EPILEPSY FOUNDATION OF CONNECTICUT INC
Programs and results
What we aim to solve
Improve the lives of all people living with epilepsy through educating, advocating, connecting and training.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Camp Courage
Camp Courage is an overnight camping experience for children and teens with with epilepsy from ages 8-21
Information & Referral
Were you or your child just diagnosed with epilepsy? Did you have a seizure after not having one for a few years? Then we can help. At this point you probably have lots of questions and concerns, which is normal, calling us can help. We can provide you with basic epilepsy information or more specific information depending on your situation.
Support Groups
We have 4 support groups that serve the entire the state of Connecticut. Due to COVID-19, all groups are conducted virtually at the moment. We have groups for teen/pre-teens, young adults, and adults. Caregivers, family members of a person with epilepsy, and parents of a child with epilepsy are welcome to join.
Our groups offer a safe and supportive environment for individuals with epilepsy and their families to share stories, offer mutual support, and learn from others experiences.
Epilepsy Education Programs
A variety of education programs are offered to provide accurate information about seizures, appropriate first aid techniques, treatment options, and psychosocial issues to a variety of populations. A trained speaker will provide epilepsy education, a video and printed materials
Transportation Fund
Providing transportation assistance to clients with epilepsy
Webinar Series
Webinars are presented by professionals on a variety of epilepsy topics.
State Advocacy Day
Annual Advocacy Day event allows people with epilepsy to share their stories with state legislators and raise epilepsy awareness
HOBSCOTCH Memory & Cognition Program
HOBSCOTCH (HOme Based Self-management and COgnitive Training CHanges lives) is a behavioral program designed to address memory and attention problems. It uses problem solving therapy to improve memory function in people with epilepsy. The program is designed to help adults with seizures find ways to manage and cope with memory problems in order to lead a happier, more productive life.
Halyn Murtha Family Assistance Fund
This fund is to help people with epilepsy in need of financial assistance to cover the cost of epilepsy treatment, and care services associated with the condition.
Where we work
External reviews
Videos
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Support people impacted by epilepsy through advocacy, education, programs and connections to ensure that they can live their best lives.
What are the organization's key strategies for making this happen?
Or Foundation will:
1. Provide leadership and assistance in independent living through educating, collaborating and supporting.
2. Expand Connecticut's neurology department collaboration.
3. Increase awareness of EFCT and its client base.
4. Improve the lives of individuals living with epilepsy with a focus on mental health and trauma experience.
What are the organization's capabilities for doing this?
What have they accomplished so far and what's next?
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback, The people we serve tell us they find data collection burdensome, Staff find it hard to prioritize feedback collection and review due to lack of time
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
EPILEPSY FOUNDATION OF CONNECTICUT INC
Board of directorsas of 02/12/2024
Denise Brower
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
No data
Transgender Identity
No data
Sexual orientation
No data
Disability
No data
Equity strategies
Last updated: 02/12/2024GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We review compensation data across the organization (and by staff levels) to identify disparities by race.
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.