SOLVING KIDS CANCER INC

Every Kid Deserves to Grow Up

aka SKC   |   New York, NY   |  https://solvingkidscancer.org

Mission

Solving Kids' Cancer (SKC) finds, funds, and advocates for breakthrough treatment options to cure children with the most fatal pediatric cancers. By establishing a visible role in the international childhood cancer research landscape, SKC has the ability to influence the science and, ultimately, cure the child. Solving Kids' Cancer is not aligned with any institution or researcher, prioritizing those ideas that have the greatest promise of curative results. Solving Kids' Cancer has supported the launch of clinical projects in 42 institutions across the globe.

Ruling year info

2007

Executive Director

Mr. Scott Kennedy

Main address

1 East 53rd Street 5th Floor

New York, NY 10022 USA

Show more contact info

EIN

20-8735688

NTEE code info

Cancer Research (H30)

Pediatrics Research (H98)

Alliance/Advocacy Organizations (H01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Children fighting childhood cancer need treatments which have the potential to cure them. When current treatment options such as chemotherapy, surgery, and radiotherapy, fail there is an unacceptably low chance of survival. In addition, the large majority of children who survive treatment are faced with serious, long-term side-effects as a result of the toxic treatments they endure at such a young age.

Our focus on innovation is a reaction to the drastic differences we want to see. Radical changes are required to successfully deal with the most serious childhood cancers. We focus on Brain Tumors, Neuroblastoma, and Sarcomas, because even with the best available therapies nearly half of all children do not live beyond five years. With this narrow scope, we are able to better understand the breadth of progress being made to combat these disease types and best address the unmet needs of children with these diagnoses.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Phase I and Phase II clinical trials in pediatrics

SKC focuses on three childhood cancer categories, neuroblastoma, brain tumors, and sarcomas. Approx $750,000 to 1 million dollars is invested annually to support the development of new, innovative treatment options for children who have exhausted available therapies.

Population(s) Served

SKC will selectively support pre-clinical research when it is demonstrated to likely advance to the clinical stage and reach children in need.

Population(s) Served

When a child relapses or does not respond to standard treatments, clinical trials are often a last hope. SKC's network of informed cancer parents will help inform a parent navigating this complex landscape.

Population(s) Served

Where we work

Accreditations

Better Business Bureau Wise Giving Alliance 2013

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Solving Kids' Cancer proactively drives the creation of novel treatment options for children battling the three deadliest childhood cancers today. Scientists agree that there will be no magic bullet solution so SKC works to expand the menu of innovative therapies to give children more options for cures.

SKC understands that traditional treatment is not good enough for children battling brain tumors, neuroblastoma and sarcoma. Survival rates are too low, and of the children that do survive their disease, a large majority of them (65%) are faced with serious, long-term side effects from treatment. We aim to improve the statistics by focusing on only the most promising, next-generation treatment options that are paving the way to new cures, including immunotherapy, targeted therapy, combination therapy, and discovery research.

Our approach is objective, unbiased and led by the patient and parent community. This represents a departure from the 'traditional' model of research philanthropy in childhood cancer.

Our approach increases the influence of the parent community on these decisions. As a nonprofit with no direct affiliation to any one researcher, cancer center, or company; Solving Kids' Cancer is able to assess and fund research with absolute focus on how it serves those in need and fits into a wider strategy to cure childhood cancer.

Understand the Landscape.
Strengthen the Science.
Cure the Child.

We developed a strategic model that includes: (1) identification of the greatest unmet needs for improving survival rates for the 3 deadliest childhood cancers - neuroblastoma, brain tumors and sarcomas (2) A process for developing specific programs to fill these gaps as effectively and urgently as possible using philanthropic dollars. 3) Pursue and engage like-minded stakeholders (other nonprofit organizations and donors) to collaborate in funding these programs.

Children with fatal cancers need an expanded menu of novel treatments. The chances of survival increase when there are more options to try. New treatment options are utilized by children within the experimental clinical trial platform. Each year, we identify early promising research that can be brought into a clinical trial and provide the support needed to launch them for children. In parallel, we commission specific clinical trial research to be conducted towards the greatest unmet needs that we identify.

SKC was founded by a group of parents with shared experiences and values regarding pediatric cancer.
Each of our journeys were marked with active research advocacy efforts for our own children with cancer - searching and funding specific clinical research that might benefit our child that previously didn't exist.
After losing our children, we were inspired to carry on these same efforts for other children.
We prioritized utilizing core business principles in the effort to make the clinical research we support and facilitate as effective and expedient as possible - children with cancer cannot wait.

Our 9-member scientific council is composed of industry professionals who share our vision for improving survival. Working together in a team environment of peers, we operate as a think-tank that takes action. We dedicate ourselves full-time to establishing our model and implementing our strategies towards our mission.

In six years, SKC has worked with the research community to create 15 new treatment options for children with these fatal cancers. We are prioritizing and advancing immunotherapy, a new and very promising category of treatment for childhood cancers. We supported the first oncolytic virus trial in pediatric cancers, and are increasing our immunotherapy programs each year. Currently 67% of our research programs are focused on immunotherapy.

SKC has emerged as a pediatric cancer charity leader in this arena, incubating, initiating, and incentivizing researchers to apply promising immunotherapy advances to childhood cancers. SKC has recognized the need to shift away from toxic standard categories of treatment (chemotherapy, radiation) that are not curative in many solid tumors and result in debilitating long-term effects on those young bodies that do survive.

Our work is on the frontier of the frontier of pediatric cancer research. It is experimental and we are taking the first steps into the unknown. When we complete each project we will know a little more and that knowledge informs our direction and our focus. Research is exploration and we will continue to explore and create novel treatments until every child with cancer has at least five viable therapeutic options available to them.

Published white papers from our projects and press releases can be found at www.solvingkidscancer.org

Financials

SOLVING KIDS CANCER INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Compare nonprofit financials to similar organizations

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SOLVING KIDS CANCER INC

Board of directors
as of 9/17/2019
SOURCE: Self-reported by organization
Board chair

Mr. John London

CHANNING STAVE

Newristics

SCOTT KENNEDY

JOHN LONDON

KHALIL BARRAGE

The Invus Group

MARK SAVOYE

Mastercard

MICHAEL NIEDZIELSKI

T. Rowe Price

CATHERINE LONDON

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No