Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
The Facial Pain Association
To achieve our goals, the FPA provides Support (support groups, telephone support contacts, 1.800#s, one-on-one patient support): Education (publications including brochures, books, CDs, DVDs, professional education, and professional outreach); Advocacy (newsletter, National and Regional Conferences); Research (Patient Registry);and our website, www.facepain.org, the number one resource on TN and related facial pain conditions.
Patient education and suppport
Provide patient education and support through a nationwide network of support groups, interactive websites, regional and national conferences, publications.
Where we work
External reviews

Our results
How does this organization measure their results? It's a hard question but an important one.
Number of volunteers
This metric is no longer tracked.Totals By Year
Related Program
The Facial Pain Association
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Context Notes
The FPA currently has 95 total volunteers, with some volunteers serving in more than one role—41 Support Group Leaders and Co-Leaders | 38 Peer Mentors | 15 Project Volunteers
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
To create educated facial pain patients and caregivers who can actively participate and advocate for their healthcare.
To improve the lives of facial pain patients and caregivers by supplying a network of group and individual support.
To advocate for facial pain patients by carrying their voice to the medical professional and healthcare community.
To become an invaluable resources to researchers and the medical community striving to improve the lives of people affected by facial pain.
What are the organization's key strategies for making this happen?
What are the organization's capabilities for doing this?
What have they accomplished so far and what's next?
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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Who are the people you serve with your mission?
We serve people who are affected by neuropathic facial pain.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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What significant change resulted from feedback?
We recently brought our popular support group programs and national conference virtual so that people in all locations, and those with disabilities could attend. All of our programs are now free or low-cost with scholarship provided so that no person is unable to attend FPA events if they cannot pay. In addition, we now offer our book free of cost for those who cannot pay.
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
The Facial Pain Association
Board of directorsas of 05/18/2023
David Meyers
No Affiliation
Term: 2019 - 2024
Jeffrey Bodington
No Affiliation
John Temple
No Affiliation
Anne Ciemnecki
No Affiliation
Melissa Anchan
No Affiliation
Ramesh Babu, MD
No Affiliation
Steve Fleming
No Affiliation
Jeffrey Fogel, MD
No Affiliation
Megan Hamilton
No Affiliation
Ally Kubik
No Affiliation
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Sexual orientation
No data
Disability
We do not display disability information for organizations with fewer than 15 staff.
Equity strategies
Last updated: 09/08/2021GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We review compensation data across the organization (and by staff levels) to identify disparities by race.
- We ask team members to identify racial disparities in their programs and / or portfolios.
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.