Friends of Carra
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Registry of JIA patients
Long term prospectively collected data on large numbers of children with JIA does not exist. A large data base of all children with JIA from all CARRA sites would allow for long term collection of key data on new patients, outcome data and medication toxicities for children with JIA that could inform a wide range of investigations and add new knowledge.
Development of a Standard of Care for Systemic JIA
Currently there is no agreed upon standard of care for systemic JIA (SJIA) at the onset of disease. SJIA has the worst outcome of all types of JIA and responds to treatment differently.
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Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Friends of Carra
Board of directorsas of 03/24/2009
Vincent DelGaizo
No Affiliation
Vincent DelGaizo
No Affiliation
Debbie Wright
No Affiliation
Anne Murphy
No Afiliation
Dwight Powery
No Affiliation
Maria Powery
No Affiliation
Christy Sandborg
Stanford University
Kathleen Haines
Joseph M Sanzari Children's Hospital, Hackensack Unversity Medical Center
Dan Kinsbury
Legacy Emanuel Children's Hospital