Gift of Life Marrow Registry

Curing blood cancer through marrow and stem cell donation.

aka Gift of Life   |   Boca Raton, FL   |  http://www.giftoflife.org

Mission

Gift of Life cures blood cancer through marrow and stem cell donation.

Ruling year info

1992

Chief Executive Officer

Jay Feinberg

Main address

5901 Broken Sound Pkwy NW Suite 600

Boca Raton, FL 33487 USA

Show more contact info

EIN

22-3131232

NTEE code info

Organ and Tissue Bank (E65)

Cancer (G30)

Diseases of Specific Organs (G40)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Tissue type is inherited, like eye or hair color. The best chance of finding a match for a patient in need is those of similar ethnic ancestry. The global registry is not representative of donors of diverse backgrounds. Gift of Life strives to increase the diversity of the registry through strategic recruitment initiatives so that one day all patients will have an equal opportunity to find a donor and receive the transplant they need.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Marrow Donor Program

Registration drives are conducted to tissue type volunteer bone marrow donors and enroll them into the public registry. This is performed as a community service without charge to the donors. Gift of Life serves as a liaison between the donor, collection center and transplant center, providing case management services including all logistics involved in donor confirmatory testing, workup, harvest and follow-up.

Population(s) Served
People with diseases and illnesses

Where we work

Accreditations

Better Business Bureau Wise Giving Alliance 2020

World Marrow Donor Association 2017

Awards

Accreditation 2008

World Marrow Donor Association

Re-accreditation 2013

World Marrow Donor Association

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of marrow donor matches made to patients.

This metric is no longer tracked.
Totals By Year
Related Program

Marrow Donor Program

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Number of requests for additional confirmatory testing of identified matches.

Number of donor search requests for patients.

This metric is no longer tracked.
Totals By Year
Related Program

Marrow Donor Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Number of searches performed for patients seeking donors for marrow transplants.

Number of new marrow donors enrolled and tested.

This metric is no longer tracked.
Totals By Year
Related Program

Marrow Donor Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Number of newly recruited and typed donors added to the registry.

Number of transplants facilitated.

This metric is no longer tracked.
Totals By Year
Related Program

Marrow Donor Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Number of marrow or blood stem cell transplants facilitated.

Donor retention rate at confirmatory stage.

This metric is no longer tracked.
Totals By Year
Related Program

Marrow Donor Program

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

Donor retention rate at confirmatory typing stage.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Gift of Life's goal is to help every patient have an equal opportunity to receive the cellular therapy that can save their lives.

Gift of Life strategies include the following: (1) Growing the registry with diverse, well characterized, high availability donors; (2) Shortening the time to transplant with our new Stem Cell Collection Center and future BioBank; (3) Provide donor cells for use in immunotherapy.

Gift of Life has developed a proprietary computer system called MatchQuest(R) which manages the entire recruitment and retention process, among other functions. Additionally, Gift of Life staff are trained carefully and competency is reviewed on an ongoing basis. This makes recruitment and retention as efficient and effective as possible. Gift of Life has control over the supply chain from recruitment to provision of cellular products, which enables us to have a streamlined, integrated program, control over quality and ability to meet transplant center timelines.

Although we have come a long way, not every patient can find the match they need when they need one. Our vision is a match for every patient in need.

Financials

Gift of Life Marrow Registry
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Gift of Life Marrow Registry

Board of directors
as of 12/29/2020
SOURCE: Self-reported by organization
Board chair

Stephen Siegel

CBRE

Term: 2020 - 2020

William Begal

Begal Enterprises

Edward Blumenfeld

Blumenfeld Development Group

Ellen Brody

Roberts & Holland

Jay Feinberg

Gift of Life Marrow Registry

Warren Eisenberg

Bed, Bath & Beyond

Martin Levion

C Projects

Ruth Spector

Winthrop University Hospital

Jason Ostheimer

Blackstone Group

Jonathan Struhl

Indicator Ventures

Steven Siegel

CBRE

Peter Cohen

Mindy Schneider

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 12/29/2020

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Gender identity
Male

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data