myFace

myFace offers the gift of confidence and hope to children and adults with craniofacial conditions and their families by ensuring them access to cutting-edge care from the world-class practitioners of The myFace Center for Craniofacial Care at NYU Langone Health.

The myFace Center provides integrative, highly specialized and personalized team care. It is staffed with leading experts in every facial anomaly, and every member of the attending staff holds NYU School of Medicine academic appointments. Embracing a team approach, specialists meet weekly to evaluate patients with complex problems and formulate comprehensive treatment plans.

The myFace Center includes the most comprehensive psychosocial team of any craniofacial center in the US. Complementing the medical and dental care provided to patients, these psychosocial services include: speech therapy sessions and consultations, nutrition consultations, psychosocial assessments, psychological evaluations.

It is this comprehensive approach that makes The myFace Center one-of-a kind and the gold standard for craniofacial care.

Ensuring that individuals impacted by craniofacial differences and family members across the country have a place to turn for support is critical to the work of myFace. Parent (Spanish and English), Prenatal Parent, Adult, and Adolescent support groups are a cornerstone of the help myFace offers to the craniofacial community. These support groups are offered virtually and meet regularly throughout the month. They are designed to provide guidance, counsel and community for those living with craniofacial conditions and their families. They provide an environment where participants can feel safe, hopeful, and never alone.

, myFace is providing Newborn Craniofacial Care Kits are distributed to families in need through partner hospitals across the country. The kits to contain items parents will need for their child in the first weeks of life. This free kit contains items such as a layette, baby carrier wrap, diapers, socks, creams, wipes, and Dr. Brown’s bottles and pacifiers, specially designed for cleft babies. In addition to the normal stresses of a newborn, parents with a craniofacial baby have so much more to navigate, including breathing and feeding issues. This important program helps to take one worry off the minds of new parents with a child impacted by a craniofacial difference. myFace aims to be a resource for these parents and helps to assure them they are not alone.

Harnessing the power of technology to reach as many people as possible, myFace has developed a special webinar series that presents a range of topics directed towards individuals and families. It is a public facing, free program focused on educating the craniofacial community nationwide, with topics such as, the importance of craniofacial team care, prenatal counseling, navigating the insurance landscape, and the importance of psychosocial care. These one-hour webinars feature experts in their fields. Viewers also have the opportunity to ask the expert panel live questions after the presentation. All webinars are archived on myFace.org so individuals and families can access this important educational resource whenever they need.

With statistics showing that 1 in 4 kids in the US say they’ve been regularly bullied at school, the need to promote empathy and kindness and teach acceptance is more important than ever before. The myFace Wonder Project’s pro-compassion English Language Arts Curriculum is based on the best-selling book, Wonder, by R.J. Palacio.
During in-school assemblies, students learn about craniofacial differences and how to be kind. They then are encouraged to develop and launch their very own acts of kindness campaigns in their communities. Students hear personal stories of those with facial differences and learn about respect for others. Participating in this project provides students an opportunity for growth both inside the classroom and beyond. The aim is to move students towards creating positive change in the world and to celebrate the uniqueness of others.