CURED NFP

aka CURED   |   Buffalo Grove, IL   |  www.curedfoundation.org

Mission

CURED is a not for profit foundation dedicated to those suffering from Eosinophilic Gastrointestinal Diseases (EGID), including eosinophilic esophagitis (EoE), eosinophilic gastritis (EG), eosinophilic colitis (EC) and other eosinophilic disorders.
CURED is committed to raising substantial funding to aid in research, advocating on behalf of EGID patients and their families, and working to educate and increase awareness about this complex group of diseases. It is our heartfelt belief that CURED can make a difference for the individuals and their families who are touched by these diseases.

Ruling year info

2004

President

Ellyn Kodroff

Executive Board Member

Scholeigh Kyle

Main address

2937 Bayberry Dr

Buffalo Grove, IL 60089 USA

Show more contact info

EIN

20-0351832

NTEE code info

Digestive Diseases/Disorders Research (H70)

Digestive Diseases/Disorders Research (H70)

Digestive Diseases/Disorders Research (H70)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Funding Medical Research

CURED funds medical research toward a better treatment and a cure

Population(s) Served

Bi Annual Patient Education/Research Conference

Development and maintenance of on-line website and print educational materials. News Letters

Social Media support groups

Education of healthcare providers at national conferences

Awareness and Fundraising Events

Television and News Paper articles

National Eosinophilic Awareness Week

Population(s) Served

CURED advocates in many different ways. We have helped with mandates for formula coverage in many different states. We help educate patients and families on getting reimbursed for formula coverage

Help patients with receiving a 504 or IEP for school aged children

Help patients find proper physicians and medical trials in their area

Bring patients together with other patients in their own areas to start support groups

Population(s) Served

Spreading awareness to physicians, researchers and patients to lead to better diagnosis and treatments of these diseases.

Population(s) Served

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of list subscribers

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of individuals attending community events or trainings

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of online groups served

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of Facebook followers

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Related Program

Advocacy

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Total dollars received in contributions

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Award grants to find a better treatment plan and a cure for Eosinophilic Diseases

Host CURED's 7th Bi annual Patient Education/Research Conference

Continue to work with the NIH and CEGIR to give patients perspective on all aspects of the disease.

Send out monthly news letter updating patients and physicians on the latest material on EGID's

Help states get the mandate for medical insurance

Take on new states to help with fundraising and support groups

We will continue to fundraiser to be able to fund as many research projects as possible.

We are securing the most knowledgeable Doctors and Researcher to educate patients at the CURED Conference

We work with patients and physicians and guide them on steps of getting the mandate for formula coverage passed

Continue to educate, advocate and encourage others to fund raise on every social media outlet

CURED is able to reach these goals because we work in collaboration with scientists, researchers and clinicians from all over the world to discuss and present eosinophilic research.
We have first hand experience in passing legislation on formula coverage. Therefore we are confident to be able to assist other states in obtaining legislation.
Our board member have a vast knowledge of what it is like to live with a family member with an EGID. Dealing with all aspects of the disease such as all school ages, living on a feeding tube, drinking formula, elimination diets, home schooling, college and after college are experiences we have lived through. These personal experiences help to assist families and patients.

We have accomplished better treatments and diagnostic tools for Eosinophilic Disease by donation to 8 of the leading research hospitals in the US. We have continued to educate patients and researchers through our conferences and our website.
We have spread awareness the television news shows, newspapers and magazines.
We have connected patients with dr's and other patients all over the world.

We have not accomplished a cure for this disease and all those suffering.

Financials

CURED NFP
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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CURED NFP

Board of directors
as of 11/13/2021
SOURCE: Self-reported by organization
Board co-chair

Ellyn Kodroff

CURED Nfp

Term: 2003 - 2032


Board co-chair

Scholeigh Kyle

CURED Nfp

Term: 2011 - 2032

Mindy Kaplan

Sheryl Daugherty

Wendy Connell

Laurie Lucas

Charlene Glanz

Sheryl Grossman

Marcy Kahan

Cari Kroll

Shay Kyle

Kristina Mastrino

Lori Plotnick

Susie Rubenstein

Debbie Starr

Brandy Stiles

Sari Wiaz

Steve Ackerman

The University of Illinois at Chicago

Glenn Furuta

University of Colorado Denver Health Science Center

Nirmala Gonsalves

Northwestern University Feinberg School of Medicine

Amir Kagalwalla

University of Illinois (Chicago)

Philip Putnam

Cincinnati Children’s Hospital University of Cincinnati

Marc Rothenberg

Children’s Hospital Medical Center University of Cincinnati

Allisa Paliana

Adult EGID Liaison

Jill Meister

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 11/13/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability