PLATINUM2024

Autism Speaks

Washington, DC   |  www.autismspeaks.org

Mission

Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the lifespan, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions. Autism Speaks enhances lives today and is accelerating a spectrum of solutions for tomorrow.

Notes from the nonprofit

In January 2019 Autism Speaks changed its fiscal year from a calendar year to April 1 - March 31. The financial section shows the "stub year" January -March 2019. The next financial update reflects April 1, 2019 - March 31, 2020.

Ruling year info

2011

President and CEO

Mr. Keith Wargo

Main address

50 F. St. NW Suite 360

Washington, DC 20001 USA

Show more contact info

EIN

20-2329938

NTEE code info

Autism (G84)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2023, 2022 and 2021.
Register now

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

We aim to: --Ensure access to reliable information and services across the lifespan -- Support research and innovation to improve quality of life -- Convene the work of service providers through advocacy, partnering and collaboration -- Speed delivery of solutions for adult quality of life needs --Promote diversity, equity, access and inclusion in all actions and partnerships

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Autism Response Team

The Autism Response Team (ART) is specially trained to connect people with autism, their families and caregivers to information, tools, and resources. Since the programs inception, ART has fulfilled more than 750K connections with people in need of support. https://www.autismspeaks.org/family-services/autism-response-team
888-AUTISM-2

Population(s) Served
Adults
Children and youth
Low-income people

Advocating for policies and programs in support of individuals and families with autism https://www.autismspeaks.org/advocacy

Population(s) Served
Adults
Children and youth
Low-income people

The Autism Care Network (ACN) is a collaboration of Autism Speaks® and some of the finest children's hospitals and academic institutions in North America, specializing in multi-disciplinary medical care for children with autism. As a learning health system, together, they work to develop evidence-based protocols and standards of care for many of the most challenging medical conditions surrounding autism today. ACN best practices are shared with physicians and medical facilities nationwide to improve outcomes for all children with autism.
https://www.autismspeaks.org/autism-care-network

Population(s) Served
Adults
Children and youth
Multiracial people
Low-income people

Autism Speaks is committed to supporting research breakthroughs and innovations that drive towards improved quality of life and well-being for individuals with autism throughout their lives. This work will bridge basic, clinical, and social science to inform individualized treatment strategies leading to the vision of personalized healthcare over the lifespan; advance new discoveries and innovate care; secure greater government investment in autism research, services and supports; and invest in a greater level of research in challenging behaviors and special healthcare needs.
https://www.autismspeaks.org/our-impact

Population(s) Served
Multiracial people
Adults
Children and youth
Low-income people

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of children screened for autism and other developmental delays

This metric is no longer tracked.
Totals By Year
Population(s) Served

Infants and toddlers

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

By taking the M-CHAT questionnaire, families concerned about their child's development learn the signs of autism. The results of this screening is often the first step to receiving help.

Number of Facebook followers

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our Facebook community increases understanding and acceptance of people with autism by sharing their diverse and inspiring stories of adults and children on the spectrum.

Number of Autism Speaks supported publications

This metric is no longer tracked.
Totals By Year
Population(s) Served

Academics, People with disabilities

Related Program

Science

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

# of publications (original research, chapters, review articles, other scientific content) supported by funding (in part or in whole) published in peer-reviewed journal/invited with editorial review

Number of people with autism and their families served

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Adults

Related Program

Autism Response Team

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Personalized support by our specially trained Autism Response Team, educational tool kits and roadmaps accessed, online resource page views, autism friendly calendar events viewed, community grants.

Number of volunteer grassroots advocates who have taken an action in support of Autism Speaks advocacy efforts

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Advocacy

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our community of active advocates and volunteers from across the country work hand-in-hand to implement advocacy initiatives: research funding, education, transition, lifelong services/supports.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Autism Speaks is dedicated to creating an inclusive world for all indiviuals with autism throughout their lifespan. We do this through advocacy, services, suports, research and innovation and advances in care for autistic individuals and their families. Our vision is a world where all people with autism can reach their full potential.

