Health—General & Rehabilitative

International OCD Foundation, Inc.

Boston, MA

Mission

The mission of the International OCD Foundation (IOCDF) is to help individuals with obsessive-compulsive disorder (OCD) and related disorders live full and productive lives. Our aim is to increase access to effective treatment through research and training, foster a hopeful and supportive community for those affected by OCD and the professionals who treat them, and fight the stigma surrounding mental health issues. Since our founding in 1986, we have established ourselves as the premier resource for information about OCD and related disorders, as well as the nexus of a broad international community of individuals with OCD, their family members and loved ones, and mental health professionals and researchers.

Ruling Year

1992

Executive Director

Dr. Jeff Szymanski

Main Address

P.O. Box 961029

Boston, MA 02196 USA

Keywords

obsessive compulsive disorder, anxiety disorders, fund research, genetics collaborative, mental health, provider training, pediatrics, mental illness, health

EIN

22-2894564

 Number

4810995573

Cause Area (NTEE Code)

Alliance/Advocacy Organizations (E01)

Alliance/Advocacy Organizations (F01)

Mental Health Disorders (F70)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Programs + Results

What we aim to solve New!

Approximately 1 in 100 adults -- or between 2 and 3 million people -- in the United States have OCD. OCD also affects approximately 1 in every 200 children. Furthermore, it takes the average person with OCD 17 years from the onset of symptoms before they receive an appropriate diagnosis and effective treatment. Unfortunately, there are a number of barriers to accessing effective treatment, including a lack of providers with specialized training in OCD and persistent stigma surrounding mental health issues.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

OCD Awareness Week

IOCDF Training Institute

Annual Conference

Pediatric Outreach Program

1 Million Steps 4 OCD Walk

Where we workNew!

Our Results

How does this organization measure their results? It's a hard question but an important one. These quantitative program results are self-reported by the organization, illustrating their committment to transparency, learning, and interest in helping the whole sector learn and grow.

SOURCE: Self-reported by organization

Number of unique website visitors

TOTALS BY YEAR
Population(s) served

No target populations selected

Percentage of teachers who feel confident in their ability to recognize OCD symptoms in students

TOTALS BY YEAR
Population(s) served

No target populations selected

Percentage of teachers who feel confident in the their ability to refer students with OCD or anxiety to outside resrouces

TOTALS BY YEAR
Population(s) served

No target populations selected

Number of paid participants in conferences

TOTALS BY YEAR
Population(s) served

Children and youth (0-19 years),

Adults,

People with diseases and illnesses

Related program

Annual Conference

Number of clients participating in educational programs

TOTALS BY YEAR
Population(s) served

No target populations selected

Related program

IOCDF Training Institute

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

Since our founding in 1986, we have established ourselves as the premier resource for information about OCD and related disorders (e.g., hoarding disorder, body dysmorphic disorder), as well as the nexus of a broad international community of individuals with OCD, their family members and loved ones, and mental health professionals and researchers. We are a donor-supported nonprofit organization with affiliates in 25 states and territories in the U.S., in addition to global partnerships with OCD organizations and mental health non-profits around the world. Our programming is designed to improve the lives of those living with OCD and related disorders. Every year, more and more individuals in the OCD community turn to the International OCD Foundation (IOCDF) as a trusted resource. We continue to expand our impact, increasing access to critical resources, programs, and services to all those living with and affected by OCD or a related disorder.

