SILVER2023

The Arc of the US

aka The Arc   |   Washington, DC   |  www.thearc.org

Mission

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

Ruling year info

2007

COO / Acting CEO

Mr. Ruben Rodriguez

Main address

2000 Pennsylvania Avenue, Suite 500

Washington, DC 20006 USA

Show more contact info

EIN

13-5642032

NTEE code info

Human Service Organizations (P20)

Research Institutes and/or Public Policy Analysis (W05)

Disabled Persons' Rights (R23)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

General Programs

The Arc carries out its mission of protecting and promoting the rights of people with intellectual and developmental disabilities (IDD) and their families through innovative programs. Our initiatives touch almost every aspect of life in the community. By sharing our knowledge and conducting trainings and events, our programs help connect communities and inform efforts to broaden inclusion across the country.

Population(s) Served
People with disabilities
Caregivers
Families of choice
Children
Adolescents

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of new advocates recruited

This metric is no longer tracked.
Totals By Year
Related Program

General Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Decreasing

Number of people influenced to undertake conservation action

This metric is no longer tracked.
Totals By Year
Related Program

General Programs

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

MISSION The Arc's mission is to promote and protect the human rights of people with intellectual and developmental disabilities and to actively support their full inclusion and participation in the community throughout their lifetimes. THE PEOPLE WE SERVEThe Arc is ""for people with intellectual and developmental disabilities"" and is the only national organization that serves people with Intellectual Disability, Down syndrome, Autism Spectrum Disorder, Fetal Alcohol Syndrome and many, many other diagnoses, throughout their lifetimes in communities across the United States. The Arc also serves and support the entire family, including parents, siblings, grandparents and other family members, as well as supporting professionals in the field. There are more than 7 million people with I/DD in the U.S. LONG TERM GOALS The Arc's goals over the ten year period, 2010 - 2019, are to assure that: 1. Infants, children and youth with intellectual and developmental disabilities (I/DD) have access to the supports and services they need to live in their family homes, to succeed in school and to partake in all of the experiences of childhood. 2. Adults with I/DD have the opportunity to lead lives of their own choosing, free from poverty, to be employed, to reside in the community, and to live independently with ready access to whatever services and supports they need. 3. People with I/DD have the opportunity to participate in civic activities, volunteerism and community service, religion, arts, culture and recreation alongside their peers without disabilities. 4. Individual members of the public value, respect and accept people with I/DD as equal members of society. 5. Quality health education, health promotion and health care are widely available and accessible, enabling individuals to avoid known environmental causes of I/DD and to prevent secondary health problems for people with I/DD.

The Arc's 700+ chapters serve more than 1 million people with intellectual and developmental disabilities (I/DD) and their families. The following are The Arc's strategies for getting there: Goal 1 - Strategies for Infants, Children and Youth with I/DD. * Increase the availability of early intervention services in naturally occurring environments. * Increase the full inclusion of students with I/DD in schools. * Promote best practices in school-to-community transition. * Eliminate the use of seclusion and non-emergency restraint in schools. * Increase student involvement in developing their own Individualized Education Program(IEP). * Increase access to advocates to support people with I/DD, including parent advocates and youth self-advocates. Goal 2 - Strategies for Adults with I/DD. * Increase opportunities for integrated employment at fair wages, and self-employment. * Build the capacity of businesses to employee people with I/DD.. * Identify and promote best practices in services and supports for people with I/DD relating to housing, employment and community participation. * Increase the availability of affordable, accessible rental housing and home-ownership, as well as supported and independent living* Increase access to personal supports. * Replace state institutions with community based services and supports. * Support self-determination and self-advocacy. * Rebalance the Medicaid program so that home and community based services and family support are readily available. * Improve basic income support systems to reduce the incidence of poverty. Goal 3 - Strategies to Promote Civic Participation for People with I/DD. * Build the capacity of civic, religious, and other organizations to include people with I/DD in their programs and activities.* Increase voting and participation in the political process. * Increase the availability of family support and respite services. Goal 4 - Strategies to Promote Acceptance and Respect for People with I/DD. * Publicize incidents of bigotry, discrimination, and victimization of people with IDD. * Engage in testing to identify discriminatory practices in housing and employment * Increased public awareness of people with I/DD, their needs issues and concerns, and showcase their positive role and contributions.* Monitor the media and promote more accurate, respectful and positive coverage.* Educate of legal and law enforcement officials, teachers, clergy, and others to well serve people with I/DD. * Educate people with I/DD and their families about how to protect their civil rights. Goal 5 - Strategies for Health Promotion for People with I/DD* Educate the public to avoid environmental agents known to cause I/DD. * Increase access to medical, dental, and mental health care, including making health insurance universally available. * Build the capacity of health care professionals to serve people with I/DD.

