BRONZE2023

Fight Colorectal Cancer

Relentless Champions of Hope in the Fight Against Colorectal Cancer

aka Fight Colorectal Cancer   |   Springfield, MO   |  fightcolorectalcancer.org

Mission

We raise our voice to empower and activate a community of patients, fighters and champions to push for better policies and to support research, education, and awareness for all those touched by this disease.\n\nFight Colorectal Cancer (Fight CRC) is a leading patient empowerment and advocacy organization in the United States, providing balanced and objective information on colon and rectal cancer research, treatment, and policy. We are relentless champions of hope, focused on funding promising, high-impact research endeavors while equipping advocates to influence legislation and policy for the collective good.

Notes from the nonprofit

In 2015, we are proud to once again share that 92 cents of every dollar donated to Fight Colorectal Cancer went directly to colon & rectal cancer programs and research. \r\n\r\nWe take great pride in being transparent, frugal and carefully spending our resources where it will make the most impact in raising awareness and providing resources to our community. \r\n\r\nWe were the first to begin a serious investment in Immunotherapy and this year with our partners, will commit over $400K to the research. \r\n\r\nWe hope you will help us fund the fight and get behind a cure.

Ruling year info

2005

President

Mrs. Anjee Davis

Main address

134 Park Central Square Suite 210

Springfield, MO 65806 USA

Show more contact info

Formerly known as

C3: Colorectal Cancer Coalition

EIN

20-2622550

NTEE code info

Alliance/Advocacy Organizations (G01)

Alliance/Advocacy Organizations (R01)

Cancer Research (H30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Colorectal cancer (CRC) continues to be a major health issue in the United States (U.S.). It remains the second leading cause of cancer death in the U.S. and, this year, 135,000 Americans will be diagnosed with CRC and 50,000 will die from the disease. While the vast majority of CRC patients are older adults, recent studies have found an alarming rise in CRC diagnoses among young and middle-aged adults as well. \n\nWe are working to addresses:\n-Removing policy barriers to screening and prevention\n-Educating patients and caregivers on treatment options by providing free resources both in English and Spanish\n-Funding and convening research efforts to tackle the rise in early age onset colorectal cancer, the work being done in immunotherapy, and opportunities for innovation.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient Education and Public Awareness

Fight Colorectal Cancer’s patient education and public awareness program provides timely, up-to-date, medically-reviewed information for colorectal cancer patients, family members, caregivers, colorectal cancer advocates and healthcare providers.  Fight Colorectal Cancer’s patient information covers the full range of colorectal cancer health needs from preventing colorectal cancer through the many issues of treatment through long-term questions of survivorship.

Population(s) Served
Adults

Fight Colorectal Cancer is a leader in the fight for a cure, supporting innovative research both financially and strategically.  In addition, Fight Colorectal Cancer focuses on empowering advocates to be the most informed and well educated when speaking up for the needs and priorities of colorectal cancer patients.  We are constantly strengthening that voice by training a sustainable army of research advocates to make a difference in colorectal cancer research.  
Fight Colorectal Cancer represents the patient voice in the development and implementation of research and research policy.  Our research advocates are members of patient advisory boards, colorectal cancer Specialized Programs of Research Excellence (SPOREs), Cooperative Groups and Institutional Review Boards.  Fight Colorectal Cancer continues to build its presence with researchers in government agencies, academic centers and industry advisory boards through regular meetings, conferences and communication.  Fight Colorectal Cancer also works with the country’s leading research centers which includes the National Cancer Institute (NCI) and Food and Drug Administration (FDA) always speaking for patients.

Population(s) Served
Adults

Fight Colorectal Cancer is making a difference on Capitol Hill.  Seen as a leading colorectal cancer advocacy organization on Capitol Hill, Fight Colorectal Cancer is able to bring attention, as well as respond to, legislative and regulatory issues on behalf of people touched by colorectal cancer.  In addition, Fight Colorectal Cancer focuses on recruiting and engaging colorectal cancer advocates to further its legislative efforts.  To provide for the most effective and efficient advocates possible, Fight Colorectal Cancer trains and educates these individuals to have the most viable understanding of colorectal cancer and its place among public policy.  Today, Fight Colorectal Cancer is a growing legion of grassroots advocates who bring the urgent need for legislation and policy change to local communities, state government and Washington, DC.  To be even more effective, Fight Colorectal Cancer partners with other organizations fighting colorectal cancer including One Voice Against Cancer (OVAC), National Colorectal Cancer Roundtable (NCCRT), Cancer Leadership Council (CLC) and Coalition of Cancer Cooperative Groups.

