ALZHEIMERS DISEASE AND RELATED DISORDERS NEW YORK CITY INC

The Heart of Alzheimer's Caregiving

aka CaringKind   |   New York City, NY   |  www.caringkindnyc.org

Mission

The mission of CaringKind, The Heart of Alzheimer's Caregiving (formerly known as Alzheimer's Association, New York City Chapter) is to create, deliver, and promote comprehensive and compassionate care and support services for individuals and families affected by Alzheimer's disease and related dementias, and to eliminate Alzheimer's disease through the advancement of research. We achieve our mission by providing programs and services for individuals with dementia, their family and professional caregivers; increasing public awareness; collaborating with research centers; and informing public policy through advocacy.

Ruling year info

2015

President & CEO

Mrs. Eleonora Tornatore-Mikesh

Main address

360 Lexington Avenue. 3rd Fl.

New York City, NY 10017 USA

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Formerly known as

Alzheimer's Association, New York City Chapter

EIN

13-3277408

NTEE code info

Alzheimer's (G83)

Human Service Organizations (P20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Overview

CaringKind, the Heart of Alzheimer’s Caregiving, provides free information, assistance and support for those with Alzheimer’s disease and related dementias, as well as for their family members, caregivers and professionals. Our programs include a helpline, social work services, support groups, early stage services, education and training programs, a wanderers safety program and more.

Population(s) Served
Adults

Calls are answered by staff who offer information, referrals to community and our organization resources, and support to family members, professional caregivers, and people with dementia. Translation services are available in 200 languages. The Helpline responds to over 500 calls per month. Call us at (646) 744-2900, use our online form or email us at [email protected]

Population(s) Served
Adults

Social Work Services is an in-depth, personalized service for individuals and families who are facing many decisions and challenges associated with Alzheimer’s disease and related disorders. The goal is for each family to develop a better understanding of the disease, make a plan to secure needed care, and develop strategies for the best possible symptom management and communication. Consultations are provided in person, by phone, and via e-mail by licensed social workers and other professionals.

Population(s) Served
Adults

CaringKind, The Heart of Alzheimer's Caregiving and MedicAlert Foundation have formed an alliance to improve the safety of individuals with Alzheimer’s or related dementias. The program is a 24-hour nationwide emergency response service that provides assistance in finding people who wander, locally or far from home, or have a medical emergency. Financial assistance for enrollment is available for residents of the five boroughs of New York City. We partner with NYPD and work with a detective who is assigned to help us investigate when someone is missing. We have an extensive media and local emergency alert notification system that is triggered when someone with dementia goes missing or is found. We provide support to the family during the incident, and provide follow up guidance and referral to local resources when the individual is found and returned home.

Population(s) Served
Older adults
Seniors

CaringKind, The Heart of Alzheimer’s Caregiving offers support groups at locations throughout all five boroughs of NYC at no charge. Before joining a group we recommend that the potential participant attend an Understanding Dementia Meeting at our Mid-town headquarters, located at 360 Lexington Ave, 4th fl, New York, NY 10017.
Over 90 support groups for caregivers provide a consistent and caring place for group members to discuss the challenges of caregiving, share their feelings, and find emotional support. Group members also exchange information and educate themselves about dementia.

Population(s) Served
Adults

Diversity and outreach efforts are designed to extend our programs and services, including education, information, training, referrals, support, advocacy and volunteerism to ethnically diverse populations. CaringKind, The Heart of Alzheimer’s Caregiving has created linguistically appropriate informational materials, including a Spanish language and Chinese language newsletter, and offers educational sessions to community members and professionals in Spanish and Chinese. The African-American, Chinese and Latino Outreach programs seek to meet the specific needs of these communities by increasing awareness of, and participation in, our programs and services. We also work with the Orthodox Jewish population and the LGBT populations.

Population(s) Served
Adults

Education Informative meetings and educational seminars address important topics relating to Alzheimer’s disease and other dementias. Subjects include diagnosis, home care concerns, patient management, research updates, caregiver health and well-being, legal and financial planning, Medicaid Home Care, nursing home placement, late-stage care issues and more. All meetings and workshops are free of charge.

Dementia Care Training for Professionals - An innovative program specially designed to equip home and personal care workers with the knowledge and skills needed to provide their clients with the highest quality of dementia care.

Support Group Leaders Training - An intensive four-day workshop designed for professionals and former caregivers who wish to lead family and early-stage support groups.

Family Caregiver Workshops - These ten-hour Workshops, focus on a person-centered care approach for family caregivers, and is conducted in a supportive and nonjudgmental environment.

Population(s) Served

The Nursing Home and Residential Care Program works to minimize the trauma of placement for patients, ease the transition for families, and train/support the staff. The program aims to improve treatment of residents through changing the culture of care in nursing homes and other residential facilities. The Palliative Care Program has been the focus of our work in this area for the past two years. We publish two newsletters quarterly: Advancing Care for staff who work in residential care, and Care Advocate which provides information about good dementia care for families of persons in residential care.

Population(s) Served
Adults

Where we work

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    We serve people living with dementia and their paid and unpaid care partners.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Paper surveys,

  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    Recent expressions of concern regarding increased feelings of caregiver guilt and anger have led us to develop and deliver special topic seminars on those topics.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We act on the feedback we receive,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, It is difficult to identify actionable feedback,

Financials

ALZHEIMERS DISEASE AND RELATED DISORDERS NEW YORK CITY INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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ALZHEIMERS DISEASE AND RELATED DISORDERS NEW YORK CITY INC

Board of directors
as of 08/03/2022
SOURCE: Self-reported by organization
Board co-chair

Mr. Jeffrey Jones


Board co-chair

Betsy Billard

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 4/6/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 04/07/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.