CCHS Family Network

Oneonta, NY   |  http://www.cchsnetwork.org/

Mission

The CCHS Family Network is a non-profit, tax-exempt organization registered in the United States. Our efforts focus primarily on education and support of our families and CCHS patients, inter-family and family-physician communication, and supporting and facilitating CCHS research.

Ruling year info

2000

Principal Officer

Mary Vanderlaan

Co Principal Officer

Melinda Ricatelli

Main address

71 Maple St

Oneonta, NY 13820 USA

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EIN

22-3634814

NTEE code info

Fund Raising and/or Fund Distribution (G12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Family Support

Family support

Population(s) Served

Where we work

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Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To raise awareness of CCHS, education of health professionals and family as to effective treatment. Call out to researchers to optimize treatment and find a cure.

We have launched the CCHS Foundation, our fundraising entity. Ask for family support in local fundraisers. Establish corporate partners to raise funds. Host International CCHS conference for health care professionals and Family Conferences for support.

We have active families who are willing to participate in fundraising activities. Our Board consists of family members and medical professionals who are able to reach out to communities globally.

We have not funded our first research project yet. We have accomplished raising the funds for it.

Financials

CCHS Family Network
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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CCHS Family Network

Board of directors
as of 11/10/2015
SOURCE: Self-reported by organization
Board co-chair

Mary Vanderlaan, PhD


Board co-chair

Melinda Ricatelli

CCHS Family Network

Desiree Cougle Treasurer

CCHS Family Network

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Not applicable
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Not applicable
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Not applicable
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable