Disease, Disorders, Medical Disciplines

Multiple Sclerosis Association of America, Inc.

aka MSAA

Cherry Hill, NJ

Mission

The Multiple Sclerosis Association of America (MSAA) is a leading resource for the entire MS community, improving lives today through vital services and support.

Ruling Year

1971

President and CEO

Ms. Gina Ross Murdoch

Main Address

375 Kings Highway North

Cherry Hill, NJ 08034 USA

Keywords

Multiple Sclerosis, MS, Human Services, National Programs

EIN

22-1912812

 Number

0221036395

Cause Area (NTEE Code)

Nerve, Muscle and Bone Diseases (G50)

Services to Promote the Independence of Specific Populations (P80)

Family Services (P40)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Blog

Programs + Results

What we aim to solve New!

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Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Equipment Distribution Program

MRI Access Fund

Cooling Distribution Program

Where we workNew!

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Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

MSAA's mission is to serve as a leading resource for the entire MS community, improving lives today through vital services and support. It is our overall goal to increase the number of people reached by MSAA.
This includes:
• Growing the number of individuals who benefit directly from an MSAA service (MRI assistance, publications, safety equipment, etc. by 10% during FY 2016 to a total exceeding 70,000;
• Expanding participation in regional in-person education programs by 3% during FY 2016 to a total exceeding 6,500;
• Expand the use of technology in the delivery of information and direct services;
• Increasing overall revenue by 15-20% each year for the next four years and improving the diversification of revenue sources to assure adequate resources for program goals;
• Strengthening public awareness and assisting in patients gaining access to the necessary treatments.

• MSAA will invest in robust marketing efforts aimed at growing awareness of MSAA and its offerings as well as differentiating MSAA from other national organizations in the MS arena.
o Engage a marketing and PR firm to assist in these efforts.
o Explore web advertising and search engine marketing.
• Convert visitors to MSAA's website and social media platforms to “active" MSAA clients and donors.
o Provide opportunities for visitors to become members and/or donors of MSAA.
o Work with direct marketing agency to improve the experience for website donors.
• Educate healthcare practitioners on the variety of ways MSAA's services can benefit their MS patients.• Coordinate with funding partners to determine areas of need for regional programming and collaborate on fulfilling this need through cooperative efforts.
• Assess our overall technology needs and continue to advance the technology of our offerings.
o Create Strategic Technology Plan assessing gaps that may impact our ability to reach our impact goals.
o Design, implement and evaluate a new initiative that delivers psycho-educational services via online group intervention.
o Link MSAA's current mobile phone app, My MS Manager, to a physicians' application to transmit health related information to the physician.
• Continue regular meetings with all stakeholders on issues regarding access to treatments, representing the patient to industry, payers, etc.
• Grow individual giving to MSAA to reach industry benchmarks.
o Engage new vendors where needed to improve direct marketing performance.
o Implement new stewardship plan better communicating with donors the impact of their support.
• Grow corporate sponsorships.
o Determine value of MSAA assets.
o Work to engage appropriate companies

• MSAA maintains a highly regarded staff of experienced professionals, including many long-term employees who have dedicated over a decade to the MS space, with tenures of up to 25 years with MSAA specifically.
• MSAA has a healthy reserve fund due to prudent financial decisions and is therefore able to expand our investment in areas of technology, marketing and development.
• MSAA enjoys strong relationships with our funding partners, MS Centers, and other MS organizations around the country.

• Total number of active clients, reviewed monthly from direct services, online and in person sources.
• Monthly review and analysis of volume and conversion rates from social media and website to active client or donor status.
• Analysis of direct marketing channels, their response rates and total dollars raised.
• Number of downloads of the MS patient app, number of linkages between the patient and physician app and qualitative data collected via surveys will be analyzed.

• Progress measures are reviewed on a monthly basis by Executive staff and are reported to the Board of Directors three times annually.
• At the end of Q1 of FY 2015 we have 65,761 active clients (33% of overall increase has been met).
• At the end of Q1 we have secured 15% of overall revenue budgeted for the fiscal year.
• MSAA has on staff credentialed social work staff and the requisite software to deliver psycho-educational groups.
• Start-up funding has been secured for the psycho-educational initiative.
• Current data systems have the capacity to collect appropriate client metrics although MSAA is in the process of assessing and upgrading our technological capabilities.
• MSAA has developed a partnership with a healthcare technology company to develop the linkage between the patient and healthcare professional platforms.

External Reviews

Awards & Accreditations

Better Business Bureau Wise Giving Alliance

Affiliations & Memberships

Better Business Bureau Wise Giving Alliance - Organization

Association of Fundraising Professionals - Member

Direct Marketing Association

Financials

Multiple Sclerosis Association of America, Inc.

Fiscal year: Jul 01 - Jun 30

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Operations

The people, governance practices, and partners that make the organization tick.

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  • Forms 990 for 2017, 2016 and 2015
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Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Yes

Organizational Demographics

In order to support nonprofits and gain valuable insight for the sector, GuideStar worked with D5—a five-year initiative to advance diversity, equity, and inclusion in philanthropy—in creating a questionnaire. This section is a voluntary questionnaire that empowers organizations to share information on the demographics of who works in and leads organizations. To protect the identity of individuals, we do not display sexual orientation or disability information for organizations with fewer than 15 staff. Any values displayed in this section are percentages of the total number of individuals in each category (e.g. 20% of all Board members for X organization are female).

SOURCE: Self-reported by organization

Gender

Race & Ethnicity

Diversity Strategies

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We track retention of staff, board, and volunteers across demographic categories
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We track income levels of staff, senior staff, and board across demographic categories
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We track the age of staff, senior staff, and board
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We track the diversity of vendors (e.g., consultants, professional service firms)
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We have a diversity committee in place
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We have a diversity manager in place
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We have a diversity plan
Diversity notes from the nonprofit
According to statistics multiple sclerosis is 2-3 times more likely to occur in females than males. MS is more common among Caucasians and among people of Northern or Central European descent. By contrast, MS is less common among Hispanics, Asians, and in people of African descent. Our demographic profile reflects the composition of our constituents.