We do this through our mission based programs including Services & Supports, Science Research, Public Health, and Advocacy, and our collaboration and partnerships with organizations and professionals in the autism community.

Autism Speaks will relentlessly pursue strategies that make significant progress toward outcomes over the next 10 years. We have established strong research, public health, advocacy and services and support teams to drive our efforts as stated in the Next10 Vision, 3-year strategic plan and the annual business plan. We have also established strong field, operations, and fundraising teams to support and fuel our mission delivery efforts.

It is clear that the mission of Autism Speaks will require the organization to grow in new ways and build capacity to be a sustaining organization to accelerate progress in science and support individuals with autism and their families over a lifetime. This will require investment in people, infrastructure and process in order to operate as a best in class non-profit organization. We have developed a Next10 Vision and subsequent 3-year strategic plans. The strategic plan is developed with input from volunteer leadership, board of directors and staff. Each year a business plan is developed to support the goals in the 3-year strategic plan. All staff members' individual goals are tied to the business plan goals. All metrics are reported monthly to ensure progress is being made.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

Autism Speaks
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Autism Speaks

Board of directors
as of 06/12/2024
SOURCE: Self-reported by organization
Board co-chair

Thomas Frazier, II, Ph.D.

Professor of Psychology, John Carroll University

Term: 2024 -


Board co-chair

Adrian Jones

Managing Director, Merchant Banking Division, Goldman, Sachs & Co.

Term: 2016 -

Curtis Arledge

CEO, Mariner Investment Group. Former Vice Chairman and Chief Executive Officer, BNY Mellon Investment Management

Tom Bernard

Retired from a 30-year career in global finance. Co-founder with wife Sallie, of The Extreme Sports Camp, providing recreational opportunities for children on the autism spectrum.

Scott R. Carpenter

President and Chief Executive Officer, Savor Street Foods

Jennifer Caserta

Chief Transformation and People Officer, AMC Networks

Barry R. Feirstein

Retired founder of Feirstein Capital Management, a private investment management firm.

Adam Frazier

Vice President and Head of New York Leasing, Oxford Properties

Brian L. Harper

President, Chief Executive Office and Trustee, RPT Realty

Matthew Higgins

Co-founder and Chief Executive Officer, RSE Ventures

Adrian M. Jones

Managing Director, Merchant Banking Division, Goldman, Sachs & Co.

Tim Jones

Chief Executive Officer, Americas, Publicis Media

Aidan Kehoe

Co-founder, CEO and Board Member, Skout Secure Intelligence

Kevin J. Murray

Managing Director, BNY Mellon Investment Management

Jacquelyn Nance

President, Philanthropic Solutions, Ltd.

Jamie T. Richardson

Vice President, White Castle System, Inc.

Stuart Savitz

Founder, Law Offices of Stuart M. Savitz, LLC Operating Board, CP Acquisition LLC

Stephen Shore, Ed.D.

Clinical Assistant Professor, Ammon School of Education, Adelphi University

Steven P. Stanbrook

Former Chief Operating Officer International, S.C. Johnson & Son, Inc.

Cheryl Vitali

Worldwide General Manager, Kiehl's

Thomas Frazier, Ph.D.

Professor of Psychology, John Carroll University: EVP, Virtual Clinical Care, Quadrant Biosciences

Robert C. Schwenkel

Corporate Counsel, Fried Frank

Darren Goode

Chief Marketing Officer, Zumper

Bill O'Connor

CEO of O'Connor Capital Partners

William T Giles

Former EVP & CFO, Auto Zone

Jennifer Seidel

Digital Partnerships, Mastercard

Jason Dove

President of Palladium Window Solutions, LLC

Laurie Chern

autism advocate, philanthropist and volunteer

Dr. M. Daniele Fallin

Dean of Public Health at the Emory Rollins School of Public Health

Jamie T. Richardson

Vice Chairman, Autism Speaks Vice President, White Castle System, Inc.

Franklin Becker

Founding Partner/Hospitality Dept.; Founder & CEO/ F Becker Hospitality

Judy Benardete

former consultant and venture capitalist

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 6/12/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 09/04/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.