GOLD2022

ESOPHAGEAL CANCER EDUCATION FOUNDATION INC

Heartburn can cause esophageal cancer

aka ECEF   |   Manalapan, NJ   |  www.fightec.org

Mission

The Esophageal Cancer Education Foundation (ECEF) is a 501(c) 3 non-profit organization founded in 2003 by Bart Frazzitta, an esophageal cancer survivor, and his wife Ginny. ECEF has 3 main Missions: 1. To raise awareness and educate the public and medical community about this disease. https://www.youtube.com/watch?v=GQ4qFYq3rSg 2. To walk the journey with patients who have this disease. We have conference call support groups for patietns who have undergone the esophagectomy surgery 3. To support research projects in search of an early warning test for this disease and a cure of this disease. Over 90% of the revenue we received, verified by our Audited Financial Statement, goes to research and patient programs

Ruling year info

2004

Principal Officer

Mr. Bart Frazzitta

Co Principal Officer

Virginia Frazzitta

Main address

PO BOX 821 Attn: Bart Frazzitta

Manalapan, NJ 07726 USA

Show more contact info

EIN

20-0138827

NTEE code info

Health Support Services (E60)

Health Support Services (E60)

Health Support Services (E60)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Getting surgeons to recognize that the patient advocates involvement in talking to patients on a pre-surgery basis will have a positive effect on the patients outcome.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Support Group Meetings

Monthly conference call support groups are held to allow patients who have been through the esophageal cancer surgery to talk with other patients from other parts of the country that are experiencing post surgical issues.

Population(s) Served
People with diseases and illnesses
Caregivers

We are available to answer and quality of life questions through a 24 hour hot line. In addition we can provide patients who are juts starting their esophageal cancer journey with the name of surgeons in their area that have performed esophageal cancer surgeries.

Population(s) Served
People with diseases and illnesses

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of death caused by cancer

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of support groups offered

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

Support Group Meetings

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To bring awareness to the public about this disease
To keep administrative expenses to less then 10% of donations each year
To be available for esophageal cancer patients quality of life questions 24/7

We want to increase our activity on our web site so we have begun a blog and we intend to post articles on average 2 times a month. We plan to visit or speak to Senior adult communities as esophageal cancer is most active on male adults over 45 years of age. We plan to work with various organizations to reach surgeons who perform esophagectomy surgeries to let them know of the services we can provide to their patients at no cost to the patient or them

This doesn't require a staff to be effective with what we plan to achieve . Our volunteer executive committee can handle what we hope to achieve in the coming year

Our executive committee is developing a plan for the Foundation. This plan will have assignments and quarterly meeting to address the progress being made and the plan for the next reporting period.

Financials

ESOPHAGEAL CANCER EDUCATION FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

ESOPHAGEAL CANCER EDUCATION FOUNDATION INC

Board of directors
as of 05/24/2022
SOURCE: Self-reported by organization
Board chair

Bart Frazzitta

Retired

Bart Frazzitta

President &CFO

Virginia Frazzitta

Vice Presidnet

Scudder Fowler

Board Member

Phil Alongi

Board Member

Jenine McNamara

CFO

Jennifer DeBiasae

CIO

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 5/24/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/United States
Gender identity
Male
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/ United States
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data