CAMP SUNSHINE AT SEBAGO LAKE INC

Retreat for children with life-threatening illnesses & their families

Casco, ME   |  www.campsunshine.org

Mission

Founded in 1984, Camp Sunshine provides retreats combining respite, recreation and support, while enabling hope and promoting joy, for children with life-threatening illnesses and their families through the various stages of a child's illness. Camp Sunshine is the one of the only programs in the nation offered year-round with the distinction of having been designed to serve the entire family in a retreat model. The program is free of charge to families and includes on-site medical support. Bereavement sessions are also offered for families who have experienced the death of a child from a supported illness.

Ruling year info

1985

Executive Director

Michael Katz

Main address

35 Acadia Rd

Casco, ME 04015 USA

Show more contact info

EIN

22-2582877

NTEE code info

Recreational and Sporting Camps (Day, Overnight, etc.) (N20)

Recreational and Sporting Camps (Day, Overnight, etc.) (N20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

When a child faces a life-threatening illness, it impacts the entire family - emotionally, physically and financially. Often leaving families feeling alone in their struggles. Camp Sunshine brings families of children battling life-threatening illnesses together creating a supportive and healing community, where they can re-group and re-energize. At Camp Sunshine, every member of the family is given attention, not just the ill child.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Family Retreats

Families who turn to Camp Sunshine for support have a child diagnosed with cancer, retinoblastoma, a brain tumor, kidney disease, sickle cell disease, other hematologic conditions including systemic lupus erythematosus, or have received a solid organ transplant. Families participate in illness-specific sessions of varying lengths where they have the opportunity to solidify and renew their own relationships while meeting others facing similar challenges.

Camp Sunshine also hosts specialized programs for families and individuals with Fanconi anemia, Diamond-Blackfan anemia, Shwachman-Diamond syndrome, and dyskeratosis congenita / telomere biology disorders. A bereavement session is offered for families who have experienced the death of a child from a supported illness.

Population(s) Served
Adults
Children and youth
Families
Parents

Where we work

Accreditations

American Camping Association (ACA) 2002

Awards

Gold Ribbon Camp 2016

Children's Oncology Camping Association, International

Affiliations & memberships

American Camp Assocation- Member 2002

Maine Summer Camps- Member 2003

Maine Camp Experience- Member 2012

Association Fundraising Professionals- Member 2014

Children's Oncology Camping Association, International- Member 2016

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The program objectives are: (a) to enhance communication and reconnect family members, (b) to provide a safe, supportive and understanding community in which family members can feel a part of, and (c) empower families to face an uncertain future with strength and hope.

Families leave a Camp Sunshine retreat with wonderful memories, lasting friendships, a support system of families who truly understand the struggles they are facing, and renewed energy to cope with upcoming challenges.

Camp Sunshine uses three primary strategies to achieve our goals:

• Disease specific retreats: Since each retreat is earmarked for a particular illness, sick children feel “normal” when integrated with their Camper population. The often-forgotten well siblings receive needed attention and parents have an opportunity to spend some quiet time together. Children are able to be around other children who are dealing with the same set of health issues, while parents are able to hear presentations and get advice from health professionals who are experts in the field

• Workshops and discussion groups: Parents have the opportunity to attend group workshops led by a Master’s level social worker, where they discuss experiences, emotions and relevant issues regarding their child’s illness and its impact on the family. These parent groups are filled with the energy of many people, who are at different stages of their illness journey. Camp Sunshine also hosts groups for older siblings affording them the same opportunities to share. These sessions are often the first opportunity they have had to share their feeling with others who can genuinely identify with the same experiences. Workshops provide a forum where family members can learn from each other how to manage the needs of their children in the midst of the child’s illness; and, should treatment fail, during the end stages of life.

• Recreational Activities: Most families with an ill child have not participated in much-needed playtime since diagnosis. Here, sick kids get a break from being sick kids - to chat, to laugh, simple pleasures that many have not been able to experience in months or even years. Likewise is the case for all family members. Camp Sunshine offers a variety of activities, some designed for family members to participate with others in their respective age groups, and, as important, some activities that foster family involvement, encouraging family members to laugh and play together.

With more than 35 years of experience and hosting thousands of families from all 50 states and 27 countries, Camp Sunshine has proven to have the capacity and expertise to successfully create, implement, and manage retreats that are meaningful for families who are coping with a child’ life-threatening illness.

Camp Sunshine is governed by an 11-member volunteer board of directors which includes Camp Sunshine’s Medical and Psychosocial directors. Additional members have backgrounds in medicine, law, management and business.

Camp Sunshine has a small staff of 14 (3 are maintenance and housekeeping) who is responsible for programming, facility management, recruitment and training of volunteers, family outreach and recruitment, and fundraising. Staff members have backgrounds in social work, child development, recreation, marketing, finance, fundraising, and volunteer and nonprofit management.

Onsite medical support is available to families while they are at Camp Sunshine. Because retreats are illness specific, each is staffed by a physician whose practice focuses on the illness being covered during that week. It is comforting for parents/guardians knowing they have access to a physician who is knowledgeable about their child’s illness while at camp.

Camp’s small year-round staff is assisted by more than 2,000 volunteers who are involved with all aspects of camp. They are instrumental in executing Camp Sunshine’s special events by serving on planning committees, and providing event-day staffing. Volunteer groups from local businesses, camps and organizations provide essential spring and fall campus clean-up and maintenance support.

The majority, provide support at one of our illness-specific retreats. 80-100 volunteers, depending upon the needs of campers and the number of families, are needed at each in-person retreat. These dedicated volunteers serve as camp counselors working with specific age groups, head up arts and crafts activities, staff the camp store, support food service, and provide transportation (in camp vehicles) for families arriving in Portland by air, train or bus.

Among the volunteers are a growing number of former camp families who return to give back. Their presence speaks to the lasting importance of the Camp Sunshine experience, and adds strength to our programming as they give inspiration and hope to families currently dealing with an illness.

Camp Sunshine maintains accreditation with American Camp Association and has been named a Gold Ribbon Camp by the Children’s Oncology Camping Association. Camp Sunshine has received 9 (6th consecutive) top four-star rating for sound fiscal management and transparency from Charity Navigator. Locally, Camp Sunshine is a member of Maine Summer Camps and Maine Camp Experience.

Established in 1984, Camp Sunshine initially served children with cancer and their families. Retreats were held each spring and fall at a local camping resort. The growth in popularity of Camp Sunshine led to the building of its own dedicated campus in 2001 and expanded the illnesses served.

Today, Camp Sunshine hosts retreats year-round, reaching more than 700 families each year. They attend illness-specific sessions of varying lengths where they have the opportunity to solidify and renew their relationships while meeting others facing similar challenges.

Bereavement programming began in 2002 and is hosted annually for families who have lost a child to an illness Camp Sunshine supports. The addition of these specialized programs has added to the depth to the services offered at Camp Sunshine, and helps create the community of support families need.

Camp Sunshine has developed and maintains strong relationships with over 100 treatment centers as well as illness related groups who refer families. In total, more than 50,000 family members from all 50 states and 27 countries have enjoyed a Camp Sunshine retreat.

In addition, Camp Sunshine has developed longstanding relationships with a number of professional organizations including; The Diamond Blackfan Anemia Foundation, Dyskeratosis Congenita Outreach, Fanconi Anemia Research Fund, Leukemia and Lymphoma Society, Pediatric Low Grade Astrocytoma Foundation, and Shwachman-Diamond Syndrome Foundation, all have helped Camp Sunshine enhance its program over the years.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Paper surveys,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • With whom is the organization sharing feedback?

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

Financials

CAMP SUNSHINE AT SEBAGO LAKE INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

CAMP SUNSHINE AT SEBAGO LAKE INC

Board of directors
as of 2/23/2022
SOURCE: Self-reported by organization
Board chair

Anna Gould

Retired Businesswoman

Nancy Cincotta, MSW, MPhil

Psychosocial Director, Camp Sunshine

William Drapeau

Retired Manager, UPS

Andrew Eichenfield, MD

Medical Director, Camp Sunshine; Pediatric Rheumatology, Weatherby Healthcare and Refuah Health Center

Ralph Heckert

Senior Vice President, Capital Group Companies

Timothy Porta

Owner of Migis Hotel Group

Mike Rotondo

CEO, Altitude Trampoline Parks

Dan Shaw

Owner and Founder of Shaw Brothers Construction, Inc

Kevin Silverang, Esq.

Managing Member, Silverang, Rosenzweig & Haltzman, LLC

Joseph Tassone

Retired Executive VP, Identive, Inc.

Michael Wisecup, Commander

USN, Ret.; Vice President Colby College, Harold Alfond Director of Athletics

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 12/09/2020

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data