GOLD2024

Parkinson Research Foundation Inc

Education. Research. Service.

Sarasota, FL   |  parkinsonresearchfoundation.org

Mission

The MISSION of the PARKINSON RESEARCH FOUNDATION is to help find a cure for Parkinson’s disease through funding research, while providing education and services that improve the quality of life TODAY for Parkinson patients and their caregivers.

Ruling year info

2003

Chairman

Mr Lawrence S Hoffheimer

Main address

5969 Cattleridge Blvd Suite 100

Sarasota, FL 34232 USA

Show more contact info

EIN

20-0205035

NTEE code info

Human Service Organizations (P20)

Health (General and Financing) (E80)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The mission of the Parkinson Research Foundation is to help find a cure for Parkinson’s disease through funding research while providing ongoing education and free services that enhance the quality of life for Parkinson patients, caregivers, families, & the community supporting more than 1 million people throughout the U.S.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Parkinson Place

Parkinson Place comprehensive care center originally a 7500 sq. ft. site opened September 2012 offering 16 programs per month. Today it has expanded to 11,000 sq. ft. offering over 60 free educational and participation programs each month free to its members.  PARKINSON PLACE is dedicated exclusively to the physical, mental, emotional and social needs of those living with Parkinson’s disease. Offering special activities and social events that keep patients and caregivers engaged with life.  Programs are instructed by licensed professionals and experts in the field. All participation programs are ability based and can be performed standing or sitting in a chair so everyone can participate.  Open 9am - 4:30pm Monday through Friday, membership and classes are FREE.

Population(s) Served
Seniors
People with disabilities

Parkinson patients, caregivers and the health care professionals are  provided free and easy access to the latest in Parkinson research, treatment options and clinical advancments.  Parkinson Research Foundation maintains two  sophisticated websites. www.parkinsonresearchfoundation.org  focuses on current updates, research and education. www.parkinsonplace.org  offers awareness about local education and participation programs as well as special events. A comprehensive video library of classes and educational programs are available for viewing online.  Both site's  have an international reach and are visited  daily by Parkinson patients, caregivers, physicians, researchers and related healthcare professionals.

Population(s) Served
Seniors
People with disabilities

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

1. Increase awareness and fundraising efforts to sustain and grow current and future programs to better serve the Parkinson Community.
2. To initiate on-site clinical research studies to advance research into Parkinson's disease.

1. Increase community awareness by means of events, television commercials, and print ads in newspapers, onsite educational programs, and visits to independent living residences, primary care physicians, and other appropriate referral sources.
2. Work with movement disorders specialists, neurologists, psychologists, physical therapists, and case managers to develop potential research programs and studies.

• Creating Parkinson Awareness in the community.
• Initiating a strategy for research studies with physicians and researchers.
• Onsite physicians to fill research trials.
• Advocate for Scientific Research and the Rights of People with Parkinson’s

Accomplishments:

1. Full funding for Parkinson Place, an 8,000 square foot PRF Multidisciplinary Care Center in Sarasota, Florida

2. Ongoing empowerment, educational and support programs all lead by noted experts in the field for Parkinson patients, caregivers, and community.

3. Provide over eighty evidence and ability based participation programs to include six different exercise programs led by licensed and certified instructors.

4. Provide a sophisticated website and free video podcasts to better serve the Parkinson Community locally, nationally, and on an international level.

5. Provide ongoing educational conferences with faculty to include physicians and other noted experts in the field.

Financials

Parkinson Research Foundation Inc
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Parkinson Research Foundation Inc

Board of directors
as of 10/17/2024
SOURCE: Self-reported by organization
Board chair

Mr Lawrence Hoffheimer

Chairman and CEO Parkinson Research Foundation

Term: 2003 - 2045

Lawrence Hoffheimer

Chairman

Amy Carroll

Secretary

Donna Auger

Director

Linda Patterson

Treasurer

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Not applicable
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Not applicable
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 11/30/2023
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 11/30/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.