The Pilonidal Support Alliance

Cypress, CA   |  www.pilonidal.org

Mission

We provide articles, abstracts, pictures, surgical techniques and research to those wanting to know more about the condition. We also provide a web-based discussion group for exchange of ideas, information, experiences and a place for people to turn when they need reassurance. We have created a community that educates people and allowed them to become a full partner in their medical care.

Ruling year info

2004

Executive Director

Ms. Sandy Fischler

Main address

5089 Saratoga Ave

Cypress, CA 90630 USA

Show more contact info

EIN

20-1724899

NTEE code info

Alliance/Advocacy Organizations (G01)

Surgery (G9B)

Surgery (H9B)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Programs and results

What we aim to solve

SOURCE: Self-reported by organization

There is a significant amount of questionable information on causes and treatments across various Internet sites, our organization is dedicated to providing patients, doctors, and caregivers with the most factual information. The organization also provides a community resource discussion and patient-to-patient support. We want every patient to get treated quickly with minimal pain and life disruption.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Pilonidal Disease Information & Support

We provide information on treatment options and support from fellow patients.

Population(s) Served
Adults

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We aim to significantly increase the knowledge of doctors and patients on how to successfully treat Pilonidal Disease. We want to ensure that patients get the best possible treatment to resolve the disease and go on to lead healthy, happy lives.

Strategy #1: Provide a single top-tier recognized resource for factual data on treatments. (done and ongoing) Strategy #2: Provide an online forum for community interaction and patient-to-patient emotional support Strategy #3: Provide video training resources for doctors to learn newest techniques.

Capabilities exclusively digital and rest on the organizations's commitment to maintaining the online resource as well as building relationships with medical professionals around the globe to pioneer new treatment options and inform as many surgeons as possible on new techniques and theory. We are well equipped to handle these needs.

Our list of surgeons has increased by 50% since the organization began making an effort to outreach and teach new techniques to surgeons. Site traffic comes from all over the globe with specialty forums for residents of the UK and Scandinavian countries.

Financials

The Pilonidal Support Alliance
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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The Pilonidal Support Alliance

Board of directors
as of 9/7/2021
SOURCE: Self-reported by organization
Board chair

Sandy Fischler

Pilonidal Support Alliance

Term: 2004 -

Jayson Perry

John Bascom

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No