CHILDRENS CANCER NETWORK

Giving hope to children and families battling childhood cancer.

Chandler, AZ   |  www.childrenscancernetwork.org

Mission

TO PROVIDE FINANCIAL, PSYCHOSOCIAL AND EDUCATIONAL ASSISTANCE TO PEDIATRIC CANCER PATIENTS AND THEIR FAMILIES AND INCREASE AWARENESS REGARDING PEDIATRIC CANCER.

Ruling year info

2005

Executive Director

Patti Luttrell

Main address

6150 W. Chandler Blvd Ste 1

Chandler, AZ 85226 USA

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EIN

20-2129902

NTEE code info

Human Service Organizations (P20)

Cancer (G30)

Pediatrics (G98)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Childhood cancer is a life changing diagnosis. Childhood cancer is not rare. In fact, one in 285 children will be diagnosed with cancer before the age of 20 years. The trauma surrounding childhood cancer is significant and is different for each family member. The incidence of Post Traumatic Stress Disorder is rising not only for the childhood cancer warrior but also for parents and siblings. In addition to the psychosocial stress, the cost of cancer treatment is financially draining due to both the cost and the length of cancer treatment. Two thirds of all childhood cancer warriors have late effects related to their cancer or their treatment, the impact of which can be felt for their lifetime. Childhood cancer families need support, resources, programs and assistance to help them deal with the realities of cancer while also adjusting to the new normal post treatment. Children's Cancer Network strives to address these needs for children and families battling childhood cancer.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Gas and Food Card Program

Gas and food are two of the highest priority needs for families battling childhood cancer. CCN provides gas cards, food cards, bus passes, and cafeteria passes to families in need.

Population(s) Served

CCN assists Arizona families experiencing financial distress during the winter holidays and/or back to school season. Providing clothing, age appropriate toys, school supplies, and essential household items, these programs set up families for success throughout the year. Beds may also be provided year round for those families in need.

Population(s) Served

Knowledge is a key component as parents, teens, and children learn to cope and become advocates for their personal health and care. CCN’s Family Resource Center offers computer access and free resources for all ages from both national and local sources. Hard copy books and references for all ages are available at no cost. The Bi-annual CCN Survivorship Conference offers survivors, siblings, and parents the opportunity to develop resources and network while learning from local and national experts.

Population(s) Served

When a family first hears the devastating words, “Your child has cancer”, Children’s Cancer Network is there. Providing resources, practical necessities, and reassuring comforts, the admission bags help families realize they are not alone in their fight against cancer.

Population(s) Served

CCN awards scholarships each year to cancer survivors and immediate family members whose lives and college savings have been altered by childhood cancer.

Population(s) Served

CCN offers wigs to those children, teens, and young adults at no charge. CCN maintains a selection of wigs on site or patients may choose one to their liking from wigs.com

Population(s) Served

“It’s All About You” is a non-medical program focusing on heath and wellness for children, teens, siblings and parents affected by childhood cancer. The goal is to positively affect the mind, body, and spirit by increasing knowledge and skill, building self-esteem, and developing positive relationships with others familiar with the cancer journey.

Population(s) Served

H.O.P.E is a school re-entry program easing the way for survivors and siblings to return to school after a cancer diagnosis. A 55-minute group presentation, age appropriately designed for K-3, 4-6, 6-8 and 9-12 graders, H.O.P.E. offers students knowledge first, then the opportunity to build compassion, and finally the chance to turn both into action!

Population(s) Served

Childhood cancer affects every member of the family. Emotional support is essential for cancer fighters, siblings, and parents. CCN offers a variety of support programs and events including CCN Café for Parents, All Star Siblings, Mother’s Day Tea and Survivorship Day Celebrations. CCN provides funding for a full time family therapist for the Center for Cancer and Blood Disorders at Phoenix Children's Hospital.

Population(s) Served

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of participants engaged in programs

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of program sessions or family events offered annually

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of volunteers

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Children’s Cancer Network strives to support children and families throughout their cancer journey with programs designed to provide financial assistance, promote education, encourage healthy lifestyles, build self-esteem, and create awareness of the issues they face related to childhood cancer. Children’s Cancer Network is committed to helping children and families dealing with the stressful and uncertain times that begin with initial diagnosis and often continue for years thereafter. We address the highest priority needs at the time when they are needed most. Our intention is for each family to realize they are not alone in their fight against cancer. Giving hope to children and families is our goal.

