Human Services

MAC ANGELS FOUNDATION INC

Supporting Families with ALS

aka 22-3769685

Larchmont , NY

Mission

The mission of MAC Angels Foundation is to enhance the quality of life for individuals, family members and caregivers impacted daily by ALS, by providing the compassion, patient advocacy, and unique resources needed to manage the devastating effects of this disease.​

Ruling Year

2002

Interim Executive Director

Kevin George

Main Address

2005 Palmer Avenue, Ste. 291

Larchmont , NY 10538 USA

Keywords

Patient advocacy; Supporting Families with ALS; ALS; Lou Gehrigs; Radicava; Amyotrophic Lateral Sclerosis

EIN

22-3769685

 Number

2364125390

Cause Area (NTEE Code)

Family Services (P40)

IRS Filing Requirement

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Social Media

Programs + Results

What we aim to solve

Amyotrophic Lateral Sclerosis (ALS) is a progressive disease that attacks nerve cells in the brain and spinal cord, and often has a rapid onset and progresses quickly. In the later stages of the disease, patients become totally paralyzed, though mental faculties generally are not affected. There is no cure for ALS. People with ALS, their caregivers and other family members face numerous decisions for symptom management and quality of life. The progressive nature of the disease makes it particularly difficult to address or even discuss plans of care. In addition, families often struggle to understand a complex healthcare system and navigate frequent gaps in coverage and fragmentation of care. End of life planning, though necessary, is emotionally and logistically overwhelming

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Tri-state area support

Where we work

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

1. To provide aid, guidance, and comfort care to people with ALS throughout all stages of disease progression. 2. To support patient self-determination, facilitate decision-making, and promote better end-of-life care. 3. To relieve the suffering of people with ALS and caregivers by providing psychosocial and practical support. 4. To coordinate care and connect ALS patients with a network of support services that enhances their quality of life.

Comprehensive Assessments: Our services team visits people with ALS and their families at their home or in care facilities. This allows us to create a comprehensive assessment of their psychosocial, emotional, environmental, financial needs as well as assess the gaps in services. Plans of Care: Our team works with families to develop a plan of care that will address their emotional, social, financial, and logistical needs. MAC Angels helps ALS patients and caregivers think through and implement daily routines that are normally taken for granted: planning meals, arranging medical appointments, and finding reliable transportation. We educate to services to empower families to address their own needs. We also assess a family’s willingness to discuss Advance Care Planning and Advance Directives and help them address difficult end-of-life decisions. Reassessments: Continuous communication and follow-up visits means we can address needs that evolve as families struggle to cope with the progression of the disease. The follow-up visits that shape our reassessment process enable patients and families to build a trusting relationship with members of our services team. Patient Advocacy: We provide reliable, current information about clinicians specializing in ALS so families can make informed choices about treatment and care. MAC Angels also facilitates and assists communication with each family’s health care team: translating medical jargon, preparing questions for healthcare providers, coordinating care, and connecting patients with emerging clinical trials. We provide advocacy and coordination and communication of care with our services team, ALS service providers, and community resources. We also help families navigate the complex and costly process of acquiring maximum benefits, including health insurance and social security.

The Foundation's core services team consists entirely of licensed and certified clinical professionals. Our goal is to provide our families quality care that is both robust and evidence-based. The new team includes Licensed Master Social Workers, Licensed Clinical Social Workers, and Registered Nurses. Our team brings a combined five decades of experience in critical and palliative care. This highly trained, multidisciplinary team provides specialized case management services not readily available to families of low or moderate income in Southern Connecticut, Westchester, New York City, and Northern New Jersey.

Data collection and utilization are integral for improving the complex services the Foundation provides. The Foundation keeps a detailed accounting of all interactions with clients through call logs, regular case management meetings, intake forms, written assessments, and documented plans of care. Our model of care supports the type of oversight and accountability that larger agencies and organizations require. Our services team is licensed and guided by the established ethics of their professions as well as state and federal regulations. Our interventions are structured by policies and procedures that ensure progress with each family is carefully monitored.

Over the past 10 years, MAC Angels Foundation has offered comfort care and critical assistance to over 500 families with ALS in the tri-state area. The implementation of a new model of care in 2019 and the hiring of a professional staff (licensed and certified mental health/health professionals) means the Foundation is positioned to deliver care that is profoundly impactful and necessary to meet the vast and evolving care needs the ALS community.

External Reviews

Financials

MAC ANGELS FOUNDATION INC

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Operations

The people, governance practices, and partners that make the organization tick.

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FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2018, 2017 and 2016
  • A Pro report is also available for this organization.

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Board Leadership Practices

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SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable