Childrens Cancer Partners of the Carolinas Inc

GOALS A. ensuring every child in your service area has equal access to the current standard of care, and to specialized or experimental clinical trial care should available treatments prove insufficient B. Prevention of the spiral-to-poverty that too often occurs when childhood cancer puts families into an emotional and financial pressure-cooker - one parent leaving work while bills grow and treatment expenses far out-strip even the finest insurance coverages C. Continued 90% or greater HIGH satisfaction rating from families we support, and the hospital professionals who refer them to us in an INDEPENDENTLY conducted satisfaction survey evaluated by the University of South Carolina Upstate Metropolitan Studies Institute. D. Assistance in the ultimate tragedy of a child lost to cancer E. Continuous support beyond cancer treatment, into the lifelong health challenges encountered by childhood cancer survivors

STRATEGY ONE:  Increase region-wide awareness of Children's Cancer Partner of the Carolinas   Objective A: Increase availability and quality of informational materials for specific critical audiences   Objective B: Improve the usability and visitor retention of CCP website and social media messaging   Objective C: Increase exposure of CCP among religious, civic and relevant professional audiences   Objective D: Create community awareness events to raise knowledge of general publicSTRATEGY TWO: Build a diverse, sustainable funding base for growing need and enrollment   Objective A: Promote Kidz in Lids(R) as CCP's signature fundraising event   Objective B: Build a robust Do-it-Yourself (DIY) website library of models for third-party fundraising   Objective C: Create a comprehensive annual plan that optimizes solicitation efforts across diverse sources   Objective D: Expand grant-writing efforts to support program expansionSTRATEGY THREE: Strengthen organizational capacity for most effective and efficient program delivery   Objective A: Increase volunteer engagement in program services   Objective B: Strengthen CCP Board with broader diversity, geography, and commitment   Objective C: Establish Staff Development Program to enhance professionalism and reduce burn-out risk   Objective D: Refine and expand organizational policies for clarity and simplicitySTRATEGY FOUR: Reach all of the children and families across the Carolinas battling childhood cancer   Objective A: Strengthen referral relationships across the 9 pediatric oncology sites in the Carolinas, and national centers   Objective B: Increase the number of community partnerships to ensure all relevant resources are available to our families   Objective C: Develop awareness efforts across both states.   Objective D: Increase individual family participation in various peer-connection and support activities

CAPABILITIESSince our founding in 2001, we have assisted over 1,000 families, never once failing to provide the support they needed to fulfill their child's cancer treatment on time and completely. 1. We respond within 24 hours to a new referral or request for assistance. We then meet each family in person to determine their particular needs. 2. We either advance or swiftly reimburse treatment travel, lodging and meal expenses. 3. We provide for essential home care, and in-kind items that rapidly become unaffordable to financially struggling families. 4. Our Family Nights, Camp Victory and other special events connect children and caregivers with others fighting their same battle - for solace, advice, support. 5. When financial burdens overwhelm families, and crises such as eviction, auto repossessions, utility shut-offs threaten, we intercede with assistance, and also help with financial literacy coaching so these situations do not re-occur. 6. Should the ultimate tragedy - a child lost to cancer - occur, we assist with funeral expenses and grief counseling. 7. Monthly, we report to treatment centers on our support and family interactions, to ensure full and optimal coordination of assistance.Our Program Leadership is experienced and dedicated.

There are over 600 children diagnosed each year in the Carolinas, with a typical treatment regimen of 18-30 months.  This should translate into an active treatment population of approximately 1200-1300 at any given time.  Our expansion has taken us from one county (Spartanburg) with 20 children assisted to 112 of the 147 Carolina counties, with 800 children assisted (as of September, 2019).  All Carolina treatment centers now refer children to us, but with varying degrees of promptness; we will not rest until all of them refer immediately, as the region's largest center, UNC Chapel Hill, does already.  Every family needs some level of support, whether emotional, logistical, social or financial.