CURED NFP
Mission
CURED is a not for profit foundation dedicated to those suffering from Eosinophilic Gastrointestinal Diseases (EGID), including eosinophilic esophagitis (EoE), eosinophilic gastritis (EG), eosinophilic colitis (EC) and other eosinophilic disorders.
CURED is committed to raising substantial funding to aid in research, advocating on behalf of EGID patients and their families, and working to educate and increase awareness about this complex group of diseases. It is our heartfelt belief that CURED can make a difference for the individuals and their families who are touched by these diseases.
Ruling year
2004
President
Ellyn Kodroff
Executive Board Member
Scholeigh Kyle
Main address
2937 Bayberry Dr
Buffalo Grove, IL 60089 USA
EIN
20-0351832
NTEE code
Digestive Diseases/Disorders Research (H70)
Digestive Diseases/Disorders Research (H70)
Digestive Diseases/Disorders Research (H70)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
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Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Funding Medical Research
CURED funds medical research toward a better treatment and a cure
Education & Awareness
Bi Annual Patient Education/Research Conference
Development and maintenance of on-line website and print educational materials. News Letters
Social Media support groups
Education of healthcare providers at national conferences
Awareness and Fundraising Events
Television and News Paper articles
National Eosinophilic Awareness Week
Advocacy
CURED advocates in many different ways. We have helped with mandates for formula coverage in many different states. We help educate patients and families on getting reimbursed for formula coverage
Help patients with receiving a 504 or IEP for school aged children
Help patients find proper physicians and medical trials in their area
Bring patients together with other patients in their own areas to start support groups
Awareness
Spreading awareness to physicians, researchers and patients to lead to better diagnosis and treatments of these diseases.
Where we work
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of list subscribers
This metric is no longer tracked.Totals By Year
Population(s) Served
Health
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Number of individuals attending community events or trainings
This metric is no longer tracked.Totals By Year
Population(s) Served
Health
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Number of online groups served
This metric is no longer tracked.Totals By Year
Population(s) Served
Health
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Number of Facebook followers
This metric is no longer tracked.Totals By Year
Population(s) Served
Health
Related Program
Advocacy
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Total dollars received in contributions
This metric is no longer tracked.Totals By Year
Population(s) Served
Health
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Award grants to find a better treatment plan and a cure for Eosinophilic Diseases
Host CURED's 7th Bi annual Patient Education/Research Conference
Continue to work with the NIH and CEGIR to give patients perspective on all aspects of the disease.
Send out monthly news letter updating patients and physicians on the latest material on EGID's
Help states get the mandate for medical insurance
Take on new states to help with fundraising and support groups
What are the organization's key strategies for making this happen?
We will continue to fundraise to be able to fund as many research projects as possible.
We are securing the most knowledgeable Doctors and Researchers to educate patients at the CURED Conference
We work with patients and physicians and guide them on steps of getting the mandate for formula coverage passed
Continue to educate, advocate and encourage others to fund raise on every social media outlet
What are the organization's capabilities for doing this?
CURED is able to reach these goals because we work in collaboration with scientists, researchers and clinicians from all over the world to discuss and present eosinophilic research.
We have first hand experience in passing legislation on formula coverage. Therefore we are confident to be able to assist other states in obtaining legislation.
Our board member have a vast knowledge of what it is like to live with a family member with an EGID. Dealing with all aspects of the disease such as all school ages, living on a feeding tube, drinking formula, elimination diets, home schooling, college and after college are experiences we have lived through. These personal experiences help to assist families and patients.
What have they accomplished so far and what's next?
We have accomplished better treatments and diagnostic tools for Eosinophilic Disease by donation to 8 of the leading research hospitals in the US. We have continued to educate patients and researchers through our conferences and our website.
We have spread awareness the television news shows, newspapers and magazines.
We have connected patients with dr's and other patients all over the world.
We have not accomplished a cure for this disease and all those suffering.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
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CURED NFP
Board of directorsas of 12/01/2021
Ellyn Kodroff
CURED Nfp
Term: 2003 - 2032
Scholeigh Kyle
CURED Nfp
Term: 2011 - 2032
Mindy Kaplan
Sheryl Daugherty
Wendy Connell
Laurie Lucas
Charlene Glanz
Sheryl Grossman
Marcy Kahan
Cari Kroll
Shay Kyle
Kristina Mastrino
Lori Plotnick
Susie Rubenstein
Debbie Starr
Brandy Stiles
Sari Wiaz
Steve Ackerman
The University of Illinois at Chicago
Glenn Furuta
University of Colorado Denver Health Science Center
Nirmala Gonsalves
Northwestern University Feinberg School of Medicine
Amir Kagalwalla
University of Illinois (Chicago)
Philip Putnam
Cincinnati Children’s Hospital University of Cincinnati
Marc Rothenberg
Children’s Hospital Medical Center University of Cincinnati
Allisa Paliana
Adult EGID Liaison
Jill Meister
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
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