Gift of Life Marrow Registry
Curing blood cancer through marrow and stem cell donation.
Mission
Gift of Life cures blood cancer through marrow and stem cell donation.
Ruling year
1992
Chief Executive Officer
Jay Feinberg
Main address
5901 Broken Sound Pkwy NW Suite 600
Boca Raton, FL 33487 USA
EIN
22-3131232
NTEE code
Organ and Tissue Bank (E65)
Cancer (G30)
Diseases of Specific Organs (G40)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
Sign in or create an account to view Form(s) 990 for 2020, 2019 and 2018.
Register now
Communication
Programs and results
What we aim to solve
Tissue type is inherited, like eye or hair color. The best chance of finding a match for a patient in need is those of similar ethnic ancestry. The global registry is not representative of donors of diverse backgrounds. Gift of Life strives to increase the diversity of the registry through strategic recruitment initiatives so that one day all patients will have an equal opportunity to find a donor and receive the transplant they need.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Marrow Donor Program
Registration drives are conducted to tissue type volunteer bone marrow donors and enroll them into the public registry. This is performed as a community service without charge to the donors. Gift of Life serves as a liaison between the donor, collection center and transplant center, providing case management services including all logistics involved in donor confirmatory testing, workup, harvest and follow-up.
Where we work
Awards
Accreditation 2008
World Marrow Donor Association
Re-accreditation 2013
World Marrow Donor Association
External reviews
Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Evaluation documents
Download evaluation reportsNumber of marrow donor matches made to patients.
This metric is no longer tracked.Totals By Year
Related Program
Marrow Donor Program
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
Number of requests for additional confirmatory testing of identified matches.
Number of donor search requests for patients.
This metric is no longer tracked.Totals By Year
Related Program
Marrow Donor Program
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Number of searches performed for patients seeking donors for marrow transplants.
Number of new marrow donors enrolled and tested.
This metric is no longer tracked.Totals By Year
Related Program
Marrow Donor Program
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Number of newly recruited and typed donors added to the registry. 2020 and 2021 were lower due to the impact of the COVID-19 Pandemic.
Number of transplants facilitated.
This metric is no longer tracked.Totals By Year
Related Program
Marrow Donor Program
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Number of marrow or blood stem cell transplants facilitated.
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Gift of Life's goal is to help every patient have an equal opportunity to receive the cellular therapy that can save their lives.
What are the organization's key strategies for making this happen?
Gift of Life strategies include the following: (1) Growing the registry with diverse, well characterized, high availability donors; (2) Shortening the time to transplant with our new Stem Cell Collection Center and future BioBank; (3) Provide donor cells for use in immunotherapy.
What are the organization's capabilities for doing this?
Gift of Life has developed a proprietary computer system called MatchQuest(R) which manages the entire recruitment and retention process, among other functions. Additionally, Gift of Life staff are trained carefully and competency is reviewed on an ongoing basis. This makes recruitment and retention as efficient and effective as possible. Gift of Life has control over the supply chain from recruitment to provision of cellular products, which enables us to have a streamlined, integrated program, control over quality and ability to meet transplant center timelines.
What have they accomplished so far and what's next?
Although we have come a long way, not every patient can find the match they need when they need one. Our vision is a match for every patient in need.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
-
Who are the people you serve with your mission?
Bone marrow and stem cell donors.
-
How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
-
Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to ensure people feel comfortable being honest with us, We act on the feedback we receive
-
What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more
about GuideStar Pro.
Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Gift of Life Marrow Registry
Board of directorsas of 01/03/2023
Stephen Siegel
CBRE
Term: 2020 - 2020
William Begal
Begal Enterprises
Edward Blumenfeld
Blumenfeld Development Group
Ellen Brody
Roberts & Holland
Jay Feinberg
Gift of Life Marrow Registry
Warren Eisenberg
Bed, Bath & Beyond
Martin Levion
C Projects
Ruth Spector
Winthrop University Hospital
Jason Ostheimer
Blackstone Group
Jonathan Struhl
Indicator Ventures
Steven Siegel
CBRE
Peter Cohen
Mindy Schneider
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
-
Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
Thanks for signing up!
An email has been sent to the address you provided. Click on the link in that email to get more GuideStar Nonprofit Profile data today!
(Don't see an email in your inbox? Click here to resend it.)
GuideStar Pro Reports
Report successfully added to your cart!
Want more data?
A GuideStar Pro report containing the following information is available for this organization:
- Email contact information
- Financial trends metrics for five most recent years 2021, 2020, 2019, 2018, 2017*
- Financial statements for 2021, 2018
- Letter of Determination
- Officer and/or Employee data for 2021, 2020, 2019, 2018, 2017
- Contractor and/or Paid Preparer data for 2021, 2020, 2019
- Board of Directors data for 2023
- *with the ability to download the data for 2021, 2020, 2019, 2018, 2017
Download it now for $125.
Need the ability to download nonprofit data and more advanced search options?Consider a Pro Search subscription.