Cystic Fibrosis Foundation

aka Cystic Fibrosis Foundation - Minnesota/Dakotas   |   Minneapolis, MN   |  www.cff.org
This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.

Mission

THE MISSION OF THE FOUNDATION IS TO ASSURE THE DEVELOPMENT OF THE MEANS TO CURE AND CONTROL CYSTIC FIBROSIS AND TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH THE DISEASE

Ruling year info

1957

Principal Officer

Molly Boyum

Main address

100 North Sixth St Ste 604A

Minneapolis, MN 55403 USA

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EIN

13-6161105

NTEE code info

Birth Defects (G20)

IRS filing requirement

This organization is required to file a group return with the IRS.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION - TO BROADEN ITS REACH AND TO SUPPORT ITS MISSION, THE CYSTIC FIBROSIS FOUNDATION HAS PROGRAMS DESIGNED TO IMPROVE THE KNOWLEDGE OF CYSTIC FIBROSIS PATIENTS AND THEIR FAMILIES, MEDICAL PERSONNEL AND THE GENERAL PUBLIC REGARDING THE DISEASE MORE THAN 20 PUBLICATIONS AND 3 WEBCASTS FOR PATIENTS, THEIR FAMILIES, AND MEDICAL PROFESSIONALS WERE PRODUCED AND MADE AVAILABLE IN 2007.

Population(s) Served

COMMUNITY SERVICES - TH CYSTIC FIBROSIS FOUNDATION PROVIDES YEAR-ROUND EFFORTS TO EDUCATE, INFORM AND EMPOWER PATIENTS AND THEIR FAMILIES ABOUT THE LATEST DEVELOPMENT IN TREATMENT AND CARE BY CALLING (800) FIGHT CF AND BY VISITING WWW.CFF.ORG, FACT SHEETS, PUBLICATIONS AND VIDEOS MAY BE DOWNLOADED ON DEMAND

Population(s) Served

MEDICAL PROGRAMS- THE CYSTIC FIBROSIS FOUNDATION HAS 80 OFFICES IN 39 STATES THAT HELP TO COMMUNICATE AND DISTRIBUTE INFORMATION ABOUT SCIENTIFIC STUDIES AND INVESTIGATIONS, CYSTIC FIBROSIS CENTERS AND OTHER MEDICAL PROGRAMS

Population(s) Served

Where we work

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Financials

Cystic Fibrosis Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Cystic Fibrosis Foundation

Board of directors
as of 6/1/2016
SOURCE: Self-reported by organization
Board chair

Catherine C. McLoud

CFF

Frank Fleming Trustee

Susan Hook Vice Chair

David Mount Trustee

Doris Tulcin Chairman Emeritus (Non-voting)

Charles Thayer Vice Chairman

Frank Accurso Med Advisory Council Chair

Richard Dandurand Vice Chairman

Catherine McLoud Chair

Robert Beall President & CEO

Amy Weinberg Trustee

Richard Gwinn Trustee

Vera Twigg Sr VP & CFO

C Mattingly Sec, Exec VP & COO

Donald Wood Trustee

Gray Sabin Executive Vice Chairman

Milton Graub Chairman Emeritus (Non-Voting)

Amy Barry Leadership Council Chair

KC White Trustee

Barry Gump Trustee

Theodore Torphy Trustee

Frank Deford Chairman Emeritus (Non-voting)

J Crandall Trustee

Steven Shak Trustee

Chad Moore Treasurer

Preston Campbell Exec VP for Med Affairs