PLATINUM2024

Christopher & Dana Reeve Foundation

Today's Care. Tomorrow's Cure

aka Reeve Foundation   |   Short Hills, NJ   |  http://www.ChristopherReeve.org

Mission

The Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research and improving the quality of life for people living with paralysis through grants, information, and advocacy.

Ruling year info

1989

President and CEO

Mrs. Maggie Goldberg

Main address

636 Morris Turnpike Suite 3A

Short Hills, NJ 07078 USA

Show more contact info

EIN

22-2939536

NTEE code info

Nerve, Muscle, Bone Research (H50)

Fund Raising and/or Fund Distribution (H12)

Alliance/Advocacy Organizations (E01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2020.
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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Our work and research have changed the culture and reality of spinal cord injury and paralysis

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Paralysis Resource Center (PRC)

The Paralysis Resource Center (PRC) is the support side of the Reeve Foundation’s twin missions to provide “Today’s Care” and to strive for “Tomorrow’s Cure”. We are a free, comprehensive, national source of informational support for people living with paralysis and their caregivers. Our primary goals are to foster involvement in the community, promote health and improve quality of life.

Our Information Specialists are trained to help anyone—from newly-paralyzed individuals and their family members to persons who have lived with disabilities for quite some time—as they attempt to navigate their changing world and the services available to them. We pull from a wide array of information and expertise to devise personalized plans and approaches to getting individuals living with paralysis back into their communities and a place of well-being quickly.
The breadth and depth of our knowledge and connections span multiple languages, as well as everything from what to expect in rehab, to the best equipment exchange programs, to peer support networks.

Population(s) Served
People with disabilities

The Reeve Foundation’s NeuroRecovery Network (NRN) is a cooperative network of rehabilitation centers. Each member center is charged with developing and—more importantly—providing therapies that promote functional recovery and improve the health and overall quality of life for people living with paralysis.
https://www.christopherreeve.org/nrn

Population(s) Served
People with disabilities

The mission of the North American Clinical Trials Network® (NACTN) is to bring promising therapies out of the laboratory and into clinical trials in a manner that provides strong evidence of effectiveness and safety.

NACTN supports a network of 10 clinical centers as well as clinical coordinating, data management and pharmacology sites, all dedicated to establishing best practices in the care and treatment of spinal cord injury (SCI).

By uniting experts across the country, NACTN conducts clinical trials that maximizes patient safety while gathering valid, meaningful data to speed the delivery of new therapies to the community.
In addition to translating discoveries from the lab into clinical studies, NACTN maintains a patient registry of information that is important to the design and testing of possible new treatments for SCI.
https://www.christopherreeve.org/research/nactn/about-nactn

Population(s) Served
People with physical disabilities

The Reeve Foundation created the International Research Consortium on Spinal Cord Injury to forge a collaborative alliance among top neuroscience labs in the U.S. and abroad. The seven Consortium labs are run by scientists who, individually, have helped shape the field and made important contributions that form the basis for many potential treatments.
As a group, the principal investigators of the Consortium comprise a formidable team, combining their broad expertise and sharing their tools. The Consortium is also helping to launch the next generation of spinal cord scientists who will carry forward the Reeve Foundation mission.
https://www.christopherreeve.org/research

Population(s) Served
People with physical disabilities

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of participants engaged in programs

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

online advocates for change

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

1. The Reeve Foundation will have 5 7 identified therapies in the pipeline, and one treatment widely available
2. The Reeve Foundation will grow diverse income portfolio, increasing the organizations private side budget to $10 million annually
3. The Reeve Foundation will be the comprehensive resource for all things related to paralysis
4. The Reeve Foundation stakeholders will be active (engaged) members of the Reeve Foundation community

-Improve Research structure and impact to support bold advancements toward a cure
-Strengthen data collection and data integrity
-Strengthen organizational brand and brand value proposition
-Improve organizational structure and staffing model
-Increase engagement opportunities for community members
-Increase and diversify fundraising revenue

-$6-7M raised in 2023
-New website launched
-Increased advocate recruitment, cultivation, and engagement
-2 NeuroRestore contracts for clinical trials
-Launched OpenSesametraining for staff professional development
-First SCI Symposium

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

Financials

Christopher & Dana Reeve Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Christopher & Dana Reeve Foundation

Board of directors
as of 02/06/2024
SOURCE: Self-reported by organization
Board chair

James Calbi

Henry G Stifel

Morgan Stanley

Matthew Reeve

No Affiliation

Kelly Anne Heneghan

NextSteps Chicago

John McConnell

McConnell Media, LLC

Ian Curtis

Tracy Forst

Aon Risk Insurance Services West, Inc.

Alexandra Reeve Givens, Esq.

Center for Democracy & Technology

Will Reeve

Jay Shepard

Former CEO, Aravive

Tania Lynn Taylor

Patricia J. Volland

Helen V. Cantwell

Alexandra Blaszczuk

John M. Hughes

Chris Bridgman

Tom Londres

Metro Commerical Real Estate, Inc.

Julie Neustadt

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes

Organizational demographics

SOURCE: Self-reported; last updated 2/6/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability