Friends of Carra

Palo Alto, CA   |  www.friendsofcarra.com
This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.

Mission

To support the discovery of a cure and improved treatments for childhood arthritis and related diseases and to increase public awareness of childhood rheumatic conditions.

Ruling year info

2006

Principal Officer

Vincent DelGaizo

Main address

P.O. Box 20067

Palo Alto, CA 94309

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EIN

20-3451370

NTEE code info

Pediatrics Research (H98)

Arthritis (H51)

Fund Raising and/or Fund Distribution (H12)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Registry of JIA patients

Long term prospectively collected data on large numbers of children with JIA does not exist.  A large data base of all children with JIA from all CARRA sites would allow for long term collection of key data on new patients, outcome data and medication toxicities for children with JIA that could inform a wide range of investigations and add new knowledge.

Population(s) Served

Currently there is no agreed upon standard of care for systemic JIA (SJIA) at the onset of disease.  SJIA has the worst outcome of all types of JIA and responds to treatment differently.

Population(s) Served

Where we work

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Financials

Friends of Carra
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Operations

The people, governance practices, and partners that make the organization tick.

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Friends of Carra

Board of directors
as of 03/24/2009
SOURCE: Self-reported by organization
Board chair

Vincent DelGaizo

No Affiliation

Vincent DelGaizo

No Affiliation

Debbie Wright

No Affiliation

Anne Murphy

No Afiliation

Dwight Powery

No Affiliation

Maria Powery

No Affiliation

Christy Sandborg

Stanford University

Kathleen Haines

Joseph M Sanzari Children's Hospital, Hackensack Unversity Medical Center

Dan Kinsbury

Legacy Emanuel Children's Hospital