The 700+ chapters of The Arc provide the means to achieve our mission of service for people with intellectual and developmental disabilities (I/DD) and their families. Local chapters are on the front lines providing individual advocacy, programs, services and supports. Their work touches on all aspects of community life, including education, employment, health care, housing, recreation and more. The Arc serves more than 1 million people with I/DD and their families at more than 2,300 locations, while also advocating on behalf of the entire universe of more than 7 million people with I/DD in the U.S. Promoting Best Practices The Arc is the nation's largest provider of services and supports for people with I/DD, including advocacy services. Each chapter is a separate 501(c)(3) tax-exempt nonprofit. The national office advances their work by promoting best practices in programs, services and supports for people with I/DD, as well as in nonprofit governance and management. Support is provided online through websites, blogs and social media, as well as through conferences, meetings, conventions, webinars and one-to-one technical assistance. Federal Public Policy AdvocacyThe Arc's federal public policy advocacy protects and promotes the rights of people with I/DD and provides the resources they need to fully participate in community life. The Arc has a detailed Public Policy Agenda to guide our work on federal policy issues. In addition to influencing policy developments within the executive and legislative branches of government, The Arc participates in court cases when needed as a ""friend of the court."" State Public Policy Advocacy State and local chapters of The Arc engage in both individual advocacy and public policy advocacy at the state and local level. The national office supports their work by building a knowledgebase and sharing information among and between chapters, coordinating national strategies for state policy reforms, informing chapter leaders about the latest policy developments, and training chapter volunteers and staff leaders. Research and InnovationThe Arc also works to translate theory and knowledge into practice through cooperative working relationships with individual researchers and research institutions, including the university centers on disability. The Arc marshalls data, information and research from available sources, and supports or sponsors additional research where needed to fill gaps or further inform strategy and action. Communications and Public Education The Arc educates the public about the needs, issues and concerns of people with I/DD and their families. We provide timely, credible and accessible information to opinion leaders, decisionmakers and members of the public through websites, social networking sites, radio, television, print and other media, as well as through the communications channels of our extensive network of state and local chapters.

The following are selected accomplishments in 2011 & 2012. Full copies of the Strategic Framework for the Future of The Arc progress reports are available on The Arc's website, www.thearc.org.
Goal 1: Accomplishments for Infants, Children and Youth with I/DD.
-Successfully advocated for Medicaid, Supplemental Security Income and Social Security disability programs to be
held harmless in the federal budget.
-Funded 55 pilot sites focusing on transition to post-secondary education and employment, and maximizing
self-determination in transition planning.
-Autism NOW National Autism Resource and Information Center launched new interactive website features. Overall,
the program reached more than 2.8 million people.
Goal 2: Accomplishments for Adults with I/DD.
-Advocated to preserve the Work Incentives Planning Assistance and Protection and Advocacy for Beneficiaries of
Social Security programs.
-eXplore eRecycling Project provided grants to ten sites to identify and pilot employment opportunities for people with
I/DD in e-recycling.
-Convened ad hoc work group on increasing employment of people with I/DD in federal government.
-Successfully advocated for extension of the Work Opportunity Tax Credit.
-Began development of new Justice and Disability Project.
-Successfully advocated for reforms to the Section 8 Housing Choice Voucher program.
-Established new National Council of Self-Advocates.
-With the University of Minnesota, launched new interactive website for self-advocates. www.selfadvocacyonline.org.
Goal 3: Accomplishment Promoting Civic Participation by People with I/ DD
-Advocated for the U.N. Convention on the Rights of Persons with Disabilities.
-We've Got the Power – developed and implemented non-partisan election year activities
-Published comparison of the 2012 Democratic and Republican party platforms on disability issues.
-Co-sponsored National Forum on Disability Issues for 2012 Presidential candidates.
Goal 4: Accomplishments Promoting Acceptance and Respect for People with I/DD
-Issued 30 press releases on issues and concerns of people with I/DD.
-Launched The Arc Audi Racing Program, with events featuring self-advocate participating on pit crew of professional
race team.
-White House Community Leaders Briefing - organized briefing
for 150 chapter leaders, including visit by President Barack Obama.
-Launched new Autism NOW YouTube series and Autism Awareness Month kit.
-Launched new blog, www.wearethearc.org, featuring state and
local chapters of The Arc.
-Launched The Arc & Sprout Disability Film Festival - 15 national
film festival events held in 2012.
Goal 5: Accomplishments Promoting Health for People with I/DD.
-Launched HealthMeet, new project which will pilot health screening, health education and health professional
education at multiple sites throughout the U.S.

Financials

The Arc of the US
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

The Arc of the US

Board of directors
as of 06/07/2023
SOURCE: Self-reported by organization
Board chair

Mr. Ken Oakes

Ken Oaks

Chestnut Hill College

Grace L. Francis

George Mason University

Hugh M. Evans, III

Independent Venture Capitalist

Laura Kennedy

New York State Arc

Meghan Burke

Dena Gassner

Jasmine Harris

Debbi Harris

Burt Hudson

Stacy Kray

Guha Krisnamurthi

Russell Lehmann

Chloe Rothschild

Mitch Routon

Meredith Sadoulet

Karen Shoemaker

Kathleen Stauffer

Chris Stewart

Faye Tate

Jose Velasco

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 6/7/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

No data

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

Equity strategies

Last updated: 06/07/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.