of applications each year.

Population(s) Served
Adults

Where we work

Accreditations

Better Business Bureau Wise Giving Alliance 2019

NHC Standards of Excellence Certified 2021

Charity Navigator 2020

Awards

Best Non Profit to Work For #1 Rank Large Non Profits 2022

The NonProfit Times

Best Nonprofits To Work For 2021

The NonProfit Times

Best Nonprofits To Work For 2020

The NonProfit Times

Best Nonprofits To Work For 2019

The NonProfit Times

Best Non Profits To Work For 2018

The NonProfit Times

Ranked #2 Peer-to-Peer Fundraising Event (Walk to End Alzheimer's) 2021

Peer-to-Peer Professional Forum

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of times Care and Support services were delivered

This metric is no longer tracked.
Totals By Year
Related Program

Enhancing Care & Support

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Reaching more affected families with care and support services, wherever and whenever needed. This measurement is calculated based on new and changed channels that differ from those used in FY18.

Active grant (dollars) for research (current total)

This metric is no longer tracked.
Totals By Year
Related Program

Accelerating Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

As the world’s leading nonprofit funder and convener of Alzheimer’s and dementia research, the Association is currently investing over $250 million in more than 750 active projects in 39 countries.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The Alzheimer's Association is the leading voluntary health organization in Alzheimer's care, support and research.

Care and Support
We work on a national and local level to provide care and support for all those affected by Alzheimer's and other dementias.

Research
As the world’s largest nonprofit convener and funder of Alzheimer's research, the Alzheimer's Association is committed to accelerating the global effort to eliminate Alzheimer's. We have undertaken a multitude of diverse research initiatives working toward methods of treatment, prevention and, ultimately, a cure.

Advocacy
The Association is the leading voice for Alzheimer's disease advocacy, fighting for critical Alzheimer’s research and care initiatives at the state and federal level.

Diversity and Inclusion
At the Alzheimer's Association, diversity and inclusion are vital to our mission. The Association leads strategic initiatives to support diversity and a culture of inclusivity. These strategic initiatives also strengthen outreach to all populations, providing communities with resources and support to address the Alzheimer’s crisis. By partnering with organizations locally and nationally to advance diversity and inclusion, the Association can broaden its reach in all communities.

1. We provide care and support to those in need
The Association works to provide care and support for all those affected by Alzheimer’s and other dementias. We are here to help.

2. We educate and raise awareness to grow understanding.

3. We accelerate research across the globe
As the largest nonprofit funder of Alzheimer's research, the Association is committed to accelerating the global progress toward methods of treatments, preventions and ultimately, a cure.

4. We advocate for the needs and rights of those facing Alzheimer's disease
The Association is the leading voice for Alzheimer's disease advocacy, ensuring that the need for Alzheimer's care, education and research is heard at every level of government.

Provide Care & Support
- local chapters across the nation, providing services within each community
- free nationwide 24/7 Helpline (translation services > than 200 languages) staffed by specialists and master's-level clinicians
- offer support groups for caregivers and others dealing with Alzheimer’s and other dementias
- provide an online community forum, ALZConnected®, which is a place for people impacted to connect with others
- provide caregivers and families with comprehensive online resources and information for early, middle and late-stage caregiving.

Accelerate Research
- As the largest nonprofit funder of Alzheimer's research, the Association is committed to accelerating the global progress of new treatments, preventions and, ultimately, a cure. We fund, we connect & convene for Alzheimer's and dementia scientists, we collaborate, we advocate by working with and through the Alzheimer’s Impact Movement (the advocacy arm of the Association), to increase federal funding.

Enhancing Care & Support
During FY19, the Association delivered on its mission to provide care and support more than 9.1 million times
through channels including alz.org, phone and in-person care consultation, support groups, education programs
and information. The Association’s national 24/7 Helpline, staffed by specialists and master’s-level clinicians, delivers care and support around the clock, 365 days a year.

