Sickle Cell Foundation of Orange County

aka SCDFOC   |   Mission Viejo, CA   |  www.scdfoc.org

Mission

Our mission and goal is simple; we will educate, empower, and equip youth and young adults with the authority and power to overcome the challenges of Sickle Cell Disease and is dedicated to educating, parents, teachers, and family members to help raise awareness to this disease and how it is important to take control of the challenges that come with having Sickle Cell or knowing someone that is affected by the Disease.

Ruling year info

2008

Founder & President

Star Simmons

Main address

Post Office Box 3780

Mission Viejo, CA 92691 USA

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EIN

20-5801620

NTEE code info

Birth Defects (G20)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

504/IEP Services

Section 504 Accommodation Services Provided

--Assist parents with finding an evaluator for eleigbility
-Assist parents with requesting 504 Accommodations Assessment & Eligibility
-Provide an Advocate from SCDFOC to attend Section 504 Team Assessment Meeting
-Intervention, Implementation, and Evaluation
-Section 504 Plan Referral
-Problem Indentification & Analysis
-Provide parents with personalized consultation, knowledge and skills to their children
-Form collaborative relationships between students, parents, and school personnel

Population(s) Served

Where we work

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Awards

Proclamation 2011

City of Santa Ana

Citizenship 2010

Omega Psi Phi Fraternity Inc, Rho Psi Chapter

Proclamation 2011

City of Irvine

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The SCDFOC goal is to help create a healthier and stable environment for the entire home of sickle cell patients and families by relieving some of the pressures of the day to day household. Our ultimate goal to allow the patient to see that they do have purpose and something to offer in this life. It is to bring hope, encourage, and rebuild that sense of powerless one has when dealing with such an chronic illness.

To continue to sow into the lives of families, communities, and patients of sickle cell disease.

Most of our staff and board members of the Sickle Cell Foundation of Orange County are comprised of either SCD Patients, Educators, Family Members, and Licensed Professionals who has firsthand and knowledge of this disease. We have an personal investment in those living with this disease, affected by the disease, and who care for those living with the disease.

We have seen by providing our service to patients and families, we have improved relationships among family members, trust among patients and doctors, and increased students testing and grades. In addition, we have seen that through our program, we have created a self awareness about each persons role to their family, community, and society.

Financials

Sickle Cell Foundation of Orange County
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Sickle Cell Foundation of Orange County

Board of directors
as of 6/6/2019
SOURCE: Self-reported by organization
Board chair

Star Simmons

SCDFOC

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes