PLATINUM2023

Ryan House

Open Doors, Open Hearts

Phoenix, AZ   |  www.ryanhouse.org

Mission

Ryan House enriches the quality of life and creates cherished memories for children and their families, providing a much-needed break from 24/7 caregiving, as they navigate life-limiting or end-of-life journeys. An Arizona-based facility, Ryan House provides a loving community where children can truly be themselves and live their lives to the fullest in a safe, homelike environment. Children receive personalized, expert care provided by our prestigious care partners and highly trained clinical staff. In addition, the staff delivers emotional, spiritual, and social support for children and their families during some of the most challenging times of their lives.

Ruling year info

2005

Executive Director

Ms. Tracy Leonard-Warner

Main address

110 W Muhammad Ali Way 1st Floor

Phoenix, AZ 85013 USA

Show more contact info

EIN

20-1852393

NTEE code info

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

Pediatrics (G98)

Pediatrics (G98)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2020.
Register now

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Focusing on quality of life and continuity of care, our care team combines compassion with state-of-the-art care to guide children through their unique life-limiting or end-of-life journey while providing their whole family with peace, comfort, and support. Ryan House is developing a sustainable model of world-class caregiving that provides respite and palliative care for children and their families as they navigate life-limiting or end-of-life journeys. Our approach addresses the emotional, spiritual, and social needs of the family while also providing relief of the symptoms, pain, and stress associated with any serious illness. With the care provided by our prestigious care partners and highly-trained staff, we are able to foster a loving community that offers ongoing support and compassion from diagnosis to end-of-life.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Respite Care, Palliative Care and End-of-Life Care

Palliative Care
Pediatric palliative care is both a philosophy and method of care. It aims to holistically identify and alleviate the physical, psychosocial, spiritual, and emotional pain for both the child and the family. Its primary goals are to enhance quality of life, minimize suffering, optimize functions, and provide opportunities for personal growth.
Respite Care
Respite care is a gift of time; short-term overnight stays that help a family take breaks from the daily routine and stress of home care. Regular breaks for caregivers prevent family fatigue and breakdown. It is also designed to provide the child with a comfortable away-from-home experience, which is one way of normalizing the life of the child. Each child has the possibility of twenty-eight days per year of planned respite care at Ryan House at no cost to the family.
End-of-Life Care
Families with a child facing end-of-life receive supportive planning and care consistent with clinical, cultural, and ethical standards. Ryan House also provides parents or guardians and siblings with a loving and long term system of support and comfort.
Bereavement Care
Ryan House offers grief and bereavement support to families in a number of ways, including a personalized tile in the Memorial Garden for their child, support groups and family counseling through various programs, and a Treasured Memories bereavement box to families.
Life-Enhancing Therapeutic Activities
Certified child life specialists and trained volunteers provide expressive, play-based activities that address the isolation, pain, and fear children and their siblings face, as well as fun, normative child and family experiences, such as family movie night, playing dress-up or swimming with friends. Kids, families and volunteers have fun in the great room, the S’mores Café family kitchen and dining room, and a colorful and fun playground. Specialized therapies are housed in the Swimming Hole (indoor hydrotherapy pool), Sensory Tent, Creative U, Do’Re’Mi’ Music Room, and the Story of Me multi-media legacy-building room. A sanctuary and memorial garden provide quiet, peaceful space for reflection, remembrance and celebrations of life.

Population(s) Served
Children and youth
Families

Where we work

Affiliations & memberships

ARCH National Respite Network and Resource Center 2023

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of children served

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, People with disabilities, People with diseases and illnesses, Families, Caregivers

Related Program

Respite Care, Palliative Care and End-of-Life Care

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

Number of children with life-limiting conditions who received respite care and number of children who had end-of-life stays. 2020 & 2021 Note: numbers of individual children decreased due to COVID-19.

Because of Ryan House, I experience less stress and anxiety as a caregiver.

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, People with disabilities, People with diseases and illnesses, Families, Caregivers

Related Program

Respite Care, Palliative Care and End-of-Life Care

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

100% of caregivers reported experiencing less stress and anxiety.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Designed to deliver multiple adaptive modes of on-site care, Ryan House embraces all children and their families as they navigate life-limiting or end-of-life journeys. Here, we are realizing both the philosophy and the practice of pediatric palliative care. We are the only organization of our kind in the Southwest, and one of three in the country. Our services are provided at no cost to families.

Pediatric Respite Care
Respite care is a gift of time; short-term overnight stays that help a family take breaks from the stress of ‘round the clock home care. It also creates opportunities for kids to be kids, where they can spend time with other children like them. Respite care becomes a necessity, not a luxury. It is the solution for renewed energies and fresh perspectives, as regular “time off” for caregivers is essential to help prevent family fatigue and breakdown. At Ryan House, children and families can receive up to 28 days of respite care per year.

Pediatric Palliative Care
Pediatric palliative care is both a philosophy and method of care. It aims to holistically identify and alleviate the physical, psychosocial, spiritual, and emotional pain for both the child and the family. Its primary goals are to enhance quality of life, minimize suffering, optimize functions, and provide opportunities for personal growth.

Life-Enhancing Therapeutic Activities
Certified child life specialists and trained volunteers provide activities that address the isolation, pain, and fear children and their siblings face with diagnosis. They also improve overall quality-of-life by providing opportunities to experience new sensations, develop skills, and gain confidence. Activities include: Legacy Building, art, music, pet, sensory, recreational, and hydro-therapeutic activities.

Pediatric End-of-Life Care
Families with a child facing end-of-life receive supportive planning and compassionate care consistent with clinical, cultural, and ethical standards. Ryan House also provides parents or guardians and siblings with a loving system of support and comfort. End-of-life care is provided in partnership with our Care Partner, Hospice of the Valley.

Grief and Bereavement Support
Ryan House offers grief and bereavement support to families in a number of ways, including: Sibshops, family counseling through various programs, an annual community event to honor passed children, bereavement boxes to families that are filled with special keepsakes. Additionally, the Care Team provides anticipatory grief support to children, siblings, and their families.

Ryan House is a 12,500 sq. foot home built to provide respite care, pediatric palliative care, and end-of-life care as well as appropriate therapies and activities in a supportive, home-like setting where all are welcome.

Ryan House has eight bedrooms for children, each with their own theme such as The Camp Fire, Once Upon a Time, and the Wild, Wild West. The cabins, designed to meet the unique needs of children who stay there, each have a daybed where friends and relatives can spend the night.

There are three family suites at Ryan House where families stay during the first visit and are always welcome, these rooms are also available to our hospice families while their child is staying at the house. The hotel-like rooms offer a quiet space of refuge and comfort for caregivers, including a private patio, bathroom, and daybed for siblings, relatives, or the child themselves.

Common areas in the house include:

Family Room
Using the great-room concept, the family living room has many inviting areas for individuals, families, or small groups. This large, attractive room includes a library, reading corners, a captivating light wall, video games, TV and cozy furniture groupings. It is bathed in light with open views and access to the outdoor play area and patio.

The S’mores Café (Kitchen)
Our family-style kitchen provides a home-like atmosphere, where children and their families can gather and share a meal. Ryan House kids have fun baking cookies or cupcakes, and volunteers often provide home-cooked meals for families. You can always find a hot cup of coffee, or a chilled beverage. Families and kids have a variety of snacks to choose from in our walk-in pantry, supplied with donations from our community partners.

Lake Squeaky Clean (Bathing Room)
Ryan House has a welcoming room with the necessary lift, bathing bed and shower to ensure good hygiene, safety and privacy. The room is handicap accessible, offering a fun, spa-like experience for the children. Often, it is the only chance children who stay at our home have to get a bath.

Landscaped Patios and Play Area
A colorful and fun accessible playground stands at the center of the patio area. The playground has picnic tables, life-sized cartoon characters, and a working train (along with other amenities) to encourage kids to play.

Sanctuary
This non-denominational space offers a quiet and peaceful space where adults can take time for reflection and can have private and intimate discussions with the Care Team or their Spiritual Advisors.

Memorial Garden
A tranquil and inviting space, the Memorial Garden features benches, fountains, and a pergola that make it a peaceful area to reflect, share, mediate, pray, plan or perhaps a place “just to be.”

Specialty rooms include:

Creative U (Arts and Crafts Room), The Sensory Tent (Sensory Room), The Swimming Hole (Indoor Hydrotherapy Pool), Do’ Re’ Mi’ (Music Room), and the Story of Me Multimedia Room.

For eleven years and counting, Ryan House has cared for over 1,000 children with life-limiting and/or end of life conditions. This includes over 16,000-plus days of respite and hospice care, and outreach and grief support to 4,200-plus parents or guardians, siblings, relatives and friends of the children we serve.

We continue to provide care and support to medically fragile children and their families when they need it most. We look forward to the future and our ability to have a positive impact on those we serve.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

Ryan House
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Ryan House

Board of directors
as of 11/15/2023
SOURCE: Self-reported by organization
Board chair

Ms. Ashley Crowell

Babin Law, LLC

Term: 2019 - 2024

Rob Maver

National Bank of Arizona

Ashley Crowell

Babin Law, LLC

Oliver Fultz

Instant Care of Arizona

Tom Jarvis

Willmeng Construction

Rita Meiser

Shannon Schroeder

Deloitte & Touche

Rachel Behrendt

Hospice of the Valley

Keeley Dean

CVS Health/Aetna/Mercy Care

Mary Thompson

Embark Consulting

Christine Guthrie

Berkshire Hathaway

Asha Karunakaran

SPR

Laura Tolson

Beth Warne

Jane Andersen

Randy Ek

CVS/Aetna (Mercy Care)

Daniel Franks

Wells Fargo Bank

Chris Lutes

BeachFleischman, PLLC

Lisa Swanson

eXp Realty

Patti Tucker

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 11/15/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 04/23/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We disaggregate data by demographics, including race, in every policy and program measured.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.