OVARIAN CANCER ALLIANCE OF OREGON & SW WASHINGTON

We are here for you

Vancouver, WA   |  www.ovariancancerosw.org

Mission

To promote awareness of ovarian cancer and to provide education to women and the health care community; To offer support to all ovarian cancer survivors by providing opportunities for networking, education and community outreach; To advocate for public policy, research, and funding for ovarian cancer.

Notes from the nonprofit

We are here for you. That means whether you are facing a new and frightening diagnosis of ovarian cancer, dealing with a recurrence, or have a family member or friend who is, we are here to provide information, support, and most of all, hope.

Ruling year info

2005

Executive Director

Zoya Kumar

Main address

16420 SE McGillivray, Ste 103, PMB 243

Vancouver, WA 98683 USA

Show more contact info

EIN

20-2558493

NTEE code info

Alliance/Advocacy Organizations (G01)

Alliance/Advocacy Organizations (P01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Ovarian cancer is the deadliest gynecologic cancer, and takes the lives of more than 15,000 women each year in the United States. Although it is the 11th most common cancer in women, it is the fifth leading cause of cancer related deaths in women. The survival rates are lower for ovarian cancer than any other cancer that affects women. A PAP smear is not a test for ovarian cancer. Currently there is no diagnostic tool to detect ovarian cancer. The vast majority (85%) of women diagnosed with ovarian cancer are diagnosed in stages III and IV, just 46% of these women live beyond five years. However, there is good news... 92% of women diagnosed in the early stages survive over 5 years. The Ovarian Cancer Alliance provides direct program services to women diagnosed with ovarian cancer.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Survivors Teaching Students

The Survivors Teaching Student educates medical, physician assistant, nursing, and pharmacy students on the survivors’ human and personal journeys, and how the students can better assist in care as they move into their professions. OCAOSW features one of the most active STS efforts in the country.

“I find it incredibly valuable to hear patients talk about their stories. We sit every day in class learning about diseases, but nothing helps me connect that information more than hearing it firsthand from someone that experienced it.” 
OHSU 3rd Year Medical Student

Program serves Oregon and SW Washington counties.

Population(s) Served
Health

By Your Side chemotherapy kits contain essential items for people diagnosed with ovarian cancer. Items include a warm fuzzy blanket; water bottle; journal; books and resources; and a connection point to our group.

"I received this amazing bag of goodies at my first chemo visit. What a nice surprise! It was filled to the brim with resource books; warm, fuzzy blanket; water bottle; a journal; and so much more. Thank you so much Ovarian Cancer Alliance for thinking of us and providing comfort and support."
Anne

Program serves Oregon and SW Washington counties.

Population(s) Served
Health

Here4You Financial Assistance Program provides low income individuals in treatment with assistance for critical expenses such as: including rent, utility bills, medical bills, transportation costs, and etc.

“I was unable to work during treatment. Had it not been for the Alliance’s help, our family would have been evicted from our apartment. I’m so thankful to them.”
Raquel

Program serves Oregon and SW Washington counties.

Population(s) Served
Health
Health

In the midst of a frightening diagnosis, OCAOSW offers newly diagnosed women companionship and support via trained and experienced peer mentors.

"Most helpful is talking to someone who has been through it. Ovarian Cancer Alliance mentor and buddy Becki was willing to share her story with me. It was so nice to be able to talk about OC with somebody who has been there."
Vicki

This program serves Oregon and SW Washington counties.

Population(s) Served

OCAOSW assists survivors via online support open to all. From Longview to Medford (and even Florida!), we’ve found more and more survivors are connecting virtually. These monthly sessions are moderated by a licensed social worker.

“The virtual support sessions have been a life line during these distressing times. It’s been so helpful to have such a supportive group to share our experiences, fears, and journeys.”
Support Group Attendee

This program serves all ovarian cancer survivors regardless of geography.

Population(s) Served

The Trust Your Gut Ovarian Cancer Awareness Campaign promotes and amplifies awareness of ovarian cancer via targeted media channels. Early diagnosis saves lives.

This campaign is supported by targeted social media buys; TV and radio public service announcements; and branded marketing collateral such as reusable grocery bags.

This program serves Oregon and SW Washington counties.

Population(s) Served
Health

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of By Your Side chemotherapy kits distributed

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Context - describing the issue we work on

Direction of Success

Holding steady

Context Notes

2020: Covid-19 impacted our ability to distribute By Your Side kits. Healthcare providers were focused on community health issues. In addition, many clinics stopped disseminating material.

Number of participants attending course/session/workshop

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Due to Covid-19 in March 2020, our events shifted to virtual.

Amount and number of women helped via Here4You Financial Assistance Program

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context Notes

$31,422 distributed for critical needs such as housing, medical bills, utility bills, and etc.

Number of Survivors Teaching Students (STS) presentations conducted and number of students impacted

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Related Program

Survivors Teaching Students

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Due to Covid-19, STS sessions and students were significantly impacted due to uncertainty around the pandemic.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The Ovarian Cancer Alliance provides direct program services to women diagnosed with ovarian cancer, including the Here4You Financial Assistance Program for women in treatment; Survivors Teaching Students Program to help medical, physician assistant, nursing, and pharmacy students understand the survivors’ human and personal journeys and how the students can better assist in care as they move into their professions; By Your Side chemotherapy care kits; peer support for those newly diagnosed with cancer or fighting a recurrence; education and fellowship events.

Our Mission:
** To offer support to all ovarian cancer survivors by providing opportunities for networking, education and community outreach

** To promote awareness of ovarian cancer and to provide education to women and the health care community

** To advocate for public policy, research & funding for ovarian cancer

Assumptions
• The Ovarian Cancer Alliance of Oregon and Southwest Washington (OCAOSW) continues to be in a growth mode.
• This organization plan, with its current programs and four new initiatives, is achievable by December 2022 with a full time Executive Director, an engaged Board of Directors, and a corps of volunteers.

New Initiatives
• Coordinated Marketing
The linking of awareness building, outreach, advertising, communications and “sustainable fundraising” will have an outsized positive impact in supporting our mission. We will coordinate our programs to build awareness, educate, support, and provide financial resources for our community. In addition, our website and brochures will benefit from a refresh.

• Focus on Young Adults
The survey suggested that we expand our presence on social media. Younger individuals tend to use social media more consistently providing a platform for awareness building about ovarian cancer and its symptoms. Social Media is a key component in our sustainable fundraising and advertising plans where we can expand our connection with younger individuals.

• Support of Families and Friends
Our support of families, friends and caregivers can be expanded. Some of the actions might include social events where caregivers can meet, peer mentoring for partners of survivors and family-centered events. Increasing our connections with family and friends of survivors could also provide volunteer opportunities.

• Expanding the Connections with Health Care Professionals
Our partners in supporting the newly diagnosed and those recurring are numerous and diverse. They include gynecologic oncologists, gynecologists, general practioners, oncology nurses, social workers and nurse navigators. These communities are the firstline providers of information about ovarian cancer. In a systematic fashion, we will expand and deepen our relationships with health care professionals.

Ongoing Initiatives
Goal 1: Provide support for women diagnosed with ovarian cancer, their families and friends, including opportunities for networking, education and community outreach
Goal 2: Educate the health care community, survivors and their families as well as the community at large, focusing on early detection. The communities of Oregon and Southwest Washington will know us from our services.
Goal 3: Advocate for public policy, research and funding for ovarian cancer
Goal 5: Provide for financial stability and growth

The Alliance's active board members, committees, staff, and volunteers are achieving strategic goals and action items per stated timelines. Concurrently, we are working on areas of opportunity to bridge gaps in services. Due to Covid-19, we seamlessly pivoted all programming online, with the exception of onsite events. Onsite events are on hold until it's safe.

2021 OCAOSW Impact as of December 9, 2021
Here4You Financial Assistance
• $31,422 was distributed for critical needs such as housing, medical bills, utility bills, and etc.

Peer Mentees
10 were officially paired; however, there's a significant amount of peer mentoring via support groups. Difficult to measure. Peers are mentored in many different ways, for example when we field phone calls and emails.

Events
• 12 support sessions moderated by Susan Hedlund: 228 registrants total
• 4 happy hours: 50 registrants
• 7 educational sessions: 267 registrants
• 1 annual medical update: 46 registrants
• 1 STS speaker happy hour: 10 registrants
• 2021 OVF
o $85,000 gross proceeds. New OVF sponsorship record: $43,000!

Survivors Teaching Students Program
586 healthcare students in 2021: nursing school, nurse practitioner, pharmacy, and PA (pretty amazing during Covid!!)

Trust Your Gut Symptom Awareness Social Media Campaign
• September - November:
o 389,717 impressions (number of unique people who viewed the ad)
o 8,039 all links (clicked on ad; viewed OCAOSW page; commented or liked ad)
July-October Trust Your Gut public service announcements (PSAs): OCAOSW has received 283 TV commercials at no charge. Valued at $34,150.

By Your Side Kits
• 19 in 2021. **Low number this year likely due to staffing issues/turnover and ongoing Covid safety protocols.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Ovarian cancer survivors

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    We utilize surveys to inform our educational session topics; to determine the changing needs of our community and to be reflective and pivot to community needs; and to ensure our programs and services are communicated and utilized.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    Surveys have helped to inform our decisions so we can serve our community well and provide the programs they want and need.

  • Which of the following feedback practices does your organization routinely carry out?

    We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

OVARIAN CANCER ALLIANCE OF OREGON & SW WASHINGTON
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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OVARIAN CANCER ALLIANCE OF OREGON & SW WASHINGTON

Board of directors
as of 2/24/2022
SOURCE: Self-reported by organization
Board chair

Anna DeMers

Diane O'Connor

Terry O'Connor

Susan Gianotti

Megan Guerre

Karey Schoenfeld

Mark Shafer

Gina Taylor

Gillian Lashen

Diane Elizondo

Amberdawn Krupicka

Melissa Hopkins

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 01/05/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
Asian American/Pacific Islanders/Asian
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 12/09/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.