The IOCDF celebrated its 30th anniversary in 2016. That year, we saw our annual "1 Million Steps 4 OCD" Walk participation grow significantly, launched our Behavioral Therapy Training Institute for mental health providers, and added our new Hoarding website to our family of sites. As the "go to" resource for OCD, we are always looking to improve our programs and service delivery. In the coming years, we will focus on the following goals:

1. Increase awareness and improve access to up-to-date resources for those affected by OCD and related disorders.
2. Expand our state-of-the-art education and training opportunities for those affected by OCD and related disorders as well as the varied professionals who provide care.
3. Continue to build a highly engaged, mutually supportive community
4. Establish a strong organizational infrastructure to ensure long-term success and growth
5. Improve research into OCD and related disorders

1. Develop strategic and complimentary partnerships with other organizations to expand the reach of our programs and campaigns.
2. Expand and develop IOCDF website content to address the needs of a broader group of audiences, including schools and community members.
3. Increase international reach and engagement.
4. Develop and launch a comprehensive curriculum of education and training opportunities to a range of domestic and international audiences, including mental health professionals, medical professionals (particularly pediatricians), school personnel (particularly teachers and school social workers/school psychologists), community responders within the hoarding disorder community, members of the OCD community (kids, teens, adults and their families).
5. Expand and develop avenues for “virtual" community support and engagement
6. Improve and expand our data infrastructure to enable better reporting and analytics, which will inform communications, marketing, membership, and development initiatives.
7. Prioritize research grant funding based on research that is recent, needed, and consistent with the mission of the IOCDF.

We currently have thirteen full-time employees, one part-time employee, and three volunteers at our headquarters in downtown Boston. We are governed by a fourteen-member Board of Directors that meets on a quarterly basis, and we also have a 51-member Scientific and Clinical Advisory Board comprised of leading experts in the field of OCD and related disorders. The SCB contributes resources to our websites, newsletters, and outreach materials.

We are an independent, donor-supported organization, and we continue to generate engagement and participation from all corners of our community through our local affiliates, ambassador program and OCDvocate program.

Our experience, Board involvement, and loyal donors provide the solid foundation to advance our mission: helping all individuals affected by Obsessive Compulsive Disorder (OCD) and related disorders to lead full and productive lives.

We measure our impact by tracking the effectiveness of our programs and activities. We survey our conference and BTTI attendees consistently and use this information to improve our programs. Regarding the latter, we have published data on the effectiveness of our BTTI and continue to actively collect data on this program. We have an on staff public health expert whose job, in part, is to develop and review the quality of all of our programs. We have seen concrete, increased engagement in the past 8 years including our Annual Conference attendance from 900 (in 2009) to over 1,700 in 2017; our Walk attendance from 175 in 2013 to 1,000 in 2017. From 2008 to 2018 both our annual income and our staff have tripled due to increased donor engagement and support. And we have launched multiple new initiatives including OCD Awareness Week, online training courses for professionals, and outreach into the pediatrician community.

With regards to the goals and strategies described above, we will define success as the following:
- There will be increased visibility, public awareness, and understanding of OCD and related disorders, as well as efforts to combat stigma.
- All those with an interest in OCD and related disorders will be able to access information and resources. These resources will be better targeted to the different audiences within the Foundation community.
- There will be an increase in the number of professional providers who are trained to treat OCD and related disorders.
- The financial capacity of the IOCDF will continue to grow, which will help us expand our programs, reach, and knowledge about OCD.

Please visit our web site to learn additional details about the accomplishments mentioned below. Our training and education programs serve an expanding audience of therapists and clinicians. Our public programs such as our annual Conference and Walk events draw an increasing number of participants year to year. Finally, we've funded some of the most dedicated and inspiring researchers in the field, providing 1.3 million dollars in grants to advance our understanding of OCD and related disorders. We are excited about the future and look forward to the day when there is no stigma regarding issues of mental health. We can continue doing our work to improve access, provide resources, and fund research. We want to grow our capacity to train more professionals, reach more individuals, and help influence the public dialogue around OCD and related disorders. We're eager to engage with more individuals, and partner effectively to advance the mission of the International OCD Foundation.

External Reviews

Financials

International OCD Foundation, Inc.

Fiscal year: Jan 01 - Dec 31

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Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2016, 2015 and 2014
A Pro report is also available for this organization for $125.
Click here to see what's included.

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable