ROCK STEADY BOXING INC

Fighting Back Against Parkinson's Disease

aka Rock Steady Boxing   |   Indianapolis, IN   |  www.rocksteadyboxing.org

Mission

The mission of Rock Steady Boxing is to empower people to fight back against Parkinson's disease.

Through an intensive plan of physical exercise delivered in a welcoming, safe and positive environment, our members and caregivers gain confidence and hope knowing Rock Steady Boxing is helping them maximize their potential mentally, emotionally and physically.

Notes from the nonprofit

Rock Steady Boxing's (RSB) vision is to be recognized regionally, nationally and globally as the experts and leaders in the field of intensive, non-contact boxing style therapy for people diagnosed with Parkinson’s. RSB has developed and validated a proprietary system of neuroprotective exercise that enables members to maintain their quality of life, not only by participating in classes but also through caring and support from members who make up the RSB “community”. It is our plan to see the Rock Steady Method adopted by therapists, gym owners and certified instructors via Train-the-Trainer weekend boot camps known as "Training Camp." This will, in time, create a network of affiliate RSB providers and expand the reach of the RSB brand and associated benefits for people with PD. Overall, our goal is to make the RSB program accessible to everyone living with PD, and to empower people to fight back against Parkinson’s disease.

Ruling year info

2009

President

Ms. Keri S. Eisenberg

Main address

7440 N Shadeland Avenue Suite 202

Indianapolis, IN 46250 USA

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EIN

20-5113083

NTEE code info

Neurology, Neuroscience (G96)

Health - General and Rehabilitative N.E.C. (E99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Parkinson's disease is a degenerative movement disorder which can cause deterioration of motor skills, balance, speech and sensory function.

The Parkinson's Disease Foundation estimates there are more than 1 million people in the United States diagnosed with Parkinson's disease, and more than 60,000 people are diagnosed each year. Rock Steady Boxing is the first gym in the country dedicated to the fight against Parkinson's.

In our gym, exercises are largely adapted from boxing drills. Boxers condition for optimal agility, speed, muscular endurance, accuracy, hand-eye coordination, footwork and overall strength to defend against and overcome opponents. At RSB, Parkinson's disease is the opponent. Exercises vary in purpose and form but share one common trait: they are rigorous and intended to extend the perceived capabilities of the participant.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Rock Steady Boxing Classes

Rock Steady Boxing provides a uniquely effective form of physical therapy along with group support, free of charge to people suffering from Parkinson’s disease. Today, residents of Central Indiana struggling with Parkinson’s disease can attend 16 classes per week that, using non-contact boxing-inspired fitness routines, dramatically improve their ability to live independent lives. In addition to the neurological improvement created through the rigorous forced exercise regimen, there is a bond that is created among participants and those charged with providing care. This community of support improves the well-being of persons with Parkinson’s as well as their caregivers and loved ones. RSB delivers a message of hope and motivation to those who have been told that each day their movement and cognitive ability will worsen. Results have been stunning!

Population(s) Served
Adults
Seniors

Our certification program provides an overview of PD, beginning boxing techniques and adaptations of our fitness program designed to combat the 23 symptoms of Parkinson's disease. This two day seminar prepares trainers to establish a Rock Steady Boxing affiliate location in their own community.

Population(s) Served
Adults

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Rock Steady's goal is to educate as many people as possible about the benefits of intense exercise and the Rock Steady Method, and to increase the number of safe and welcoming places for people with Parkinson's to exercise. Our vision is that one day, when the neurologist says, "you have Parkinson's disease," it will be followed by, "and there's a gym down the street where you can fight back." To date we have established 750 programs in the United States and Puerto Rico and 32 internationally in Brazil, Canada, Australia, Sweden, Norway, the Netherlands, China, Japan, United Kingdom, Italy, Trinidad, and Israel.

In order to spread the Rock Steady Method throughout the world, we offer a 2 day "Training Camp" attended by physical therapists, personal trainers, boxing coaches, activity directors, and anyone who works with people with Parkinson's disease. This seminar prepares attendees to establish affiliate locations in their home communities. RSB teaches boxing skills and specific techniques related to Parkinson's, and provides all the foundational information for establishing a credible Rock Steady Boxing affiliate program. Training Camps take place in Indianapolis, IN.

We launched an online training program in July 2017 to help existing affiliate locations grow their coaching staff and establish more affiliate locations. RSB is pleased to invite coaches at Affiliate locations to provide a professional development opportunity for their coaching staff by enrolling them in our newly released Online Certification Training. This in-depth course will provide a knowledge of Parkinson's disease and boxing basics that will enhance their effectiveness in the gyms of our Affiliate locations.

Our Rock Steady Boxing trainers are uniquely qualified to provide the Rock Steady style boxing fitness program, and administrative staff brings a solid record of organizational leadership.
• Kristy Follmar (CPT) is a 2003 graduate of Ball State University, with a degree in Telecommunication /Marketing and Sociology. Follmar began her boxing career as Indiana Golden Gloves Women's Champ (1999, 2000) then went on to become world-ranked professional boxer becoming the first ever Women's Indiana State Champion and NABC Featherweight and Super Featherweight Champion (2002, 2003). In 2009, Follmar returned to the ring after four year layoff to win the WBF Light Welterweight World Championship. With several nationally televised bouts to her credit, Follmar retired from competition in 2010 with a 16-2 record (9KO) to focus on her professional career and motherhood. Follmar is proud of the part she played in creating a more positive perception of women in professional boxing, and grateful for the confidence and discipline she gained in all aspects of her life. Follmar is a Certified Personal Trainer (CPT) through the National Association of Sports Medicine. As Rock Steady Boxing program director and head trainer, Kristy uses her experience of professional boxing and education in physical conditioning to design curriculum specific to varying levels of Parkinson's disease.
• Christine Timberlake (CPT) has been with Rock Steady Boxing since 2006. Her husband, Tom, was diagnosed with Parkinson's in 2000. Exercise has always been a constant in both Tom and Christine's lives and they have often been considered Rock Steady Boxing's Star Athletes in both the Parkinson's and non-Parkinson's boxing classes. Christine is an experienced lifeguard, swimming and aerobics instructor. In 2009, she completed a Personal Training Certification (CPT) with the National Academy of Sports Medicine to take on a more serious role with Rock Steady Boxing. Her affiliation has brought new energy to the program and we are grateful for her determination to fight back.
• Executive Director, Joyce Johnson, brings more than 30 years experience managing organizational change and growth. As a former Executive Director of two Indiana non-profit organizations, Johnson has a solid track record of management, strategic planning and fundraising for organizations poised to grow.

We have developed a credible boxing inspired fitness program for people fighting back in Central Indiana. 220 people exercise in our flagship facility in Indianapolis, IN and neurologists report that they are reducing and delaying symptoms of this dreaded disease. In addition we are impacting people around the world by establishing over 900 affiliate locations in all 50 states, Brazil, Canada, Australia, Sweden, Norway, the Netherlands, China, Japan, United Kingdom, Trinidad, Italy, and Israel.

Our goal is to make the RSB program accessible to everyone living with PD throughout the world, empowering people to fight back against Parkinson's disease.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    People with Parkinson's disease and their care partners

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • With whom is the organization sharing feedback?

    Our staff, Our board,

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

ROCK STEADY BOXING INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

ROCK STEADY BOXING INC

Board of directors
as of 5/11/2021
SOURCE: Self-reported by organization
Board co-chair

Mr. Richard A. Poppa

CAE, AAI Rapt Consulting, Manager

Term: 2021 - 2024


Board co-chair

Mrs. Anne Scheele

Former Administrator, Orchard Schools, Retired

Randy Judd

Huntington Bank - Insurance, Retired

David Giles, MD

Community Health Network, Retired

Anne Scheele

Director of Institutional Advancement, Retired

Connie Fiems

Certified Neurologic Specialist, Certified Brain Injury Specialist Trainer, Assistant Professor Krannert School of Physical Therapy

Richard Poppa

Rapt Consulting, Manager

Edward Pollack

USA Funds, Retired President & CEO

Sherry Hyska

National Bank of Indianapolis, Vice-President

Jeffrey Dowden

Wallington Asset Management, LLC Executive Vice-President

Elizabeth Zauber, MDS

Movement Disorder Specialist, Associate Professor, Neurology, Indiana University School of Medicine

William Kohler

VELN President, Legal Services Enterprise

Paaige Turner

Ball State University, Dean of the College of Communication, Information and Media. Professor of Communication Studies

Adnan Hamid

IIS Regional Vice President, Indiana University Health

Kimberly Woolley

Licensed Clinical Social Worker, Psychotherapist, Rock Steady Boxing San Francisco Affiliate Owner & Coach

Jan Storey

MBA, Storey Strategic Consulting, Former Senior Vice President of Business Development

Marge Albohm

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 5/10/2021,

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 03/02/2021

Policies and practices developed in partnership with Equity in the Center, a project that works to shift mindsets, practices, and systems within the social sector to increase racial equity. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.