RALLY FOUNDATION INC

Rally On!

aka Children's Cancer Research and Family Assistance Foundation   |   Atlanta, GA   |  www.rallyfoundation.org

Mission

Rally Foundation, a 501(c)(3) non-profit organization, empowers volunteers across the country to raise awareness and funds for childhood cancer research to find better treatments with fewer long-term side effects and, ultimately, cures.

Ruling year info

2005

Principal Officer

Mrs. Dean Crowe

Main address

5775 Glenridge Drive Building B, Suite 370

Atlanta, GA 30328 USA

Show more contact info

EIN

20-1950849

NTEE code info

Fund Raising and/or Fund Distribution (H12)

Philanthropy / Charity / Voluntarism Promotion (General) (T50)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Childhood cancer is the #1 disease killer of children in our country and, every school day in America, about 46 children are diagnosed with cancer. However, less than 4% of the National Institutes of Health's cancer research budget supports pediatric research. Children need different cancer treatments than adults. While adults get lung, breast, prostate and colon cancers, kids are diagnosed with different types like brain and soft tissue cancers, solid tumors and leukemia. Their bodies are growing and changing, but they are still receiving adult drugs that were developed over 30 years ago to treat adult cancers. Many children seek additional medical care for complications related to harsh cancer treatments, with two-thirds experiencing side effects like heart and lung diseases, infertility, learning disabilities and secondary cancers. Families also often face financial struggles when a child is diagnosed with cancer. Rally's Family Emergency Fund helps families fill that gap.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Rally Foundation Research Grants Program

Rally Foundation supports all phases of childhood cancer research from science at the bench (very early research) to Phase I, II and III clinical trials including targeted therapies, DNA studies and survivors studies. Rally Foundation is also excited to help fund the collaborative research of more than 5,000 physicians, scientists and nurses at 200 hospitals nationwide. These physicians and nurses treat more than 90% of the children in the US with cancer. Eighty percent of these children are enrolled in clinical trials. Rally gives research grants once a year during its fiscal year fourth quarter - January through March. In 2020-2021, Rally Foundation funded 37 such grants, bringing its total grants to just over $22,000,000 supporting 404 research projects.

Population(s) Served
Children and youth

Rally Foundation has educated more than 390,000 people on the need for childhood cancer research and has engaged approximately 3,300 volunteers. Through 2021, Rally had over 20 million media impressions. Most of Rally's Public Education and Awareness Programs are grassroots efforts to inform the public about the need for childhood cancer research.

Population(s) Served
Adults

Rally Foundation has established a resource for parents whose children are currently going through treatment for cancer and need additional help with financial responsibilities. The Family Emergency Fund provides financial assistance with an annual cap of $1,500. The child must be in treatment for a cancer-related diagnosis or within one year post-treatment. Assistance is still provided up to one year after treatment if the child passes away. Funds may be used for medical bills, treatment-related costs and essential living expenses such as utilities, car payment and mortgages.

Population(s) Served
Adults

In an effort to increase federal funding, Rally leads the national advocacy effort and has successfully led these national advocacy efforts that have resulted in securing over $29 million in new research grants for children, adolescents and young adults through the Department of Defense's Congressionally Directed Medical Research Program. To date Rally has Rally advocated in Washington, D.C. and offers a one-click sign on letter option to supporters allowing them to join the 220 organizations, 550 individual patient advocates, pediatric oncology researchers and oncologists from all across the country who have signed the online letter of support for this program.

Rally also is a leader of Curefest, a gathering of the childhood cancer community from all across the country, in Washington, DC. Rally leads hundreds of advocates in the "March to the Capitol" at Curefest to bring education, attention and advocacy to a national stage in DC during Curefest.

Population(s) Served
Children and youth
Young adults

Where we work

Awards

4 Stars 2015

Charity Navigator

4 Stars 2016

Charity Navigator

4 Stars 2017

Charity Navigator

4 Stars 2018

Charity Navigator

4 Stars 2019

Charity Navigator

4 Stars 2020

Charity Navigator

5 Star Best In America 2016

America's Best Charities

5 Star Best In America 2017

America's Best Charities

5 Star Best In America 2018

America's Best Charities

5 Star Best In America 2019

America's Best Charities

5 Star Best In America 2020

America's Best Charities

4 Stars 2021

Charity Navigator

5 Star Best in America 2021

America's Best Charities

Affiliations & memberships

The Alliance for Childhood Cancer 2016

The Alliance for Childhood Cancer 2017

The Alliance for Childhood Cancer 2018

The Alliance for Childhood Cancer 2019

The Alliance for Childhood Cancer 2020

The Alliance for Childhood Cancer 2021

The Alliance for Childhood Cancer 2022

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Related Program

Rally Foundation Research Grants Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Grants are awarded through a peer-reviewed application process to fund promising research to find better treatment options, and ultimately cures, for childhood cancers.

Number of attendees present at rallies/events

This metric is no longer tracked.
Totals By Year
Related Program

Rally Foundation Public Education and Awareness

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Total includes two signature annual fundraising events and grassroots programs.

Number of donations made by board members

This metric is no longer tracked.
Totals By Year
Related Program

Rally Foundation Research Grants Program

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

100% of the Rally Board Members contribute financially to the organization on an annual basis.

Number of unique website visitors

This metric is no longer tracked.
Totals By Year
Related Program

Rally Foundation Public Education and Awareness

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

Unique website visitors

Number of volunteers

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

At our core, Rally is a grassroots organization empowering volunteers across the country to raise awareness and funds for childhood cancer research.

Number of children diagnosed with Cancer in the United States each year

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

*The National Cancer Institute reports 17,293 new diagnoses of childhood cancer in infants to children age 19 in 2020. Cancer is the number one disease killer of children and adolescents in the nation

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Every two minutes, a child is diagnosed with cancer. At Rally we know that statistic is more than just a number. That statistic represents children who are living, breathing and fighting for their lives. We rally to find better treatments with fewer long-term side effects, so all kids fighting the cancer beast can get back to being kids.

Traditional childhood and adolescent cancer treatments are often harsh and come with a long list of side effects that can stick around even after reaching remission. By funding cancer research specifically for kids and teens, we hope to discover new and better treatments with fewer harmful side effects and, ultimately, cures.

Childhood cancer remains the leading cause of death by disease for children in America, yet the National Institutes of Health allocates less than 4% of its funding to childhood cancer. Research for childhood cancer relies heavily on private donations. Organizations like Rally exist to fill the gap. Rally specializes in providing seed money for the next great discovery. Rally invests early--utilizing a dual peer review process that supports research at all stages, from the initial idea to clinical trials--and continues to invest as projects make progress.

Rally continues to raise awareness about childhood cancer and advocates on the national level to increase federal funding for childhood cancer research. Rally also provides emergency financial assistance, resource referrals and opportunities for support and engagement to local families with children fighting cancer.

Our ultimate mission is to raise funds for childhood cancer research, but it’s so much bigger than just us. With every step Rally takes, there’s a child behind it, a family behind it and an entire community behind it helping us truly make a difference. And together, our efforts ARE making a difference.

Rally has two signature events throughout the year to raise funds. Rally On the Runway is held in Atlanta, Nashville and Pensacola. The Delta Double Play is held in Atlanta. Rally has many ongoing fundraising campaigns such as the Rally Fit program for athletes, the 4 Quarters 4 Research campaign for schools and the Community Partners program for local businesses. Rally is always seeking new ways to raise awareness within the community and increase opportunities for fundraising. Rally empowers volunteers and businesses to join together in the fight against childhood cancer.

Through a competitive dual peer review process, Rally Foundation supports all types of childhood cancer research including, but not limited to, science at the bench (very early research), innovative studies, clinical trials, targeted therapies, DNA studies and survivorship studies. Rally Foundation also funds second, third and fourth-year fellows. In an effort to streamline the grant process, Rally Foundation vets and co-funds research with other childhood cancer organizations to gather insight into approaches that have proven successful.

Rally has taken the lead on the national level to advocate for additional federal funding from the Department of Defense Medical Research Program. To date, Rally has secured $29 million in new research grants for cancers in children, adolescents and young adults.

Rally's belief in transparency, accountability and efficiency means that we work hard to maintain low administrative and fundraising costs in order to fund more research for childhood cancer. According to independently audited financials, Rally operates at 94% efficiency.

Rally received the Independent Charities Seal of Excellence for meeting the highest standards of public accountability, program effectiveness and cost-effectiveness. Of the more than one million charities operating in the United States today, it is estimated that fewer than 50,000, or five percent, meet or exceed these standards. Of those, fewer than 2,000 have been awarded the Seal of Excellence.

Childhood cancer researchers from across the country apply for grants from Rally annually. Every Rally Grant awarded is scrutinized and vetted by the Rally Medical Advisory Board, comprised of the top childhood cancer researchers and pediatric oncologists in North America. Each grant application goes through our dual peer-review process. We then award grants to the highest scoring applications. We do this because we take every dollar given to Rally seriously. The Rally Medical Advisory Board works hard to make sure every dollar makes the biggest impact possible.

On the national advocacy level, Rally wrote a white paper about the need for cancer research for children, adolescents and young adults within our military. Rally meets with members and staff of the Department of Defense Subcommittee from both the House and Senate to educate them on the need. Rally also orchestrates national call-in and email campaigns to these offices and collects signatures for a sign-on letter of support.

The Delta Double Play has raised over $7.8 million since 2015. Rally On the Runway has raised more than $2.5 million cumulatively in Atlanta, Nashville and Pensacola. The Rally Fit program has involved hundreds of athletes across the country who exercise and compete in honor of our Rally Kids while raising money and receiving professional coaching. Rally's 4 Quarters 4 Research program has grown to include more than 200 elementary, middle and high schools and community groups across 10 states.

Since 2005, Rally has provided over $22 million in childhood cancer research grants and fellowships supporting more than 354 childhood cancer research projects across the country.

Rally has spearheaded community-wide advocacy efforts resulting in $3.1 million in 2017, $6.5 million in 2018 and $7.7 million in 2019 , $7.9Million in 2020, $10.9 million in 2021 for cancer research in children and AYAs through the Department of Defense's Congressionally Directed Medical Research Program.

The Family Emergency Fund has provided over $635,000 in critical financial support to hundreds of families across the country.

While Rally is helping to raise awareness and funds for childhood cancer research, there is much to be done. Childhood cancer is still the number one disease killer of children in the United States and childhood cancer research remains severely underfunded each year. We will continue our efforts to advocate for additional governmental funding for childhood cancer research while privately funding the most promising projects to find better treatments with fewer long-term side effects and, ultimately, cures for all childhood cancers.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Rally families and childhood cancer families and our volunteers.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Constituent (client or resident, etc.) advisory committees,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    During Covid due to feedback, Rally increased the Family Emergency Funds available to families in economic and medical need. Rally also increased the number of meals served to families at the hospitals.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    It creates opportunities for communication and sharing of mission and how the partnership is working.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

RALLY FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

RALLY FOUNDATION INC

Board of directors
as of 08/05/2022
SOURCE: Self-reported by organization
Board chair

Michael Gossling

DoMyOwn.com

Christi Kruse

Joy Posthauer

Peggy Fulghum

Blaine Hess Hess

Dean Crowe

Reid Crowe

Larry Deist

Carole Anne Orsborn

Chris Gaffney

Shane Roach

Scott Givens

Michael Gossling

Chris Rohrbach

Shauna Trainer

Ryan Elwart

Elizabeth Davis

Stephanie White

Hannah Goldberg

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 1/18/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

 

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 01/18/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.