Sickle Cell Foundation of Orange County
Mission
Our mission and goal is simple; we will educate, empower, and equip youth and young adults with the authority and power to overcome the challenges of Sickle Cell Disease and is dedicated to educating, parents, teachers, and family members to help raise awareness to this disease and how it is important to take control of the challenges that come with having Sickle Cell or knowing someone that is affected by the Disease.
Ruling year
2008
Founder & President
Star Simmons
Main address
Post Office Box 3780
Mission Viejo, CA 92691 USA
EIN
20-5801620
NTEE code
Birth Defects (G20)
IRS filing requirement
This organization is required to file an IRS Form 990-N.
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Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
504/IEP Services
Section 504 Accommodation Services Provided
--Assist parents with finding an evaluator for eleigbility
-Assist parents with requesting 504 Accommodations Assessment & Eligibility
-Provide an Advocate from SCDFOC to attend Section 504 Team Assessment Meeting
-Intervention, Implementation, and Evaluation
-Section 504 Plan Referral
-Problem Indentification & Analysis
-Provide parents with personalized consultation, knowledge and skills to their children
-Form collaborative relationships between students, parents, and school personnel
Where we work
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Login and updateAwards
Proclamation 2011
City of Santa Ana
Citizenship 2010
Omega Psi Phi Fraternity Inc, Rho Psi Chapter
Proclamation 2011
City of Irvine
External reviews
Photos
Videos
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The SCDFOC goal is to help create a healthier and stable environment for the entire home of sickle cell patients and families by relieving some of the pressures of the day to day household. Our ultimate goal to allow the patient to see that they do have purpose and something to offer in this life. It is to bring hope, encourage, and rebuild that sense of powerless one has when dealing with such an chronic illness.
What are the organization's key strategies for making this happen?
To continue to sow into the lives of families, communities, and patients of sickle cell disease.
What are the organization's capabilities for doing this?
Most of our staff and board members of the Sickle Cell Foundation of Orange County are comprised of either SCD Patients, Educators, Family Members, and Licensed Professionals who has firsthand and knowledge of this disease. We have an personal investment in those living with this disease, affected by the disease, and who care for those living with the disease.
What have they accomplished so far and what's next?
We have seen by providing our service to patients and families, we have improved relationships among family members, trust among patients and doctors, and increased students testing and grades. In addition, we have seen that through our program, we have created a self awareness about each persons role to their family, community, and society.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
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- Compare nonprofit financials to similar organizations
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Sickle Cell Foundation of Orange County
Board of directorsas of 06/06/2019
Star Simmons
SCDFOC
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
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