FEEDING MATTERS, INC.

Making a better world for children with pediatric feeding disorder.

Phoenix, AZ   |  www.feedingmatters.org

Mission

Furthering advances in pediatric feeding disorder by accelerating identification, igniting research, and promoting collaborative care for children and families.

Ruling year info

2007

Chief Executive Officer

Ms. Jaclyn Pederson

Main address

7227 N 16th Street, Suite 110

Phoenix, AZ 85020 USA

Show more contact info

EIN

20-8095826

NTEE code info

Pediatrics (G98)

Developmentally Disabled Services/Centers (P82)

Public, Society Benefit - Multipurpose and Other N.E.C. (W99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Established in 2006, Feeding Matters is the first non-profit organization in the world working to support those affected by pediatric feeding disorder (PFD) and to raise national awareness of its prevalence. PFD is defined as impaired oral intake that is not age-appropriate, and is associated with medical, nutritional, feeding skill, and/or psychosocial dysfunction. PFD is estimated to affect more than 2.3 million children under the age of 5 in the United States.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Power of Two Parent Coaching Program

Parents may feel isolated and overwhelmed with the medical, emotional, financial, educational and social issues while raising their child. Matches families with parent coaches who have been through a similar experience.

Population(s) Served
Caregivers
Families

The VHRP facilitates a virtual community for families and healthcare professionals to share and access quality information. Includes: Provider Directory – comprehensive database of feeding centers and providers who routinely evaluate and treat children with pediatric feeding disorder. Enables providers to refer quickly and allows families to find qualified providers. Resource Library – information and resources including articles, books, handouts, products, recipes, blogs, latest research, and videos to help you navigate your journey with pediatric feeding disorder. Infant and Child Feeding Questionnaire – Developed by internationally recognized feeding experts, this tool helps families and healthcare professions earlier identify red flags that may be indicative of a pediatric feeding disorder providing a vehicle for families to speak to their healthcare providers.

Population(s) Served
Families
Caregivers

The International Pediatric Feeding Disorder Conference is an opportunity for allied health professionals and physicians to receive groundbreaking access to the latest developments and research in the evaluation and treatment of children with pediatric feeding disorder. Our conference attracts more than 500 in-person and virtual participants from 48 states and 13 countries.

Population(s) Served
Academics
Adults

With limited education available on pediatric feeding disorder, access to comprehensive training is valuable. Feeding Matters’ virtual workshops keep healthcare professionals and families up to date on the latest research, clinical practices and techniques related to the treatment of pediatric feeding disorder.

Population(s) Served
Academics
Families

Provides valuable information and education about Feeding Matters and pediatric feeding disorders to the community through presentations, trainings, vendor booth opportunities, and individual outreach efforts.

Population(s) Served
Academics
Adults

Feeding Matters volunteers are dedicated to helping us meet our mission. These volunteers help on committees, our councils, as research volunteers, or parent coaches. They also include those helping us with outreach including our Community Ambassadors.

Population(s) Served
Families
Academics

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of high-profile speakers or participants participating

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our PFDA Executive Council and Family Advisory Council advise Feeding Matters on our strategic plan and also contribute as public advocates and speakers on pediatric feeding disorder.

Number of individuals attending community events or trainings

This metric is no longer tracked.
Totals By Year
Related Program

Outreach

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This includes workshops, conference, exhibitor booths, and virtual event.

Number of participants engaged in programs

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Includes participants engaged and reached by all programs including parent and professional support programs.

Number of unique website visitors

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

Virtual Health Resource Platform

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of volunteers

This metric is no longer tracked.
Totals By Year
Related Program

Volunteer Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our volunteers help us further our mission in many ways. They assist us in a leadership capacity and on committees, coach parents through their journey, and assist with research, projects, and events.

Number of feeding questionnaires taken to improve early identification of pediatric feeding disorders

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Authored by nationally-recognized feeding experts, this tool enables medical professionals to partner with parents to identify pediatric feeding issues earlier.

Number of list subscribers

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our vision: A world in which children with pediatric feeding disorder will thrive.

Our mission: Furthering advances in pediatric feeding disorder by accelerating identification, igniting research, and promoting collaborative care for children and families.

Feeding Matters is uniting families, healthcare professionals, and the broader community to improve the system of care for children with PFD through advocacy, education, support, and research.

Advocacy & Awareness – Build awareness for PFD so that pediatric feeding disorder (PFD) becomes a recognized household name in Arizona, across the US and globally. Grow a network of advocates, including respected clinicians, researchers, caregivers, educators, healthcare professionals, and more to influence public policy and facilitate change to improve the lives of children with pediatric feeding disorder.

Education – Build a workforce of qualified professionals to evaluate and treat pediatric feeding disorder. We do this by providing education that results in better care, improved health outcomes, and enhanced early intervention.

Parent Support – Empower parents and caregivers of children with pediatric feeding disorder through a virtual community, parent to parent coaching, financial resources, and educational tools.

Research – Ignite research by promoting collaborations, seed funding, access to patients, and facilitation of expert consensus.

Feeding Matters is uniting the concerns of families with the field’s leading advocates, experts, and allied healthcare professionals to improve the system of care for PFD.

For these children, eating, drinking, and swallowing are painful and frightening – ultimately affecting their behavioral, physical, and emotional development. Yet, there is no functional system of care for PFD locally, nationally, or internationally.

Feeding Matters has earned the reputation of a respected industry leader with a qualified team of experts that unites families and the healthcare community. The organization’s standing is the driving force behind notable improvements to the system of care for PFD which include, The Journal of Pediatric Gastroenterology and Nutrition’s (JPGN) publication of the groundbreaking consensus paper “Pediatric Feeding Disorder—Consensus Definition and Conceptual Framework,” the continued growth and success of the International PFD Conference, and the launch of the PFD Alliance. Feeding Matters’ ongoing success has spurred a seismic swell of promising prospects for future advancements.

Feeding Matters undergoes annual strategic planning, including the theory of change and lean innovation practices, and evaluates the abundance of opportunities for the strategic fits that best utilize the organization’s resources and capacity while aligning with its vision, mission, and values. These practices work in unison, allowing Feeding Matters to acknowledge reality, find solutions, and adjust and pivot as needed – maintaining a consistent strategy for effective social impact.

Feeding Matters continues to make tremendous progress in education, advocacy, family support and research for the pediatric feeding community since its inauguration in 2006. The
past five years have been a period of unprecedented advancement for Feeding Matters as a leader in family and professional advocacy.

Key international initiatives achieved within the past five years include: facilitation of the 2019 JPGN publication defining pediatric feeding disorder by aligning over 19 experts worldwide; publication of a national study in the 2020 Journal of Pediatrics reporting the prevalence of pediatric feeding disorder (PFD); securement of a stand-alone diagnostic code (R code) for PFD to be included in the next edition of the International Classification of Diseases on October 1, 2021 through advocacy actions and alignment of national organizations; publication of the 2019 Economic Impact Report outlining the financial burden of PFD on insured families; coordination, funding and facilitation of the 2020 Journal of Pediatrics publication delineating six Infant Child Feeding Questionnaire responses as differentiating children with PFD; publication of the Infant Child Feeding Questionnaire as a Screener Tool Rack Card for early identification of PFD; and publication of the Family Guide to Pediatric Feeding Disorder, the first nationally or internationally available comprehensive resource for families navigating PFD.

Additional successes include the following: growth from four volunteers to seven staff positions; 75 attendees at first International Pediatric Feeding Disorder Conference–over 600 in 2019; 200 attendees at first signature fundraising luncheon–690 in 2019; served 44 individuals during the first year–served over 140,000 in 2019; began with two Power of Two mentors–128 mentors in 2019; Outreach began in Arizona only- reach is now across all 50 states and 143 countries; PFD Alliance membership was launched with a single member in 2019- in 2020 the Alliance has 360 members.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Community meetings/Town halls, digital ideation,

  • How is your organization using feedback from the people you serve?

    To strengthen relationships with the people we serve, to identify needs within each type of groups that we serve.,

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

FEEDING MATTERS, INC.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

FEEDING MATTERS, INC.

Board of directors
as of 9/29/2021
SOURCE: Self-reported by organization
Board co-chair

Rhonda Anderson


Board co-chair

Todd Pearson

Shannon Goldwater

Founder & Emeritus Board Member

Rhonda Anderson

Cardon Children's Medical Center (former CEO)

Emily Park

RED Development, LLC

Craig Willis

Chapman Foundations Management, LLC

Todd Pearson

Alaska USA FCU

Vince Daniels

Shamrock Foods Company

Michelle Arndt

Arizona Community Foundation

Kristen French

Upworth, PLLC

Lori Crandall

USI Insurance Services

Ian Rakow

Cyberactive Consulting Ent, Inc.

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 2/15/2021,

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data