PLATINUM2023

LUNG CANCER FOUNDATION OF AMERICA

Life should take your breath away. Not lung cancer.

aka LCFA   |   New Ulm, MN   |  www.LCFAmerica.org

Mission

LCFA’s mission is the improvement in survivorship of lung cancer patients through the funding of transformative science. While raising funds to support lung cancer research, LCFA will raise the public’s awareness and serve as a resource for patients or anyone seeking answers, hope, and access to updated treatment information, scientific investigation, and clinical trials.

Ruling year info

2007

Principal Officer

Kim Norris

Main address

15 S. Franklin Street

New Ulm, MN 56073 USA

Show more contact info

EIN

20-8730839

NTEE code info

Cancer Research (H30)

Lung (H45)

Cancer (G30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2021, 2020 and 2019.
Register now

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

According to a recent study by Northwestern University's Kellogg MBA program, the public is dangerously uninformed about our nation's second leading cause of death; only behind heart disease. Lung cancer accounts for more deaths than any other cancer. More than breast, prostate and colon cancer combined! An estimated 155,870 deaths are expected to occur in 2017 in the United States, accounting for about 27% of all cancer deaths. However, federal funding for lung cancer research per death was just $1,680 compared to $24,846 for breast, $12,644 for prostate and $6,344 for colon. Not surprisingly, lung cancer has the lowest 5-year survival rate of the other most common cancers: only 18%, versus prostate at 99%; breast at 89%; and colorectal at 65%.

Lung Cancer Foundation of America's goal is to raise funds for lung cancer research and to raise awareness of the huge public health impact of lung cancer in the United States.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Satellite Media Tours

Satellite Media Tour (SMT): one-on-one interviews with all media (TV, Radio, Online) in all markets, in single day, usually conducted from a studio space or remote location via satellite. Media: Television news, radio news/talk, and relevant online and print media outlets.
Tour Dates: June and November, annually

Population(s) Served
Adults

Meet the Investigator Video Series distribution will incorporate email blasts and social media. We will incorporate message points to address Genomic Testing, Clinical Trials, Targeted Therapies, Immunotherapy, Impact of Research, and Specific Gene Mutation Series (ALK, EGFR, ROS-1, etc). The call to action: asking the general public to watch a 2 minute video featuring a key opinion leader/investigator and take a brief survey testing knowledge post video experience.

Population(s) Served
Adults

Lung Cancer Research grants are offered to young lung cancer investigators (within 7 years of their first academic appointment) who meet the criteria for these best in science awards. 2 awards are offered each year in the amount of $200,000 each. This allows the award recipient 2 years of lab work on their specified project.

Population(s) Served

A lung cancer diagnosis can be like going to a foreign country. You need to learn a new language. In order to get where you want to go, you need to learn what questions to ask and how to ask them.

At first, it all seems terribly daunting. You can’t take in everything. You feel the need to digest the information you need step by step. You need your family and caregivers to know and understand what’s happening, too.

It’s time to bring the patient/caregiver/physician conversation into the home.

There are 3 levels in the Hope With Answers video series:

INTRO – Basic information for those newly diagnosed
INTERMEDIATE – More in-depth discussions for those who now need deeper knowledge to navigate an initial treatment plan or to even find what type of treatment might be their best option.
IN-DEPTH – The in-depth level for lung cancer patients and their families who have been navigating the journey and now need the next level of information to understand how to bridge to other treatment options if they’ve experienced resistance or their lung cancer has progressed.

Population(s) Served
People with diseases and illnesses
Caregivers

This lung cancer podcast series is a resource for patients and their families to learn from researchers and doctors in the forefront of lung cancer research. Experts and lung cancer survivors weigh in on the latest FDA-approved treatments and the newest research discoveries. Doctors, researchers and patients are all finding new ways of managing lung cancer as a chronic disease, like diabetes. The goal is for more lung cancer patients to be living with lung cancer, but living the lives they always intended, despite the disease.

Population(s) Served
Adults
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of website sessions

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers, People with diseases and illnesses, Families

Related Program

Hope With Answers Video Series

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of website pageviews

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers, Families, People with diseases and illnesses

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of new website visitors

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers, Families, People with diseases and illnesses

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Double the five-year survivorship of lung cancer within the next five years. Raise the national profile of lung cancer in order to increase private funding for research.

Prompt a national dialog about lung cancer by developing videos, podcasts and online materials discussing how advances in lung cancer research are helping more people to be living with lung cancer as a chronic disease. Form alliances with the top scientific institutions and researchers in order to identify and fund the most promising transformative research into the detection, treatment, and cure of lung cancer. Fund lung cancer research grants to researchers who are not at institutions that are a part of the normal NCI "pipeline" for research grants, and support them with mentors to help them succeed.

Lung Cancer Foundation of America (LCFA) is uniquely poised to meet our goals of raising funds for lung cancer research and raising awareness of lung cancer's huge public health impact.

LCFA is advised by a board of lung cancer researchers who are preeminent in the field. In its 15-year existence, LCFA has been responsible for funding over $8,000,000 in lung cancer research grants. The LCFA grants are awarded to Young Investigators who have many years ahead of them in their careers to make a real and lasting difference in lung cancer detection, prevention and treatment.

In addition, LCFA has reached more than 60 million people with our awareness raising initiatives, led by our Satellite/Radio/Internet Media Tours which bring interviews with a lung cancer physician and a lung cancer survivor to national television, radio and internet outlets twice per year. LCFA hosts Spanish language Media Tours in addition to the English language tours.

LCFA stands out in the field of lung cancer advocacy organizations because of our commitment to funding significant research grants ($200K for 2 years of work) as well as for our dedication to reaching the general public - in their most comfortable language - with messaging surrounding lung cancer early detection, diagnosis, new research discoveries and treatments that are making a really difference to lung cancer patients and their families.

Our tag line - Life should take your breath away. Not lung cancer.

In its 15-year history, Lung Cancer Foundation of America has been responsible for awarding over $8,000,000 in lung cancer research grants. Our public education campaigns have reached more than 60 million viewers. LCFA aims to grow both our fundraising and our public education initiatives every year. We won't stop until we cure it!

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

LUNG CANCER FOUNDATION OF AMERICA
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

LUNG CANCER FOUNDATION OF AMERICA

Board of directors
as of 06/05/2023
SOURCE: Self-reported by organization
Board chair

Kim Norris

none

Term: 2022 - 2025

Kim Norris

Founder/President

David Sturges

Founder/Treasurer

Robert Figlin

Member of the Board

Susan Mandel

Member of the Board

David Levinson

Member of the Board

Marta Kauffman

Member of the Board

Trish Coury

Member of the Board

Martin Edelman

Member of the Board

Michelle Sayer

Member of the Board

Carolyn Zainer

Member of the Board

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 1/19/2023
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Decline to state
Gender identity
Female

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 08/26/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.