Ovarian Cancer Research Alliance

Research. Advocacy. Support.

aka OCRA   |   New York, NY   |  www.ocrahope.org

Mission

Ovarian Cancer Research Alliance (OCRA) is the largest global organization dedicated to advancing ovarian cancer research while supporting women and their families. As the voice for ovarian cancer, OCRA funds private research, advocates for increased federal research and awareness dollars and furthers policies that give women access to the services they need, as well as supports women and their families before, during and after a diagnosis. Collectively, the organization has invested over $110 million in private ovarian cancer research and has advocated to secure over $2.2 billion federal dollars dedicated to ovarian cancer research and awareness.

Ruling year info

1995

President & CEO

Ms. Audra Moran

Main address

14 Pennsylvania Plaza Suite 2110

New York, NY 10122 USA

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Formerly known as

Ann Schreiber Ovarian Cancer Research Fund

Ovarian Cancer Research Fund (OCRF)

Ovarian Cancer National Alliance

EIN

13-3806788

NTEE code info

Cancer Research (H30)

Cancer (G30)

Alliance/Advocacy Organizations (T01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Woman to Woman

OCRA’s Woman to Woman is a unique support program that pairs gynecologic cancer patients with trained survivor volunteers who provide one-on-one emotional support and mentoring to women when they need it most. From diagnosis through treatment and beyond, Woman to Woman survivor volunteers have helped hundreds of women and their families cope with gynecologic cancer.

Population(s) Served
Women and girls
People with diseases and illnesses

The Ovarian Cancer National Conference is the longest running conference devoted to ovarian cancer survivors. It is the epicenter for researchers, clinicians, survivors and friends to come together and learn from one another about developments in diagnosis, treatment and quality of life for women with ovarian cancer.

Population(s) Served
People with diseases and illnesses
Families

This program utilizes trained ovarian cancer survivors to conduct presentations in educational programs to educate future healthcare providers about ovarian cancer by sharing stories of diagnosis and treatment, along with facts about the disease. Medical/healthcare students interact with and learn from actual patients in a classroom setting. STS has reached over 75,000 medical and healthcare students since inception.

Population(s) Served
People with diseases and illnesses
Academics

We fund scientists at every stage of their careers. The Ann and Sol Schreiber Mentored Investigator Award is for recent grads, just starting out in the field; the Liz Tilberis Early Career Award is for independent researchers building their own laboratories; and the Collaborative Research Development Grant is for teams of senior researchers working together on large projects. Over $85 million has been awarded to researchers working to cure ovarian cancer.

Population(s) Served
People with diseases and illnesses
Academics

Since 2013, OCRA has trained people around the country through our Advocate Leaders program to raise awareness by developing relationships with their elected officials and advocating for increased funding for ovarian cancer research and related health policies at a grassroots level, as well as bringing them all together annually for Advocacy Day in Washington, D.C.

Population(s) Served
Women and girls
People with diseases and illnesses

OCRA trains ovarian cancer survivors interested in shaping the future of ovarian cancer research by serving as research advocates. Research advocates help funding agencies and scientists understand and prioritize the questions that are important to the ovarian cancer community. Having the input of survivors ensures that research is patient-focused and truly meets the needs of our community. Research advocates also report back to the community, sharing what they have learned, so that everyone can benefit from scientific progress.

Population(s) Served
Women and girls
People with diseases and illnesses

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Ultimately, Ovarian Cancer Research Fund Alliance's goal is to eradicate ovarian cancer-- the deadliest of all gynecologic cancers. Our mission is to promote, advocate for and support scientific research as it relates to the causes, prevention, diagnosis, treatment, and cure for ovarian cancer; to provide education about ovarian cancer; to promote, advocate for and provide supportive services to persons affected by ovarian cancer; and to foster alliances to further those purposes.

Ovarian Cancer Research Fund Alliance unites the ovarian cancer community as one strong voice, propelling the ovarian cancer field forward at an accelerated pace—exactly what is needed at a critical time when scientific discoveries are rapidly increasing. We funding research through our own grant programs, we simultaneously work in Washington DC to increase federal dollars for research, and offer comprehensive education and patient engagement programs for women at all stages of diagnosis and survivorship.

OCRFA is the oldest and largest charity funding ovarian cancer research in the United States, and awards grants through a competitive peer-review process conducted by OCRFA's prestigious Scientific Advisory Committee. The Scientific Advisory Committee is comprised of the nation's top gynecologic oncologists and ovarian cancer researchers. OCRFA is nimble in its ability to fund the most novel approaches to combating this disease. OCRFA is able to solicit, review, and fund worthy applications in a relatively short time-frame, which leads to more rapid scientific progress.

OCRFA is deeply engaged in advocacy, and has successfully advocated for over $2.2 billion in federal funding for ovarian cancer research and education for the past two decades.

OCRFA has been the driving force behind many important discoveries. In the past several years, OCRFA grantees have:

*Developed innovative strategies for early detection: OCRFA-funded research has shown that glycans (small sugar molecules in the blood) appear to distinguish between healthy women and those with ovarian cancer. OCRFA researchers are developing a pilot test.

*Discovered changes that increase risk for ovarian cancer: OCRFA funding has led to the identification of a new genetic polymorphism—like BRCA1/2 but more common—that may significantly increase a woman's risk of ovarian cancer.

*Illuminated the origins of ovarian cancer: OCRFA researchers developed a laboratory model that mimics the process by which fallopian tube cells may morph into cancer cells that appear to have come from the ovaries. This demonstration of what happens in patients furthers the theory that some ovarian cancers begin in the fallopian tube.

*Identified new and better targets for treatment: OCRFA researchers discovered that elevated blood platelet levels in ovarian cancer patients fuel tumor growth and reduce survival. These findings reveal a new factor in cancer progression, and also suggest that drugs that interfere with coagulation might be a useful addition to conventional therapies.

In our mission to educate future medical professionals about ovarian cancer, we are also making progress. In the last year alone our Survivors Teaching Students program, in which ovarian cancer survivors come into the classroom and present their unique stories along with facts about the disease, reached nearly 11,000 medical, nursing and physician assistant students. Program participants consistently report that the presentation is effective in increasing their knowledge about the signs and symptoms of ovarian cancer. We are also successfully providing supportive services to women and families facing an ovarian cancer diagnosis. Over 400 women have benefitted from our Woman to Woman peer support program to date.

While great progress has been made, there's much that OCRFA—and the entire ovarian cancer community—would like to accomplish. We need to find a way to identify who is most likely to get ovarian cancer, we need to find ovarian cancer earlier or prevent it all together, and we need more effective, less toxic treatments.

Financials

Ovarian Cancer Research Alliance
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Operations

The people, governance practices, and partners that make the organization tick.

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Ovarian Cancer Research Alliance

Board of directors
as of 10/8/2021
SOURCE: Self-reported by organization
Board chair

Mr. John Hansbury

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 10/08/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
Decline to state
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data