ESOPHAGEAL CANCER EDUCATION FOUNDATION INC
Heartburn can cause esophageal cancer
Mission
The Esophageal Cancer Education Foundation (ECEF) is a 501(c) 3 non-profit organization founded in 2003 by Bart Frazzitta, an esophageal cancer survivor, and his wife Ginny. ECEF has 3 main Missions: 1. To raise awareness and educate the public and medical community about this disease. https://www.youtube.com/watch?v=GQ4qFYq3rSg 2. To walk the journey with patients who have this disease. We have conference call support groups for patietns who have undergone the esophagectomy surgery 3. To support research projects in search of an early warning test for this disease and a cure of this disease. Over 90% of the revenue we received, verified by our Audited Financial Statement, goes to research and patient programs
Ruling year
2004
Principal Officer
Mr. Bart Frazzitta
Co Principal Officer
Virginia Frazzitta
Main address
PO BOX 821 Attn: Bart Frazzitta
Manalapan, NJ 07726 USA
EIN
20-0138827
NTEE code
Health Support Services (E60)
Health Support Services (E60)
Health Support Services (E60)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
Sign in or create an account to view Form(s) 990 for 2020, 2019 and 2018.
Register now
Communication
Programs and results
What we aim to solve
Getting surgeons to recognize that the patient advocates involvement in talking to patients on a pre-surgery basis will have a positive effect on the patients outcome.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Support Group Meetings
Monthly conference call support groups are held to allow patients who have been through the esophageal cancer surgery to talk with other patients from other parts of the country that are experiencing post surgical issues.
24 Hour Hot Line
We are available to answer and quality of life questions through a 24 hour hot line. In addition we can provide patients who are juts starting their esophageal cancer journey with the name of surgeons in their area that have performed esophageal cancer surgeries.
Where we work
External reviews
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Evaluation documents
Download evaluation reportsNumber of death caused by cancer
This metric is no longer tracked.Totals By Year
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Number of support groups offered
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Related Program
Support Group Meetings
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
To bring awareness to the public about this disease
To keep administrative expenses to less then 10% of donations each year
To be available for esophageal cancer patients quality of life questions 24/7
What are the organization's key strategies for making this happen?
We want to increase our activity on our web site so we have begun a blog and we intend to post articles on average 2 times a month. We plan to visit or speak to Senior adult communities as esophageal cancer is most active on male adults over 45 years of age. We plan to work with various organizations to reach surgeons who perform esophagectomy surgeries to let them know of the services we can provide to their patients at no cost to the patient or them
What are the organization's capabilities for doing this?
This doesn't require a staff to be effective with what we plan to achieve . Our volunteer executive committee can handle what we hope to achieve in the coming year
What have they accomplished so far and what's next?
Our executive committee is developing a plan for the Foundation. This plan will have assignments and quarterly meeting to address the progress being made and the plan for the next reporting period.
Financials
Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more
about GuideStar Pro.
Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
ESOPHAGEAL CANCER EDUCATION FOUNDATION INC
Board of directorsas of 05/24/2022
Bart Frazzitta
Retired
Bart Frazzitta
President &CFO
Virginia Frazzitta
Vice Presidnet
Scudder Fowler
Board Member
Phil Alongi
Board Member
Jenine McNamara
CFO
Jennifer DeBiasae
CIO
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
-
Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
Thanks for signing up!
An email has been sent to the address you provided. Click on the link in that email to get more GuideStar Nonprofit Profile data today!
(Don't see an email in your inbox? Click here to resend it.)
GuideStar Pro Reports
Report successfully added to your cart!
Want more data?
A GuideStar Pro report containing the following information is available for this organization:
- Financial data for the most recent year (2020)*
- Financial statements for 2121, 2013
- Letter of Determination
- Officer and/or Employee data for 2020, 2019, 2018, 2017, 2016
- Contractor and/or Paid Preparer data for 2020, 2019, 2018
- Board of Directors data for 2022
- *with the ability to download the data for 2020, 2019, 2018, 2017, 2016
Download it now for $125.
Need the ability to download nonprofit data and more advanced search options?Consider a Pro Search subscription.