GOLD2023

AUTOINFLAMMATORY ALLIANCE INC

Earlier diagnosis and treatment can change, and even save lives.

aka NOMID ALLIANCE   |   San Francisco, CA   |  https://autoinflammatory.org

Mission

We are here to help people with autoinflammatory diseases. The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with autoinflammatory diseases. There are many autoinflammatory diseases with symptoms that are present from childhood or infancy. Some refer to these diseases as periodic fever syndromes. A few develop symptoms in adulthood, or late childhood.

Notes from the nonprofit

We are in the process of updating our website, organizational structure, and other important info, and we will have more to include on Guidestar and more documents coming soon. Thank you!

Ruling year info

2007

RN, President and Founder

Karen Durrant

Main address

PO Box 590354

San Francisco, CA 94159 USA

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Formerly known as

THE NOMID ALLIANCE INC

NOMID ALLIANCE

EIN

20-4915307

NTEE code info

(Fund Raising and/or Fund Distribution) (G12)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Sign in or create an account to view Form(s) 990 for 2022, 2022 and 2021.
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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Moderated, Private Patient Autoinflammatory Disease Online Communities

We host and moderate the largest private patient online communities for autoinflammatory diseases to help over 9000+ patients, and also some board members are moderators in other patient communities online, with administration and group moderation with a team of trained moderators helps thousands of patients daily.
-Open access global resource for medically edited information, including the autoinflammatory-search.org searchable database/chart for medical professionals to compare and consider the many autoinflammatory diseases.
-Educational programming with translation, that is free to all, including printed materials.
-We fund a range of autoinflammatory and immunedysregulatory research
-Collaborate and also lead research
-Advocate for patients globally & in the US
-Funded a Task Force working group of global autoinflammatory experts that led to the publication in 2021-2022 of ACR/EULAR endorsed "points to consider" recommendations for care and treatment for autoinflammatory diseases

Population(s) Served
Health

Where we work

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    We don’t have the right technology to collect and aggregate feedback efficiently

Financials

AUTOINFLAMMATORY ALLIANCE INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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AUTOINFLAMMATORY ALLIANCE INC

Board of directors
as of 11/27/2023
SOURCE: Self-reported by organization
Board chair

Karen Durrant

Nathan Durrant

Dorelia Rivera

Jennifer Tousseau

Colleen Paduani

Saskya Angevare

Erin Wilson

Julie Cunningham

Heather Briganti

Carla Herbert

Katie Bailey

Organizational demographics

SOURCE: Self-reported; last updated 11/27/2021

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

Race & ethnicity

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability