PLATINUM2024

United Cerebral Palsy, Inc.

Life Without Limits for People with Disabilities

aka UCP, UCP National, United Cerebral Palsy,   |   Vienna, VA   |  http://www.ucp.org

Mission

Mission: To be the indispensable resource for individuals with cerebral palsy and other disabilities, their families, and their communities. Vision Statement: Life of inclusion for individuals with disabilities United Cerebral Palsy (UCP) through it's network of 58 affiliates educate, advocate and provide support services to people living with wide ranges of disabilities to ensure a life without limits for themselves and their families . UCP Affiliates are leaders in their communities providing innovative programs and services every day for more than 154,049 children and adults with disabilities on an annual basis. Each Affiliate is a separate 501(c)3 organization with its own leadership and Board of Directors.

Notes from the nonprofit

United Cerebral Palsy, Inc. is now located at 8401 Old Courthouse Rd., Vienna, VA 22182

Ruling year info

2006

CEO/President

Mr. Armando Contreras

Main address

8401 Old Courthouse Rd.

Vienna, VA 22182 USA

Show more contact info

Formerly known as

United Cerebral Palsy Associations, Inc.

United Cerebral Palsy Associations, Inc.

EIN

20-3568840

NTEE code info

Human Service Organizations (P20)

Public, Society Benefit - Multipurpose and Other N.E.C. (W99)

Alliance/Advocacy Organizations (G01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Affiliate Support Activities

Support of Affiliates: Approximately 55 local service providers or UCP affiliates (53 in the US and 2 in Canada) reached more than 155,000 individuals and their families on an annual basis. Affiliates services include housing, clinical therapies, assistive technology training, early intervention programs, transportation, individual and family support, social and recreation programs, community living, state and local referrals, employment assistance and training, advocacy, information, and referral and promote research. UCP National supports the network of members through affiliate and national revenue sharing programs (online giving, the vehicle donation program, direct mail, and workplace giving)). In addition, UCP National facilitates a national annual meeting, two regional affiliate convenings, and quarterly CEO virtual town halls, topical calls, affiliate portal, Case for Inclusion Annual Report, webinars, National Update Town Halls, and federal-level advocacy.

Population(s) Served

Non-federal (Bellows): Assistive technology often plays a vital role in the lives of people with disabilities. Assistive technology is any item, piece of equipment, or product that is used to increase, maintain, or improve the functional capabilities of individuals with disabilities. We offer financial assistance through our non-federal grant program, The Bellows Grant, which helps pay for assistive technology equipment to individuals with disabilities that cannot afford to purchase this live changing equipment or special devices. Use of this program is available only through UCP affiliates.

Population(s) Served

UCP educates the affiliate network through the Life Without Limits and Network News e-newsletter and seminars, such as the Professional Learning Series and newly developed affiliate portal. At the annual conference, valuable information is shared on cerebral palsy and disability-related issues, as well as philanthropy and leadership topics. UCP also educates the general public through its newly revamped and accessible website, which provides information for parents, caregivers, and people with disabilities around the globe in several languages including a text-to-speech feature. UCP also provides Information & Referral (I&R) services through its partnership with an affiliate where individuals can obtain information on how to contact their local, state, and federal resources by either calling a toll-free number or submit an inquiry via the UCP website. Bi-lingual staff members will be available to answer inquiries in both English and Spanish. Conference on Latinos with Disabilities

Population(s) Served

Where we work

Affiliations & memberships

ANCOR 2022

ANCOR 2023

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of phone calls/inquiries

This metric is no longer tracked.
Totals By Year
Related Program

Public Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

In late 2019, United Cerebral Palsy restarted the Information and Referral program. Individuals looking for resources in their area can connect with UCP to obtain resources. COVID increased the number

Total number of grants awarded

This metric is no longer tracked.
Totals By Year
Related Program

Bellows Grant (Non-federal)

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Number of government officials who publicly support the advocacy effort

This metric is no longer tracked.
Totals By Year
Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context Notes

UCPs 2022 Legislative Award was presented to Congressman Steve Cohen of Tennessee May 4 at our virtual Annual Conference for his support of cerebral palsy research and disability issues overall.

Number of conferences held

This metric is no longer tracked.
Totals By Year
Related Program

Affiliate Support Activities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of conference attendees

This metric is no longer tracked.
Totals By Year
Related Program

Public Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of rallies/events/conferences/lectures held to further mission

This metric is no longer tracked.
Totals By Year
Related Program

Affiliate Support Activities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

1 Annual Conference 4 Quarterly Town Halls for affiliate capacity building 4 Professional Learning Series 2 Case For Inclusion webinars 1 Conference on Latinos with Disabilities

Number of free participants in conferences

This metric is no longer tracked.
Totals By Year
Related Program

Affiliate Support Activities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

2021 - UCP Annual Conference was open to the public.

Number of press releases developed and distributed

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of referrals to resources offered

This metric is no longer tracked.
Totals By Year
Related Program

Public Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Information & Referral Program. Any inquiries received through the UCP website, [email protected], or direct at the toll free number will be answered with resources.

Number of reports written/published

This metric is no longer tracked.
Totals By Year
Related Program

Public Education

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Co-authored the Case for Inclusion report with ANCOR.

Number of website pageviews

This metric is no longer tracked.
Totals By Year
Type of Metric

Other - describing something else

Direction of Success

Increasing

Number of periodicals distributed

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We act on the feedback we receive, We share the feedback we received with the people we serve

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, We don’t have the right technology to collect and aggregate feedback efficiently

Financials

United Cerebral Palsy, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

United Cerebral Palsy, Inc.

Board of directors
as of 05/10/2024
SOURCE: Self-reported by organization
Board chair

Mr. Keith Graham

Graham, Brown & Dutton, PC

Term: 2020 - 2024

Roger Slingerman

UCP of Central California

Cheryl Hines

Honorary Trustee

Janeen Latin

UCP of Central PA

Diane Wilush

UCP of Georgia

John Hancock

UCP of Oregon

Paula Rader

UCP of Arkansas

Wiiliam Thrash

UCP of Alabama

April Kaylor

UCP of Michigan

Dr. Ilene Wilkins

UCP of Central Florida

John Anderson

Kia Motors, retired.

Kelly Piacenti

MassMutual SpecialCare

Luis Ramirez Thomas

Ramírez Advisors Inter-National, LLC

Mark Gormley, Jr. M.D.

Gillette Children's Specialty Healthcare

Mark Lezotte

Butzel Long

Peter Quattromani

UCP of Rhode Island

RJ Mitte

Honorary Trustee

Teresa Gagliano

UCP of Northwest Missouri

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 5/10/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Hispanic/Latino/Latina/Latinx
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 05/10/2024

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.