THE MARTY LYONS FOUNDATION INC

The Courage to Wish for More

aka The Marty Lyons Foundation   |   Bay Shore, NY   |  www.MartyLyonsFoundation.org

Mission

The Marty Lyons Foundation (MLF) was established in 1982 to fulfill the special wishes of children, ages three (3) to seventeen (17) years old, who have been diagnosed as having a terminal or life-threatening illness by providing and arranging special wish requests. We grant wishes today for a better tomorrow. We are unique in that we will grant a second wish to a deserving child.

Notes from the nonprofit

Marty Lyons was an NFL player for the NY Jets where he served for 12-years as a premiere defensive lineman. Early in his career, he befriended & became a Big Brother to a three-year-old boy, Keith, suffering from an advanced illness. In March of 1982, Mr. Lyons experienced a six day period filled with highs & lows; the birth of his first child, a healthy son; followed four days later by the sudden passing of his father, Leo; followed two days later by the passing of Keith. These experiences profoundly affected Marty’s attitude toward life, fame & his fellow human beings. Since then, we have kept the hope alive in the hearts of children with a terminal or life-threatening illness by making their special wishes come true! These wishes have the ability to sweep the children & their family away from the daily heartache of their illness. It is a joyous time which creates wonderful memories & promotes a better quality of life. Every child has a dream & we can make dreams become reality!

Ruling year info

1984

Founder / Chairman

Mr. Marty Lyons

Executive Director

Mrs. Sandra White

Main address

105 Sweeneydale Ave.

Bay Shore, NY 11706 USA

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EIN

13-3146696

NTEE code info

Children's and Youth Services (P30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

1st Wish Program

We grant 1st wishes to children, ages 3-17, who have been diagnosed with a life-threatening or terminal illness as long as they live in or receive treatment in a state in which we are registered - AL, CT, MA, MD, VA, FL, GA, NC, SC, NY, NJ, PA & TX.

Wishes make a tremendous impact in the lives of both the wish children and their family members. As the father of a wish recipient writes: “These kids battling cancer and other diseases go through hell and the week at Disney, Universal, and other attractions really make an incredible difference in their lives and what many believe to be a difference in their outcomes.”

Population(s) Served

We grant 2nd wishes to children, ages 3-17, who have been diagnosed with a life-threatening or terminal illness as long as they live in or receive treatment in a state in which we are registered - AL, CT, MA, MD, VA, FL, GA, NC, SC, NY, NJ, PA & TX. These wishes are granted under exceptional medical circumstances where the patient's condition has significantly worsened since the time of their 1st wish. We typically require 24 months between a child's first wish and second wish request.

Population(s) Served
Children and youth
Children and youth

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of Facebook followers

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of Wishes Granted

This metric is no longer tracked.
Totals By Year
Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context Notes

Please note the lesser totals in 2020 & 2021 are a direct reflection of the limitations imposed from the COVID 19 pandemic.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The Marty Lyons Foundation grants wishes today for a better tomorrow. Through providing a wish experience to a child battling a critical illness, it is our goal to give that child the courage to wish for more. We hope that each family who comes through our doors are given loving memories to last a lifetime, a glimmer of hope and a bright light amidst very dark times in their lives.

Through offering both a 1st wish program and a 2nd wish program under exceptional medical circumstances, we hope to achieve the goal of taking a critically ill child's greatest wish and turning it into a reality.

Through the support of incredible donors and dedicated volunteers, we are able to grant one child's wish at a time. Our Foundation only operates with three paid fulltime employees to stretch every dollar donated to go directly back to the wishes. Leaning on the philanthropic individuals in the communities we serve allows us to make an incredible difference with a larger reach.

2022 marks the Marty Lyons Foundation's 40th anniversary of granting wishes to children ages 3-17 diagnosed with a terminal or life-threatening illness. In that time, we have granted over 8100 wishes and raised over 37 million dollars. We have expanded from being headquartered in NY to have 10 chapters covering 13 states.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Children and their families diagnosed with a life-threatening or terminal illness.

  • How is your organization collecting feedback from the people you serve?

    Case management notes, Follow Up Conversations,

  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    It is because of the feedback from our wish families that we identified a safe way to slowly resume travel once the COVID 19 pandemic hit. While we are still not back to full capacity of travel wishes, our children often are in the race against time. Continuing to put their greatest wish on hold would not allow us to complete our mission.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    It helps our wish families feel a part of the process. When they share their experiences, good or bad, it helps us with the next wish family that we will work with.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We act on the feedback we receive,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

THE MARTY LYONS FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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THE MARTY LYONS FOUNDATION INC

Board of directors
as of 05/20/2022
SOURCE: Self-reported by organization
Board chair

Mr. Marty Lyons

The LandTek Group

Term: 1982 - 2025

Matthew Avellino

AC Risk Management

Paul Avvento

Gabrielli Trucks

William Corbett, Jr.

Corbett Public Relations, Inc.

John DeFranza

HSBC Bank

Lynne D'Eramo

TaY Lifestyle Management

Karine Hollander

Guild Hall of East Hampton

Steven Kuperschmid

Ruskin Moscou & Faltischek, P.C.

Warren Larkin

Denis Barry Foundation

Murray Legg

Legg Development Partners, LLC

George Lewis, Jr.

Law Office of George T. Lewis, Jr., P.C.

Dr. Jesse Lyons

Tidelands Health

Philip Lyons

Richmond Hill Middle School

Dr. Rocky Lyons

River Region Family Medicine

Eileen Mayer

Taylor Rental

Cindy McLoughlin

CohnReznick LLP

Peter Michalewicz

Dr. Michael Miller

Children's Hospital of Richmond at VCU

Brendan Murphy

FIS

John Nitti

The LandTek Group

John Nitti

Allvue Systems

Jack Stevens

BAE Systems

Dr. Ernest Vomero

Northwell Health

Bob Bigler

Aaron Bookman

Five Below

Michael Brown

Empire Auto Group

Adam Forgione

Pennylane Productions

Scott Maskin

SUNation

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 5/20/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
Black/African American/African
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 05/20/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.