Accelerating Research
In aggressive pursuit of its vision of a world without Alzheimer’s, the Association made its largest-ever research
investment in FY19, granting more than $42 million to 162 new scientific investigations. Currently, the Association is investing $167 million in more than 500 active best-of-field projects in 27 countries. The Alzheimer’s Association International Conference (AAIC) is the premier annual forum for the presentation and discussion of Alzheimer’s and dementia research. A record number of nearly 6,000 leading researchers, clinicians, investigators and care providers from 68 countries attended AAIC. Attendance increased 2% from the prior year and has now increased four consecutive years growing 33% over that time.


The Alzheimer’s Association International Society to Advance Alzheimer’s Research and Treatment (ISTAART) is the only professional society for those interested in Alzheimer’s and dementia science, including scientists, physicians etc. involved in the causes and treatments of Alzheimer’s and other dementias. By the end of FY19,
ISTAART had 4,526 members, a 10% increase over FY18 and membership has increased each of the last five years.

Advance Policy
From the efforts of the Association, dedicated advocates & the Alzheimer's Impact Movement (AIM), Congress approved, the President signed into law a historic $425Mil increase for research at the (NIH) as part of federal fiscal year 2019 budget. This brings annual funding at the NIH to $2.4 billion and marks the fourth consecutive year Congress has taken unprecedented action to address the growing Alzheimer’s crisis through research.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    We work on a national / local level to maximize care & support for all those affected by Alzheimer's and other dementia. Our initiatives address the unique needs of individuals living with the disease, caregivers and communities through direct services, programs and community partnerships. More than 6M Americans are living with Alzheimer’s dementia (projected 12.7M by 2050) and more than 11M people provide care to family and friends. Age is the greatest risk factor for the disease, with the large majority of people exhibiting Alzheimer’s symptoms at age 65 and older. In FY2021, 87% of people who utilized our direct services & programs were age 45 and older, and nearly 78% were women. Prevention strategies and effective treatments for dementia stand to benefit tens of millions globally.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Paper surveys, Focus groups or interviews (by phone or in person), Community meetings/Town halls, Constituent (client or resident, etc.) advisory committees,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    The Alzheimer's Association held four focus groups and conducted a market analysis with 300 caregivers to obtain feedback on topics of most interest to them in relation to financial literacy and preparedness. This feedback was then used to identify the topic areas to be included in the Association's new education program, Managing Money: A Caregiver's Guide to Finances.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    The Alzheimer's Association's Alzheimer's Navigator, is an easy-to-use online tool that guides caregivers and people living in the early stage of the disease to answers by creating personalized action plans and linking them to information, support and local resources. In an effort to enhance the user experience on the site, the Association obtained feedback from existing and new users through an online survey. Survey questions probed on existing features and functions of the platform as well as enhancements and modifications users would like to see to improve their overall experience with the site. The feedback obtained from the surveys is guiding a full redesign of the site.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

Alzheimer's Disease and Related Disorders Association, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Alzheimer's Disease and Related Disorders Association, Inc.

Board of directors
as of 07/14/2022
SOURCE: Self-reported by organization
Board chair

Mr. Brian Richardson

Executive Vice President, Chief Transformation Officer, Covia

Term: 2020 - 2022

Cecile Perich

Karen Stevenson

Julia Wallace

Bruce Baude

David Hunter

Minoo Javanmardian, PhD

George Johnson

Karyne Jones

Ryan Mundy

Debra Pierson

William Thomas

Alex Tsao, PhD

Derek van Amerongen, MD

Bruce Lamb

Sarah Lorance

Andrew Dahlkemper

Arthena Caston

David Gonzales

Dean Brenner

Eileen Kamerick

Geoff Heredia

George Walz

Irene Sudac

Nicole Walker

Elizabeth Shih

Joe Montminy

Dozene Guishard

Joe Arciniega

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 4/25/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

Equity strategies

Last updated: 07/14/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.