Cerebral Palsy Foundation, Inc.

Changing What's Possible for People with Cerebral Palsy

aka CPF   |   New York, NY   |  www.yourcpf.org

Mission

The Cerebral Palsy Foundation is working to transform the lives of people with cerebral palsy today through research, innovation and collaboration.

Ruling year info

1957

Chair of the Board of Directors

Ms. Michelle Kassner

Main address

3 Columbus Circle 15th floor

New York, NY 10019 USA

Show more contact info

Formerly known as

United Cerebral Palsy Research & Educational Foundation, Inc.

EIN

13-6093337

NTEE code info

Alliance/Advocacy Organizations (E01)

Alliance/Advocacy Organizations (G01)

Public, Society Benefit - Multipurpose and Other N.E.C. (E99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The Cerebral Foundation (CPF) is a not for profit 501(c)3 organization with the mission to be a catalyst to create positive change for people with Cerebral Palsy and related disabilities.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Early Detection and Intervention

Improving outcomes for children with Cerebral Palsy through earlier diagnosis through a national network with the goal of implementing enhancements to clinic systems and provider practices that support emerging evidence-based tools for the prediction of developmental differences and improvement of access to evidence-based services in high risk infants.

Population(s) Served
Families
People with disabilities

Our Just Say Hi in the Schools initiative teaches children to break down stereotypes, start conversations and create meaningful relationships with children who are different from them leading to improved outcomes, self confidence, inclusion and student perceptions.

Population(s) Served
Children and youth

The Cerebral Palsy Foundation Virtual CP Center is a vibrant, evolving online international resource designed to support patients, families and professionals around the world with the best available evidence, thinking and information regarding treatments and interventions for Cerebral Palsy. The Virtual CP Center will inform, connect and empower all stakeholders about a broad range of topics relevant to the CP population.

Population(s) Served
People with disabilities
Families

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of conference attendees

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Related Program

Early Detection and Intervention

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Cerebral Palsy Foundation's annual Implementation of Early Detection and Intervention of Cerebral Palsy Conference.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our objective is to identify ways to use implementation science and knowledge translation more effectively to improve lives. Overall, the Cerebral Palsy Foundation is focused on four key areas including healthcare, education, advocacy, design and technology.

Our "networks of change" are designed to identify and tackle big problems like the importance of diagnosing cerebral palsy earlier so that interventions can be started faster and lives improved. We are committed to creating implementation networks that connect researchers, practitioners and administrators with individuals with cerebral palsy and their families to drive best possible outcomes.

Since our founding in 1955, CPF has contributed more than $40 million to support over 250 projects in the biomedical, clinical and implementation sciences. CPF's community engagement has increased exponentially in the past few years. To date, our videos have been viewed over 75 million times. Our social media audience has grown to over 150,000 across all our platforms and we have received nearly $10 million in free media support.

Our priority for 2020 has been expanding and ensuring the success of our key initiatives. In July 2020 we officially launched “Cerebral Palsy Resource” www.cpresource.org the first comprehensive online resource hub in the world providing the latest evidence, information, and support for people with CP and their families.

Additionally, we have continued to grow our partnership with the New York City Department of Education to implement our innovative “Just Say Hi” program – a diversity and inclusion K-12 program which we have now brought virtual in this school year.

We have also focused on identifying new partners in our key focus areas. In early 2020, we established a new design partnership with Lexus that included a national advertising campaign. We also merged with a large pediatric cerebral palsy family education and advocacy nonprofit organization in 2019 (Reaching for the Stars), providing more ability to strengthen our advocacy and family network efforts on behalf of people with cerebral palsy.

In order to fulfill our mission to be a catalyst to create positive change for people with Cerebral Palsy and related disabilities we will continue to focus on four key areas including healthcare, education, advocacy, design and technology.

Financials

Cerebral Palsy Foundation, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Cerebral Palsy Foundation, Inc.

Board of directors
as of 4/7/2021
SOURCE: Self-reported by organization
Board chair

Ms. Michelle Kassner

No Affiliation

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 12/08/2020

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 03/02/2020

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.