Population(s) Served
Adults

Where we work

Awards

Champion of Colorectal Cancer Prevention 2011

Preventing Colorectal Cancer

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of meetings with policymakers or candidates

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

Public Policy

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Hill briefings and congressional meetings that impact funding for cancer research programs

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Fight CRC is a non-profit organization, providing a safe harbor for a community of patients, caregivers, and families to convene, find support, advocate, and receive balanced information on cancer care, research, and policy. Where many other organizations hold tight to conventional approaches, we take bold actions. We are catalysts for change. We focus our efforts to fund the most promising research endeavors while relentlessly pushing to influence legislation and policy. We are known as fearless friends and empowered fighters, working to bring hope and healing to all affected by colorectal cancer.

FightCRC provides a blueprint for working collaboratively to engage and educate patients, caregivers and those touched by colorectal cancer. We provide clear steps for people to become supporters and activists. Building on our strengths, our strategic plan enables Fight Colorectal Cancer to confront the dynamic environment of today's healthcare, legislative, and research environments. \r\n\r\nOur core values:\r\n• Genuine relationships with our audiences\r\n• Positive culture within the organization\r\n• Financial sustainability \r\n• Organizational differentiation and strategic thinking\r\n• Quality, integrity, transparency\r\n• Culture supporting collaboration and support for social good\r\n\r\nThe primary strategic pillars guide the organization and address the needs of the community:\r\n• Advocacy and Policy\r\n• Patient Resources\r\n• Research\r\n• Philanthropy\r\n• Awareness

We have outlined our overall aims for each strategic pillar and subsequent objectives and activities. We realize to achieve this, we have to prepare for growth. We must be disciplined in our operations to support implementation of this strategic plan, while also striving to meet the highest standards in terms of governance, financial efficiency and good relationships within the colorectal cancer community, with volunteers and with other stakeholders.\r\n\r\nOur overarching operational goals are to ensure that we implement our strategies in a manner that makes best use of our resources and funding.

2015-2018 Key accomplishments:\n\nFight CRC has accumulated an impressive list of accomplishments during its 12-year history, including the following recent highlights:\n● Policy Change: As the leading advocacy organization in the country, Fight CRC’s advocacy efforts such as Call-on Congress and online efforts have led to a number of policy advances, including securing millions of CRC research funding dollars through the Department of Defense’s Peer-Reviewed Cancer Research Program. In the last year, Fight CRC’s role has been focused on coalition building -- bringing not only advocates but congressional leadership together, through the Congressional Advisory Committee. In 2018 our work supported the American Cancer Society's guidelines update. This was a monumental change, lowering in the CRC screening age from 50-45.\n● Research: Over the last 12 years, Fight CRC has played a leadership role in major CRC research initiatives, directly funding $1 million dollars in direct support of research grants. The latest initiatives include a $400,000 investment in a cutting-edge CRC immunotherapy research project with the Cancer Research Institute and the launch of a new CRC Dream Team with Stand Up to Cancer in 2017. \n● Patient Education: In 2015, the organization wrote, Your Guide in the Fight. This award-winning resource has become an essential tool for newly diagnosed CRC patients and survivors with more than 3,000 downloads to date. \n● Awareness: Reaching over 700 million engagements during Colorectal Cancer Awareness Month in March, building our community.\n\nAt our core, we are relentless champions of hope, fighting for a cure to colorectal cancer while supporting and empowering a community of patients, caregivers, and families. Fight CRC focuses on providing balanced cancer care information while pursuing the most promising research endeavors and influencing policy change for the greater good. For anyone affected by colorectal cancer, we offer a safe place of support, information, and encouragement. \n\nAcross everything we do, our strategy is to thoughtfully do more with less. We are convening leaders, intentional about making every action count. By bringing the best and brightest people together in pursuit of innovation, we are uniquely positioned to identify high-impact (“breakthrough” or “the most promising”) research efforts. In our search for a cure, we remain steadfast, because every day we are moved by the collective heartbeat of people who bring hope and healing to all those affected by colorectal cancer.\n\nMONITOR AND EVALUATE\nThe data collected can be analyzed after each activity to determine which advocacy activities were successful (and which were not.) It is imperative we develop a consistent tracking system that can also be used as a monitoring and evaluation tool.

Financials

Fight Colorectal Cancer
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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Fight Colorectal Cancer

Board of directors
as of 05/23/2023
SOURCE: Self-reported by organization
Board co-chair

Nancy Roach

none

Term: 2005 - 2021


Board co-chair

Angela Nicholas

Nancy Roach

No Affiliation

Dana Rye

David Wicks

Ron Doornink

Romaine Seguine

UPS

Teri Griege

David Wicks

NASDAQ

Katie Zahner

Brown Smith Wallace LLP

Carrie Sweigart

Shifting Gears Consulting

Eric Hausmann

NJ FMBA

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes