GOLD2023

CAMP SUNSHINE AT SEBAGO LAKE INC

Retreat for children with life-threatening illnesses & their families

Casco, ME   |  www.campsunshine.org

Mission

Founded in 1984, Camp Sunshine provides retreats combining respite, recreation, and support, while enabling hope and promoting joy, for children with life-threatening illnesses and their families through the various stages of a child's illness. Camp Sunshine is one of the only programs in the nation offered year-round with the distinction of having been designed to serve the entire family in a retreat model. The program is free of charge to families and includes on-site medical support. Bereavement sessions are also offered for families who have experienced the death of a child from a supported illness.

Ruling year info

1985

CEO

Joanne Bean

Main address

35 Acadia Rd

Casco, ME 04015 USA

Show more contact info

EIN

22-2582877

NTEE code info

Recreational and Sporting Camps (Day, Overnight, etc.) (N20)

Recreational and Sporting Camps (Day, Overnight, etc.) (N20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

When a child faces a life-threatening illness, it impacts the entire family - emotionally, physically and financially. Often leaving families feeling alone in their struggles. Camp Sunshine brings families of children battling life-threatening illnesses together creating a supportive and healing community, where they can re-group and re-energize. At Camp Sunshine, every member of the family is given attention, not just the ill child.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Family Retreats

Families who turn to Camp Sunshine for support have a child diagnosed with cancer, retinoblastoma, a brain tumor, kidney disease, sickle cell disease, other hematologic conditions including systemic lupus erythematosus, or have received a solid organ transplant. Families participate in illness-specific sessions of varying lengths where they have the opportunity to solidify and renew their own relationships while meeting others facing similar challenges.

Camp Sunshine also hosts specialized programs for families and individuals with Fanconi anemia, Diamond-Blackfan anemia, Shwachman-Diamond syndrome, and dyskeratosis congenita / telomere biology disorders. A bereavement session is offered for families who have experienced the death of a child from a supported illness.

Population(s) Served
Adults
Children and youth
Families
Parents

Where we work

Awards

Gold Ribbon Camp 2016

Children's Oncology Camping Association, International

Affiliations & memberships

American Camp Assocation- Member 2002

Maine Summer Camps- Member 2003

Maine Camp Experience- Member 2012

Association Fundraising Professionals- Member 2014

Children's Oncology Camping Association, International- Member 2016

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The program objectives are: (a) to enhance communication and reconnect family members, (b) to provide a safe, supportive and understanding community in which family members can feel a part of, and (c) empower families to face an uncertain future with strength and hope.

Families leave a Camp Sunshine retreat with wonderful memories, lasting friendships, a support system of families who truly understand the struggles they are facing, and renewed energy to cope with upcoming challenges.

Camp Sunshine uses three primary strategies to achieve our goals:
Disease-specific retreats: Since each retreat is earmarked for a particular illness, families feel a common bond even before they arrive. Ill children feel “normal” when integrated with their Camper population. The often-forgotten well siblings receive needed attention and parents have an opportunity to spend some quiet time together. Hosting illness-specific sessions has added greater depth to Camp Sunshine, enabling it to further its mission of creating communities of support for these families.

Parent peer support groups: Parents have the opportunity to attend facilitated peer discussion groups, where they discuss experiences, emotions, and relevant issues regarding their child’s illness and its impact on the family. They offer a forum where family members can learn from each other how to manage the needs of their children in the midst of the child’s illness; and, should treatment fail, during the end stages of life.

Recreational Activities: Most families with an ill child have not participated in much-needed playtime since diagnosis. Here, every member of the family has the opportunity to take a break, relax and make new memories not related to the illness. At Camp Sunshine, they get to be just a family, not the family with a sick child. Camp Sunshine offers a wide variety of activities, some designed for family members to participate with others in their respective age groups, and, as important, some activities that foster family involvement, encouraging family members to laugh and play together.

