Programs and results
What we aim to solve
No family is prepared to hear the word, "your child has cancer."
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Family Support Program, encompassing emotional, financial and advocacy support
No one is prepared to hear the words, “Your child has cancer.” What would you do? Where would you turn for help? That’s why NY Tri-State families need Friends of Karen for support when their child is facing a life-threatening illness. Our model is a blend of strategic financial assistance, supportive counseling and illness education
Gifts For Children
Birthdays, Back to School, and Holidays. Parents of a child with a catastrophic illness shouldn't be forced to choose between caring for their children or buying them gifts. Our gifts program eases that burden for the ill child and siblings alike.
Sibling Support
A family’s world is turned upside down the moment they learn their child has a life-threatening illness. The stresses of living with a seriously ill sister or brother can cause a variety of reactions in children. Since 2009, Friends of Karen has been helping siblings to understand their sister’s or brother’s illness and to build personal strength. At the hospital or in a family’s home, our experienced child life specialists and creative arts therapists work one-on-one with the ill child, with siblings and with parents.
Back to School
Each year, we gather, pack up and ship school supplies to 850+ Friends of Karen children and their siblings. We ask parents to send in their child's school lists and we work from those fulfilling them exactly as requested.
A Pathway of Compassion and Hope
Friends of Karen is creating a pathway of loving messages from all of our supporters and families. In celebration of our 40th anniversary, each brick will speak to the belief that no family should face their child's illness alone.
We invite you to participate in this inaugural fundraising opportunity and leave a lifetime legacy of your support. The bricks will be engraved with your personal message and placed outside Friends of Karen headquarters, located in North Salem, NY. You’ll also receive a small replica keepsake brick with your message, perfect for displaying. For more information, Contact Gabriella at [email protected] or at 914-617-4047
Where we work
External reviews

Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Saving families is at the heart of Friends of Karen's work, so no matter what the outcome of the child's illness, the family members can go on to lead productive and healthy lives. Our immediate aim is to keep a family stable, functioning and able to cope when the ill child is in treatment.
What are the organization's key strategies for making this happen?
• We provide our assistance – at no cost – from diagnosis through treatment, for periods that can range from a few months to many years; tailor our financial and emotional support to meet each family’s individual needs; recognize the special needs of siblings – and offer individualized interventions to help them cope with the illness’ impact on their life.
• Every family receives the support of an experienced and caring Friends of Karen social worker for the trajectory of the child’s illness who will travel to the family’s home (or child’s hospital room) to accommodate their difficult schedule, provide easier access to our services, and gain a deeper understanding of a family’s situation.
• We help maintain family functioning by:
o Educating family members about the illness;
o Providing anticipatory guidance (to help family members anticipate the challenges they will face in their employment/family/social and financial life – and in school); and,
o Helping family members communicate with each other about the illness and with other important people in their lives.
• We offer culturally and linguistically-sensitive guidance to our Spanish (and other non-English) speaking families to help them understand the illness, access available services, and improve communication with doctors and the medical community.
Every family is assessed individually. We consider many factors in determining the most effective way to assist a family financially, including the child’s diagnosis, length of treatment, the distance from their treatment center, single parent status, and available financial resources, among others. After this careful review and discussion with the parent/guardian, we then may agree to cover some household expenses and/or illness related expenses, including, but not limited to the following:
• Rent/mortgage,
• Utilities (heat, electricity, telephone)
• Food expenses
• Ill child's medical expenses not covered by insurance
• Medically necessary illness expenses such as eyeglasses, wigs, air conditioners, wheel chairs, even beds and mattresses
• Travel to the hospital/clinic, covering mileage, taxi, etc.
• Childcare for siblings and the ill child
• Health insurance/COBRA
We consider other financial assistance for which the family may qualify and will assist them in applying. Once we achieve the goal of stabilizing a family, our financial support may be reduced or, in some instances, may be increased depending on the child’s condition. The social workers stay in touch with their families so they can respond accordingly to their changing needs and the organization’s available financial resources. Friends of Karen’s financial assistance is dependent on many variables, but we are confident that our help is consistent and fair across the many families we support during their child's illness.
What are the organization's capabilities for doing this?
Friends of Karen started in 1978 with one ill child (16-year-old Karen MacInnes) and one visionary founder (Sheila Petersen). Sheila's goal was to help families of critically ill children with the vital emotional and financial support they need to emerge from their health crisis stable and whole. She succeeded brilliantly.
For 41 years, Friends of Karen has been a beacon of help and hope to more than 16, 300 children (both ill children and their well siblings) in the New York Tri-State region, and their families. Our guide star is Sheila Petersen's oft-quoted maxim, "When the parents of a terminally or catastrophically ill child receive financial and emotional help, they then have more time to love..."
Our work is unique: Friends of Karen is the only organization in New York, New Jersey and Connecticut that helps families cope with their child’s cancer or other life-threatening illness, from diagnosis through treatment, a process that can last months or even years. And we provide a remarkable depth and breadth of palliative psychosocial services at no cost to families, another unique feature of Friends of Karen.
In 2018, we assisted 631 families, encompassing 586 ill children, 914 siblings (and bereaved families who continue to receive active support) with vital assistance.
Friends of Karen has practiced for 40 years what has now been declared the standard of psychosocial care for pediatric cancer patients and their families. The importance of our work was reaffirmed in 2015 with the publication of “Standards for Psychosocial Care for Children with Cancer and Their Families.” This was a seminal moment for us. These standards confirmed that to address childhood cancer as a disease that is as much a psychological disease as it is a physical one, and that children and families need help managing -- the day-to-day isolation, emotional pain, treatment challenges and frustrating restrictions on their daily life. These are the very issues Friends of Karen has addressed since its inception and it is gratifying to see the field has followed the path we blazed. Today, we continue to provide these services with a high level of effectiveness in meeting the needs of parents and children facing a life threatening illness.
Our 28-member staff – 17 full time and 11 part time – includes licensed, experienced and compassionate social workers, child-life specialists and expressive-arts therapists, as well as hundreds of volunteers who provide a wealth of services and support.
What have they accomplished so far and what's next?
What started with one child in one family has grown rapidly. Today, Friends of Karen has served 6,669 ill children and 9,651 siblings = 16,320 children (thru 9.30.19) since the organization's inception
Priorities for 2020
The Friends of Karen Board of Directors has identified three priority areas of focus for the next few years. They include:
• Infrastructure needs to support Friends of Karen today and for future growth, including the North Salem office, upgraded technology and technical expertise;
• Deepening services for families in a variety of ways, as well as increasing direct financial support to families;
• Increasing our public presence which will be integral to achieving the above.
They determined these priorities through a focus group with Friends of Karen’s family support team of professionals, a survey of all staff, and an in-depth retreat among the Board of Directors. A sub-group of the Board is preparing a business plan to address each of these priority areas that will be presented to the full Board of Directors at their meeting in late March.
Over the past year, Friends of Karen has intentionally strengthened its Board of Directors by adding six (6) new members, each with an area of expertise (in finance, technology, business, human resources and more) and leadership capacity that will support the growth and future success of the organization. Ultimately, our goal is to help more families that need our support and deepen services where there are no other resources available.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Friends of Karen, Inc.
Board of directorsas of 02/22/2022