Disease, Disorders, Medical Disciplines

National Multiple Sclerosis Society HQ

Mission

People affected by MS can live their best lives as we stop MS in its tracks, restore what has been lost and end MS forever.

Ruling year info

1947

Principal Officer

Cyndi Zagieboylo

Main address

733 Third Avenue 3rd Floor

New York, NY 10017 USA

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EIN

13-5661935

Cause area (NTEE code) info

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Client Programs

Programs facilitate education, recreation, physical and emotional wellness, and connection with others.

Population(s) Served
People with diseases and illnesses

Support more than 380 research projects around the world aimed at stopping MS in its tracks, restoring function, and ending the disease forever.

Population(s) Served
People with diseases and illnesses

Where we work

Charting impact

SOURCE: Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

What is the organization aiming to accomplish?

Our Strategic Plan is focused on four impact areas, which describe what the world will be like for people with MS in 2021: 1) Ensure Comprehensive High-Quality Healthcare, 2) Empower People affected by MS to Solve Everyday Challenges, 3) Deliver Breakthroughs to a Cure, and 4) Expand Resources and Reach.

Several strategies drive the Society's work through 2021 including: 1) Accelerate research, 2) Advocate to improve lives, 3) Provide resources, connections and support, 4) Maximize capacity and effectiveness, and 5) Achieve $1 billion Breakthrough MS fundraising campaign

We mobilize volunteers, staff, organizations, and communities to develop resources and deepen connections and action, including donor engagement at all levels. We facilitate worldwide research, scientific collaboration and training while creating connections to the resources, information and others so that people can live their best lives as we work to end MS forever. We engage people in local, state and national advocacy to ensure that decision-makers are fully informed, and we equip staff and volunteers with the tools, technology and training to work most effectively. We ensure an inclusive and powerful culture that compels people to be leaders in the MS movement as we engage the world in achieving a world free of MS.

The Society tracks and measures several metrics that indicate progress against our plan and expected impact, including the following leading indicators: • Advances in legislation, health policy, and the healthcare professional workforce • Increased access to comprehensive high-quality, affordable healthcare as reported by people with MS • More individuals and families are connected to information, resources and communities of support, resulting in positive life changes • People report increased confidence and success in addressing MS challenges • The Society is recognized as an essential and trusted partner and source of support • International consensus on pathways to a cure • Solutions that help all people with MS live better — with new and better treatments, symptom management interventions and wellness approaches • Achieve our $1 billion Breakthrough MS campaign goal — driving special events, growing individual giving and continuously innovating and improving • Increased awareness of how MS impacts people and of the work of the National MS Society • Volunteers and staff are highly engaged and achieve annual objectives

• The National MS Society protects and expands access to affordable, high-quality healthcare – engaging 300+ District Activist Leaders, 80,000 MS Activist Network members and insights from health policy research. • The National MS Society is relentless in ensuring all decision-makers are clear about the financial devastation that the high cost of medications can cause – a complex problem that requires all stakeholders coming together to solve. • The National MS Society has launched the careers of 120 MS specialists who provide care to more than 100,000 people with MS. • The National MS Society tackles the complex challenges of MS from many angles, like MS Navigator for individual solutions, advocacy to create systemic change and lifestyle research to inform what people can do every day to live their best lives. • People affected by MS are more resilient and live better lives when they are connected with the National MS Society. • In the United States, 100% of people affected by MS have access to an MS Navigator who will partner with them to address individual challenges and concerns. MS Navigators spend 3.5 hours on average working with each person, and care management is available when problems are so complex they require home visits. • Over 500,000 of the nearly 1 million people living with MS in the United States are connect to the National MS Society. • People who participate in National MS Society programs live better lives – they are less isolated, better informed and happier. • The National MS Society has invested in early research that has led to the discovery of every effective treatment for MS, including the first therapies for primary progressive and pediatric MS. • The National MS Society leads a global effort to end progressive MS, with 16 countries and an investment of $26 million to-date to accelerate the pace of progressive MS research. • The National MS Society has provided early career support and funding to nearly every recognized MS expert. • The National MS Society is the catalyst for major advances in MS, convening thought leaders and leveraging funds through partnerships and advocacy – including more than $51 million through the MS Research Program in the Department of Defense and $69 million through the Patient Centered Outcomes Research Institute. • We raise more than $107 million through Bike MS, the No 1 Bike event in the nation, and Walk MS, the 15th largest event in the nation. • More than 1 million followers across Facebook, Instagram, Twitter and LinkedIn drive action, awareness and engagement. • More than 40,000 activists across the country have united to secure an additional $25 million in government research funding over the last six years.

Financials

National Multiple Sclerosis Society
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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This organization has no recorded board members.

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Keywords

multiple sclerosis, MS, NMSS, National MS Society, National Multiple Sclerosis Society