With nearly four decades of experience and hosting thousands of families from all 50 states and 27 countries, Camp Sunshine has proven to have the capacity and expertise to successfully create, implement, and manage retreats that are meaningful for families who are coping with a child’s life-threatening illness.

Camp Sunshine is governed by a volunteer board of directors whose members have backgrounds in medicine, law, management, and business.

Camp Sunshine has a year-round staff of 20 who is responsible for programming, facility management, recruitment and training of volunteers, family outreach and recruitment, and fundraising. Staff members have backgrounds in social work, child development, recreation, marketing, finance, fundraising, and volunteer and nonprofit management.

Camp staff is assisted by more than 2,000 volunteers who are involved with all aspects of camp. They are instrumental in executing Camp Sunshine’s special events by serving on planning committees and providing event-day staffing. Volunteer groups from local businesses, camps, and organizations provide essential spring and fall campus clean-up and maintenance support.

The majority, provide support at one of our illness-specific retreats. 80-100 volunteers, depending upon the needs of campers and the number of families, are needed at each in-person retreat. These dedicated volunteers serve as camp counselors working with specific age groups, head up arts and crafts activities, staff the camp store, support food service, and provide transportation (in camp vehicles) for families arriving in Portland by air, train, or bus.

Among the volunteers are a growing number of former camp families who return to give back. Their presence speaks to the lasting importance of the Camp Sunshine experience and adds strength to our programming as they give inspiration and hope to families currently dealing with an illness.

Camp Sunshine maintains accreditation with American Camp Association and has been named a Gold Ribbon Camp by the Children’s Oncology Camping Association. Camp Sunshine has received a four-star rating for sound fiscal management and transparency from Charity Navigator. Locally, Camp Sunshine is a member of Maine Summer Camps and Maine Camp Experience.

Established in 1984, Camp Sunshine initially served children with cancer and their families. Retreats were held each spring and fall at a local camping resort. The growth in popularity of Camp Sunshine led to the building of its own dedicated campus in 2001 and expanded the illnesses served.

Today, Camp Sunshine hosts retreats year-round, reaching more than 700 families each year. Families attend illness-specific sessions of varying lengths where they have the opportunity to solidify and renew their relationships while meeting others facing similar challenges.

Bereavement programming began in 2002 and is hosted annually for families who have lost a child to an illness Camp Sunshine supports. The addition of these specialized programs has added to the depth to the services offered at Camp Sunshine and helps create the community of support families need.

Camp Sunshine has developed and maintains strong relationships with over 100 treatment centers as well as illness-related groups that refer families. In total, more than 60,000 family members from all 50 states and 27 countries have enjoyed a Camp Sunshine retreat.

In addition, Camp Sunshine has developed longstanding relationships with a number of illness-related groups including; The Diamond Blackfan Anemia Foundation, Team Telomere, Fanconi Anemia Research Fund, Leukemia and Lymphoma Society, Pediatric Low-Grade Astrocytoma Foundation, and Shwachman-Diamond Syndrome Foundation, all have helped Camp Sunshine enhance its programming over the years.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

CAMP SUNSHINE AT SEBAGO LAKE INC
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

CAMP SUNSHINE AT SEBAGO LAKE INC

Board of directors
as of 04/13/2023
SOURCE: Self-reported by organization
Board chair

Anna Gould

Retired Businesswoman

William Drapeau

Retired Manager, UPS

Ralph Heckert

Senior Vice President, Capital Group Companies

Jed Porta

Partner/VP Company Culture, Migis Hotel Group

Mike Rotondo

CEO, Altitude Trampoline Parks

Dan Shaw

Owner and Founder of Shaw Brothers Construction, Inc

Kevin Silverang, Esq.

Managing Member, Silverang, Rosenzweig & Haltzman, LLC

Joseph Tassone

Retired Executive VP, Identive, Inc.

Michael Wisecup, Commander

USN, Ret.; Vice President Colby College, Harold Alfond Director of Athletics

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 4/7/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data