Children's Cancer Network partners with the pediatric oncology teams to assess the needs of children and families battling childhood cancer. Programs and services are strategically designed to meet those needs in creative and impactful ways.

When a family first hears those words, “Your child has cancer”, Children’s Cancer Network is there providing resources, financial assistance, practical necessities and reassuring comforts just when they are needed the most! Financial assistance is provided through the Gas and Food Card Program, Basic Needs Bins, Adopt a Family Programs, CCN's Wig Program, Scholarships, and other healthcare collaborations.

Hospitals are excellent at focusing on the specific cancer healthcare needs of families. CCN helps focus on the health and wellness aspects as families begin to adjust to their new norm: relationships, exercise, building self-esteem and self-confidence, critical thinking and more. CCN provides age appropriate activities where you can learn with purpose with others traveling a similar path. Health and Wellness Programs include It's All About You, CCN Connect, and CCN Focus on STEM.

Knowledge is key as parents, siblings and cancer fighters learn to cope and become advocates for their personal health and care. CCN offers computer access and a host of resources for all ages from both national and local sources, all of which are offered at no cost. In addition, age appropriate education about childhood cancer in fun and interactive ways can de-mystify cancer, build compassion, and empower peers, family, and teammates to make a difference each day. Patient, family and community education is provided through survivorship education, H.O.P.E.: Honoring Our Peers Everyday, and CCN Live with Bruce St. James.

Cancer affects every member of the family. It’s important that each family member realizes they are not alone in their battle. Connections are a lifeline for all ages and support is vital for all. CCN support programs include CCN Cafe for parents, All Star Siblings, Family Fun Activities and counseling services.

Children's Cancer Network is comprised of knowledgable, passionate, and dedicated leaders including an effective Board of Directors, experienced leadership and staff, and over 400 devoted volunteers. Each member of the team is committed to the mission and consciously develops partnerships with our families, the health care teams, our donors and the community. The Children's Cancer Network Resource Center provides a positive, family centered environment where all are welcome to participate in programs and services providing support to children and families battling childhood cancer.

Children's Cancer Network serves a growing number of children and families annually and now totals an estimated 800 families annually. Our program attendance has consistently increased since 2016 as have the number of programs offered. Children's cancer network is committed to building positive relationships with our families, the pediatric oncology teams, and our community partners. Qualitative evaluations show that families are extremely satisfied with the programs and services and our network of resources and partners continue to grow. Children's Cancer Network's number of employees is growing based on need and they are proud of their work with these courageous families. The community awareness of childhood cancer continues to grow as evidenced by our increasing donor base and the increasing following Children's Cancer Network has within the media and on social media.

Children's Cancer Network is committed to stepping up the fight for families battling childhood cancer. New endeavors are to address those isolated by distance or health status by increasing our reach with programs and services offered virtually. In addition, Children's Cancer Network has become more proactive in outreach to families with the addition of wellness checks and increased awareness of our programs and services to all families.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Paper surveys, Focus groups or interviews (by phone or in person), Case management notes, Constituent (client or resident, etc.) advisory committees,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve,

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • What challenges does the organization face when collecting feedback?

    It is hard to come up with good questions to ask people,

Financials

CHILDRENS CANCER NETWORK
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

CHILDRENS CANCER NETWORK

Board of directors
as of 6/12/2020
SOURCE: Self-reported by organization
Board chair

Stephen Luttrell

BOK Financial

Pamela Finucane

Finucane Financial

Prudence Hodgson

Bloom and Speak

Patti Luttrell

Children's Cancer Network

Stephen Luttrell

Bank of Arizona

Michael Roland

Retired

Todd Modic

Voya Investments, LLC

Joseph Morris

Northwestern Mutual

Jeannine Watanabe

Cox Communications

Jose Moreno

Fiesta Bowl

Gretchen Baumgardner

Launch Realty

Alexandra Walsh

Phoenix Children's Hospital

Daina Hunt

Tommy Bahama

Butch Glispie

Pono Construction

Tina Duffy

Dynamic Solutions for Life

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 06/11/2020

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 06/11/2020

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.