The Eye Cancer Foundation

Saving Sight. Saving Lives.

New York City, NY   |  http://www.eyecancercure.com

Mission

Established in 1998, we are an educational and supportive resource for eye cancer patients, their families, and physicians. Our mission is focused on: funding research that improves methods of diagnosis and treatment for eye cancers, multi-center international collaborations to answer questions that cannot be solved by one center alone and to decrease mortality by providing fellowship training for eye cancer specialists.

Ruling year info

1998

Chairman

Dr. Paul T. Finger

Main address

115 E 61st St Ste 5B

New York City, NY 10065 USA

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Formerly known as

The Eye Care Foundation

EIN

13-4015076

NTEE code info

Eye Diseases, Blindness and Vision Impairments (G41)

Cancer (G30)

Cancer Research (H30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Established in 1998, The Eye Cancer Foundation is an educational and supportive resource for eye cancer patients, their families, and physicians. Our mission is two-fold: one part focused on multi-centered research of new diagnostic treatments for eye cancer research, the other focused on providing much needed, world-wide patient support services. Our mission is to create a world-class resource for patients and their families diagnosed with ocular tumors, macular degeneration, and related ophthalmic conditions. We want to help you, your children and families around the world. We also provide six-month Fellowships to ophthalmologists from underserved countries in opthalmological oncology.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

The Eye Cancer Foundation, Inc.

The Eye Cancer Foundation's two most recognized patient education programs are The Eye Cancer Network (www.eyecancercure.com) and the free online text and atlas at http://eyecancer.com.

The Eye Cancer Network is a highly utilized educational and support resource for eye tumor patients, their families, and physicians. The site averages over 40,000 visitors per month. This comprehensive site makes available educational information on over 50 types of eye tumors, including methods of treatment; a basic eye description; an eye cancer specialist physician finder; a research section and blogs devoted to new innovations in the world of ocular tumors.

Located on Facebook, The Eye Cancer Foundation started several web-based patient support groups, offering patients and their families the opportunity to communicate with others throughout the world 24 hours a day. Visitors share their personal stories, exchange information, and pose questions. Bringing patients together is the key to empowering them, especially during a time when many feel powerless against the cancer. Communicating with others from Idaho to Australia who face the same fight against this rare disease brings hope and reassurance during the most difficult time in ones life.

Population(s) Served
People with vision impairments
Adults

Every year, retinoblastoma afflicts some 10,000 children around the world. This eye cancer has a 98% cure rate with proper diagnosis and treatment, but many children in less developed countries lose their vision and even their lives because of lack of access to proper care.

Through the 2020 Campaign, The Eye Cancer Foundation plans to change that. With your help, we can train 20 eye cancer specialists to work in 20 countries by 2020. This will save thousands of children’s lives.

Population(s) Served
Children and youth
People with diseases and illnesses

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of practicing medical doctors

This metric is no longer tracked.
Totals By Year
Population(s) Served

Ethnic and racial groups, People with diseases and illnesses

Related Program

The Eye Cancer Foundation, Inc.

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We have now over 200 eye cancer specialists in our database. With increased funding and training, we hope to increase these numbers in the near future.

Number of physicians who received training in eye cancer diagnosis and treatment.

This metric is no longer tracked.
Totals By Year
Population(s) Served

Ethnic and racial groups, People with diseases and illnesses

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Eye Cancer Foundation (ECF) is pleased to announce funding to support retinoblastoma education fellowships for candidates from unserved and underserved countries.

Number of clients participating in support groups

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Eye Cancer Foundation established the first online-based community dedicated to eye tumor patients.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

• Fund and direct research to find cures for patients with ocular tumors and related eye diseases.
• Provide the most up-to-date treatment information available to patients and their families, physicians, and other health-care providers.
• To coordinate national and international prospective-randomized clinical trials to evaluate new methods of diagnosis and treatment.
• Establish family and patient support programs to ease emotional stress and real-life adjustment issues related to the severe forms of these conditions.
• To empower patients to find the resources to improve their lives.
• Support eye cancer fellowship education with an emphasis on underserved or unserved countries.
• Support multi center, international cooperative eye cancer registries to determine the best methods of diagnosis and treatment for eye cancers.
• The Bioinformatics Grid (BIG): The mission of the eye cancer bioinformatics grid is to provide an infrastructure for sharing data, results and research. Dr. Finger says, “There is power in numbers!”
• International Retinoblastoma Fellowships: The Eye Cancer Foundation (ECF) is pleased to announce funding to support retinoblastoma education fellowships for candidates from unserved and underserved countries. These fellowships may be from the ECF, Princess Margaret Cancer Center, and/or the International Council of Ophthalmology.
• Eye Cancer Working Day: The Working Day unites specialists around the globe to develop multicenter, international collaboration in ocular oncology.

1) We support and update the most widely used web presence for patients with eye cancer and the professionals who care for them.

2) We support multi center, international cooperative studies that allow for statistically significant amounts of data to be collected for analysis.

3) We are trying to decrease the mortality of children with eye cancer in under-developed countries.

4) We are raising awareness of eye cancer.

5) We fundraise for a cure, better treatment, more widespread treatment, research, and training for eye cancer.

We have support groups.

We have a web site that distributes new, information an allows patients to find each other.

We have a presence on Facebook, one for doctors, and another for patients.

We have many of the top eye cancer specialists around the world participating in our programs, working together to teach new eye cancer specialists, research eye cancer, and raise eye cancer awareness.

We have made significant headway with raising awareness, building a forum for eye cancer patients and survivors to discuss their situation and present their thoughts and worries to their peers.

We have surpassed the goal of our 2020 Campaign, that wanted to see the completion of training of 20 eye cancer specialists in 20 different unserved and underserved countries around the world. In fact, not only have we surpassed our goal, but we have doubled it - having trained nearly 50 specialists from nearly 30 different countries.

Our goals continue to involve finding a cure for even the most difficult diseases, which may some day be applied to other types of cancers. Additionally, we hope to expand our reach to even more countries and harder to reach continents, such as Africa, South and Central America, and Australia.

Financials

The Eye Cancer Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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The Eye Cancer Foundation

Board of directors
as of 5/26/2021
SOURCE: Self-reported by organization
Board chair

Dr. Paul Finger

New York Eye Cancer Center, The Eye Cancer Foundation

Jack Friedman

Paul T. Finger, MD

Robert Sauerhaft

Lynne Shevlin

Myrna Daniels

Marci Finger

Maureen DeVoe

Beverly Sommer

Scott Wiener

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes