Down Syndrome Association of Central New Jersey Inc
Breaking down barriers for people with Down syndrome
Programs and results
What we aim to solve
With the opening of our Club DREAMS* achievement center, we will be able to provide one-on-one tutoring for math, reading, life skills and job skills coaching, Speech, Physical and Occupational Therapies, and extracurricular activities like music, yoga and other fitness and social events. This is especially meaningful for families who cannot afford the extra services that help individuals with Down syndrome in school and life. *Down syndrome Recreation Education Achievement Meeting Space
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Club DREAMS
Enrichment programs and after school activities are limited for people with Down syndrome. The National Down Syndrome Society confirms many people with Down syndrome also have other diagnoses (some are on the autism spectrum, ADHD, depression, etc.).
Although these programs are widely accessible to the general population, they often do not have the skill or ability to accommodate the needs of people with Down syndrome in general programming. Because of limited availability, suitable programming is usually offered privately and is very expensive. People with Down syndrome often need extra time and support staff that are familiar with the unique learning style common to people with Down syndrome. Our Club DREAMS center is unique in its goal to offer academics, after school tutoring, and extracurricular activities, socialization, life skills and job skills programs to the Down syndrome community. Our core programming is free.
DSACNJ
DSACNJ is a parent support group, established to assist families of children and adults with Down syndrome (i.e., Trisomy 21) in the following ways:
• We are an initial point of contact for local families who have received a diagnosis that their newborn or unborn child has Down Syndrome.
• We provide support, encouragement, and up-to-date information to parents of children with Down syndrome and to others whose lives are touched by them.
• We offer meetings and social gatherings for people with Down Syndrome and their families.
• We disseminate information to our members about events, activities, speakers, conferences, and other resources of interest to the Down syndrome community.
• We maintain a network of families to foster an exchange of information regarding local medical resources, conferences, development programs, educational programs, etc. from which our families can benefit.
• We celebrate the lives of our children and encourage them to reach their full potential.
Where we work
Awards
Summer Youth Camp Certificate 2022
NJ Department of Health
Affiliations & memberships
US Youth Soccer 2022
National Down Syndrome Congress 2022
National Down Syndrome Society 2022
Global Down Syndrome Foundation 2022
External reviews

Photos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of rallies/events/conferences/lectures held to further mission
This metric is no longer tracked.Totals By Year
Population(s) Served
People with intellectual disabilities, Low-income people, Working poor, Extremely poor people, Students
Related Program
Club DREAMS
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Six noteworthy activities for 2022: Rock Your Socks Off; Designer Bag Bingo; Trivia Night; Roaring 20's Gala; Pennington Day Community Fair; first TOPSoccer program in Mercer Program
Number of overall donors
This metric is no longer tracked.Totals By Year
Population(s) Served
Children and youth, Young adults, Economically disadvantaged people, People with intellectual disabilities
Related Program
Club DREAMS
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Context Notes
With the COVID pandemic, our fundraising efforts were canceled in 2020. However, we have a core set of donors who support our mission even during the pandemic.
Number of families served
This metric is no longer tracked.Totals By Year
Population(s) Served
People with intellectual disabilities, Infants and toddlers, Caregivers, Families
Related Program
DSACNJ
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Historically, we has been the most active networking and support group for people with Down syndrome and their families in Central NJ and surrounding areas. We have grown to over 400 member families.
Total number of new organization members
This metric is no longer tracked.Totals By Year
Population(s) Served
People with intellectual disabilities, Infants and toddlers, Caregivers, Families
Related Program
DSACNJ
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
NEW FAMILIES SERVED - We offer our First Call Program (a provider referral system to allow us to initiate reaching out to families with new Down syndrome diagnosis in a pre-natal/post-natal setting.)
Number of camps offered
This metric is no longer tracked.Totals By Year
Population(s) Served
People with disabilities, Economically disadvantaged people
Related Program
Club DREAMS
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
We collaborated with renowned US Youth Soccer organization to launch the first ever TOPSoccer program in Mercer County (NJ) in summer 2022. We also launched our first Club DREAMS summer camp.
Our Sustainable Development Goals
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Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Enrichment programs and after school activities are limited for people with Down syndrome. The National Down Syndrome Society confirms many people with Down syndrome also have other diagnoses (some are on the autism spectrum, ADHD, depression, etc.).
Although these programs are widely accessible to the general population, they often do not have the skill or ability to accommodate the needs of people with Down syndrome in general programming. Because of limited availability, suitable programming is usually offered privately and is very expensive. People with Down syndrome often need extra time and support staff that are familiar with the unique learning style common to people with Down syndrome. Our Club DREAMS* center is unique in its goal to offer academics, after school tutoring, and extracurricular activities to the Down syndrome community.
Having participants meet face-to-face with their tutors, instructors, and therapists will be much more effective for our Down syndrome community. Unlike in a public-school setting, parents will be able to see first-hand and learn hands-on techniques from professionals to assist their children at home. Our one-on-one academic support enhances remote learning received from public schools. We are also offering support for adults to bring forth lifelong learning beyond school and includes life skills and job skills and looking for opportunities for job placement within the community.
*Down syndrome Recreation Education Achievement Meeting Space
What are the organization's key strategies for making this happen?
Our approach includes:
• Socialization: hosts activities/events for varied age groups, social club for teen and adults
• Supplementary therapeutic services: Physical/Occupational/Speech/Feeding Therapy services
• Academic support: reading/writing, math, computer skills, Homework Helpers program, study buddies
• Enrichment: Gymnastics, dance, sports, karate, music, art, etc.
• Parent Support and Education/Enrichment: regular support sessions for parents, educational topics to include positive parenting skills, coping with pre- and postnatal diagnoses, relaxation/stress management, skills for educating individuals with Down syndrome, play skills for enhancing development of individuals with Down syndrome, topics such as nutrition and exercise, self-care, meditation, yoga.
• Sibling support and socialization: education and social workshops
• Life Skills/Job Training: Workshop for teens young adults such as cooking, cleaning, laundry, hygiene, money management, interviewing
• Medical and community outreach
What are the organization's capabilities for doing this?
Our Board consists of a group of passionate and dedicated volunteers as well as one part-time self-advocate who is paid from a grant. Board members include parents and grandparents of people with Down syndrome as well as community advocates and other supporters.
Our Board members work cohesively to achieve our organization goals and expand services. Depending on the individual board member's areas of expertise, talents and interests, they facilitate the development, maintenance or expansion of specific tasks and programming.
What have they accomplished so far and what's next?
Our strengths include:
• Great leadership
• Committed core members
• Diverse board
• Strong core volunteer base
• Long history
• Ongoing virtual and in-person program options
Our goals include:
• Expanding regular programming for all age groups and various skill levels
• 20% increase in our membership's young adults part time employment rate over the first year and increases beyond that
• 90% client overall satisfaction rate with program.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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Who are the people you serve with your mission?
DSACNJ serves a wide spectrum of individuals in our community and surrounding areas. We have about 400 member families. Our participants vary in age, gender, nationality, ethnic background. Our early intervention services are available for infants, toddlers, and children up to age 5 to help improve developmental trajectories for children with Down syndrome. Our core curricular weekly programs are free and reinforce other early intervention they are receiving to address needs as early as possible. We offer academic support, extracurriculars, social programming for youth, life/job skills for adults. We do not ask about income or verify income since that would be contrary to our mission to provide core free services to all. We estimate about 50% of our participants are low to moderate income.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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What significant change resulted from feedback?
In the last couple of years, we took steps to meet another pressing need for our families by launching a much needed and long-awaited meeting space and enrichment center, Club DREAMS (Down syndrome Recreation Education Achievement Meeting Space). Our goal to officially open Club DREAMS was achieved in Aug 2021, after a delay due to COVID. Club DREAMS is especially meaningful for families who cannot afford extra services that help individuals with Down syndrome in school and life. With the opening of Club DREAMS, we can provide one-on-one tutoring for math, reading, life skills and job skills coaching, therapies (Speech, Physical, Occupational, Behavioral), and extracurricular activities like music, yoga and other fitness and social events.
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Down Syndrome Association of Central New Jersey Inc
Board of directorsas of 01/19/2023
Melissa Burgos
Board leadership practices
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Not applicable -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Not applicable -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Sexual orientation
No data
Disability
We do not display disability information for organizations with fewer than 15 staff.
Equity strategies
Last updated: 09/04/2022GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.